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Child with ICD

  • by Anita
  • 2008-04-04 03:04:14
  • ICDs
  • 2052 views
  • 5 comments

My 14 year old son has had an ICD for 15 mos. In june he had a ICD storm and was shocked 8 times in 20 min. He has ventricular tachycardia. He had 4 open heart surgeries before he was 6 weeks old. He has tachycardia from scar tissue from multiple heart surgeries. His heart rate goes over 300bpm. He has had a total of 9 shocks and it has charged up on several occations. He has always been shocked when he was playing; therefore he doesn't play . He has alot of anxiety and has panic attacks.He is s...

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new mommy with a pace maker

I recently gave birth to my son Anthony. I went in to the hospital to deliver him but he left the hospital before I did, During my deliver my heart rate drop to 21 beats a minute. I almost die giving birth to him. I never thought that I was going to go through something so powerful. I just got out the hospital with a pace maker and I'm not sure what to do now. I'm getting depressed because I now realize that I would of die and I would of left my new baby and my two year old daughter without...

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Peter Nash

Just had to tell you you must be so proud of the twins! The picture of your planes! I just love them! Great Job!

Take care,

Amy

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nervous and anxious

I just got my pacemaker 2 weeks ago. I am nervous and anxious about going back to work because I am surrounded by office machines. Any suggestions?

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Stressed

I am so stressed because I am so afraid my ICD will go off. I have had it for 3 months. Any ideas on how to relieve this stress?

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ICD fired

I am ok I wanted all to know. Just got home from the ER with a new med and new settings. must sleep now. Thanks jessie, plumer and saphire for your late night chat!! your all great.

Tammy I will tty be calm, sisters, now go to work.
Tiara

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Bi Chamber Pacemaker

As per my earlier posting as I am suffering from extensive breathlessness which became noticable after my Dual Chamber PM was placed, I am now told that I am to have a new BI Chamber version to try and stop this. Has any one else had this problem? I do not have heart disease per say just AF... But I now feel like the walking dead most of the time.. Has anyone else had a problem with the way their own heart reacts to the artificial paceing beat....As it would appear this is what is causing my pr...

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Sales donations to other countries, not the U.S.

I'm rather upset. I was checking out "two lives saved" in the latest news box on the right of the page.
It says how a Pacemaker Club donates a portion of sales to Heartbeat International, a non-profit charity who implants pacemakers and defibrillators free-of-charge in patients from developing countries. Developing Countries? What the heck is wrong with helping those who can't afford PM or defibrillators right here in our own country, United States of America.
Don't get me wrong, I'...

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Welcome!

I wanted to welcome all the knew people and ask that you would post your birthday and pm/icd birthday or private message me with it.
I have not been on much lately but hopefully soon my energy level will get back up to par. Has anybody heard from miss Valerie lately?
My thoughts and prayers are with you all.

Blessings and love,
Tammy

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Test of Effort today

Hi

Thought I would let you know how my Test of Effort (riding a cycle whilst wearing an ECG) went.

Apparently, my cardiologist said that I was fine and in fact I had improved from my first check up. Good news. I asked about the ectopic or missed beats which I felt whilst exercising or sometimes just sitting. He said that everyone suffered with these, they were innocent and that I should ignore it.

I also asked what percentage was I making use of the PM. He s...

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Power Plate

Sorry me again, forgot to ask if it is safe to use a Power Plate. An exercise machine which vibrates. Any knowledge on this one please.

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Talk about attitude!

Thanks to all those who sent welcomes and encouragement. Talk about terrific attitudes! It's a relief to be able to talk about how things "really are" rather than joking and reassuring family, friends and co-workers so that they are not freaked out.

Just when I think I'm back on track, I'll have a day where I feel "off" or tired again. My husband tries to understand exactly what "off" means, but as you all know, it's a concept that's pretty much indescribable to those not battery oper...

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HAD PM/ICD REPLACED LAST WEEK

Hello everyone, last thursday i had my pm.icd replaced due to low batteries. The first 5 days i had a headache, that would not quite. Went to medical dr on Monday, told me it was due to low blood pressure, and the anesthesia, have me pain pills. Today is the first day I am feeling normal. Site is still sore but not as bad after the replacement was put in. Ordered the confort her pad for my bra strap, will let all you girls know if it works. Going to work tomorrow but will only work 1/2 day. Al...

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Beating the beta blockers!

Hi allan here (41) Edinburgh

Well just completed my second 6 mile walk this week and although I have to admit I felt hellish halfway through the second one i did it.
If I have to learn how to walk again in this new zombie like world of mud I will because I am sure the exercise does me good it sure as hell clears the head.
From now on I am gonna try to be more positive as it is easy to forget the way I felt before i got the pacemaker-

I used to have weeks w...

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Electrolytes

I take diuretics & potassium to control my edema due to Congestive Heart Failure. When my potassium & sodium levels are out of balance, I get really bad cramps and have to go to the hospital to get balanced out. Has anyone else experienced this?

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bra pad

Bra, Hi, It is advertised on this site, under the soft touch. Have not used it yet but I know what you are saying. Also try to wear a bra where the clips are in the back instead of the front. This will relieve the pressure on your site. Good luck jbkeys

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If its going to happen, it will happen to me!

I have a long history of medical problems eg. ovarian cysts, hysterectomy, bowel rupture resulting in 2 failed colostomy's and a functioning ileostomy up till 2000. While walking my dog in the park about 3 years ago I had a sudden episode of really rapid heart rate. I went to the doctor the next day and was fobbed off with it being a panic attack. This I knew was not what had happened so made another appointment with my regular GP and she referred me to the local hospital cardiac clinic. After m...

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Atrial Fibrillation research study

The Los Angeles Times several days ago carried an ad which said that Cardiologists nationwide are participating in a research study to determine the safety and effectiveness of a single investigational procedure for the management of Atrial Fibrillation, People are eligible to participate if they have been diagnosed with symptoms of irregular heartbeat and medication has been unsuccessful. The phone number for Pacific Heart Institute is given as (866) 629-4466
or www.cardiofocus.com

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Guidant

Hi Anyone

Just read Carol's posting about her rep for the PM. Does anyone know if there is a Guidant Rep and whether they have the same knowledge.

Would just like to get rid of the odd heart beat and maybe a rep from Guidant would know.

By the way really pleased for you Carol. Fantastic.

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Opti Vol on Medtronic Concerto ICD

G'day Readers
I have a bedside monitor which recently showed an alarm. My cardiologist reset the trigger bar but it has since gone off again.
My fluid trend graph shows fluid build but I have no other signs and, besides tiredness, I actually feel pretty good.
I'm told that this particular feature in this remarkable technology does not suit everyone and in my case has been turned off. Blood tests have confirmed all OK.
I have a leukemia related issue (polycythema Vera), plus d...

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You know you're wired when...

Your signature looks like an EKG.

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Your heart’s electrical system has a manmade helper. A helper that only knows to do what it is programmed to do and will perform that function day in and day out, without fail. Now, go enjoy your new grip on life.