Most Recent Messages

New Medicine

I have been on 5mg of pindolol but kept getting severe muscle cramps. Yesterday the doc switched me to toprol xl. I was wondering if anyone has experience with toprol xl?

Thanks, boatman

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shellshocked!

hi,

I am a very recent recipient of my pacemaker- admitted suddenly into hospital 3 weeks ago, and had it fitted 2 weeks ago. I am just coming to terms with my implant, healing well and phasing myself back to work. I am considered fairly young to have this procedure (49), consider myself fit and active, and want to get back to "normal" asap -that is get to a point where I am not defining myself soley by the fact that I am a pacemaker user. I am interested in other people's experience...

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seat belts

The recent poll made me wonder if everyone knows you can "climb thru" the seatbelt and have it only around your waist. This is legal. It would be very dangerous for me to use it in the standard fashion, as it passes very close to my prominently bulging pm.

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Anemic now!

I posted after my EP said my symptoms were not because of my PM. My PCP ordered bloodwork and it turns out that I am pretty seriously anemic. My levels are very low and she says that would cause my symptoms. I am now on iron supplements and will retest in three months. Has anyone else gone on the low fat, low cholesterol (eat nothing but chicken) diet only to turn up anemic? Well, at least I know my EP isn't clueless!
Michelle

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Hello!

Hello everyone! I'm new to the site, but have been reading the posts for over a year. I'm looking forward to communicating with you all! This site has been a great source of information and encouragement for me. I want to see if I can post this before I go into "my" story. I'm having a terrible time posting anything! Have a great day! Bambi

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PM Scarring

Hey PMC!

I had a pacemaker implanted 2 months ago and my incision has two keloids small. I was wondering if anyone knew anything about those Silicone Strips? Do they work? My cardi said no? I'm healed on the inside just a little slowly on the outside

Any Feedback on this?
Thanx!

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Disneyworld with a Pacemaker

My now 15 year old son had a Medtronic EnPulse E2 DR Series Pacemaker implanted in December, 2005, to compensate for a Second Degree Heart Block. He is about to go to DIsneyworld with the local high school Band/Orchestra/Choir trip. I have my concerns even though his health and checkups have been great since that time. Does anyone have any suggestions/information either pro or con for activities he will encounter in the various Disney parks?
This is my first posting on what appears to be...

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TO MY FRIENDS

My Friend,

I'm writing to tell you that you're not alone. We must not give up hope. We must stand in this fight together. I'm not going to leave this earth until I have move these mountains that stand before me. I want to ask each and everyone of you to stand in faith and pray for others. Some times we go through the storms and our boat of hardship tends to be sinking. Just when you think life is going to end, remember that Jesus is the Son of Man and His image He has not fo...

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Here I go agian

Hi everyone:)
First of all love the updates on the Pacemaker club web page:)
Well I thought I was doing well but my pacemaker is now having times when it record my heart racing...then I start to feel sick when my heart rate goes to about 44 and it takes a few mins for my P.M. to kicks in. Anyone feel light headed and there head hurt before there P.M. kicks in? I just feel weird and my doc. wants to do this new cat scan test that takes photo faster then most scans.. Has anyone had this...

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7 Days and Counting

I was shocked yesterday to discover where all my energy went. My handy little St. Jude Identity, which has served me well for 3 years, one month and 2 days, reached battery life on March 8, the very day I became a zombie. I'm now in battery saving mode, which apparently means that if I don't have to walk more than a few feet and take really slow deep breaths (hibernate maybe?), I will last until Tuesday morning when I get a new St. Jude. Where oh where is the Energizer Bunny when I need him?...

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so i finally got the lowdown on smoking

marijuana, that is. 20 days post-surgery i ran the query past my nurse, and she said she'd never say it's okay to toke up, but in terms of my pacemaker recovery & everything, it was pretty much a non-issue. she said it'd have no effect on the pacemaker or the incision sight at all! so i thought i'd just share....

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trusting pacemakers performance

Hi, just had implant of a"Sorin NEWAY VDR" pacemaker 2 months ago, I am wondering how long it takes to get used to idea of dependancy on it & trusting its performance?. Have any of you got the same type of pm?. I couldnt find much info. on it in google search.

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pain after pacemaker surgery

On Dec. 1st, 06 i had a dual lead medtronic pacemaker put in. It works just fine as far as my heart is concerned, ( used to beat 30 to per min., now in 60's and 70's) problemis ever since the surgery my left upper chest to my shoulder has quite a bit of pain and my left arm has lost probably 75% usage. my heart doc said sometimes it takes awhile to get used to it, the second time i went to complain, he said the pacemaker is fine and i would need to see another doctor for the symptoms, even thoug...

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Website Feedback

Hi Blake,

It's been a few days since I last logged on and just saw the new website format today. So I am trying to get acquainted with it.

If I may I would like to share some feedback. (I sent similar feedback to the webmaster address under the contact info, so I apologize for redundancy here).

I think the site looks nice and professional. However, I am already finding it frustrating at best to use. I think it's too complicated and cluttered. There are also some...

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Side Effects

My mother had a pacemaker implanted last year. It was a Guidant 1290 and she has been having side effects like tiredness, dizziness (when standing up), blurred vision, shortness of breath, and ringing of the ear. I am trying to help and find out if anyone who has had a pacemaker implanted has had the same symptoms. I'm reading up on a conditions called a Sick Sinus Syndrome, which is a result of taking meds like Warfarin and Metoprolol. Would anyone be able to tell me her side effects may be...

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New member, new pacer

Hello to all! I recently had a pacer implant 2/26/2007 and am happy to say that I am on the mend w/o any complications thus far. I had experienced "episodes" that would often involve seizure like activity. One recent episode was witnessed by my son which
scared the living daylights out of him. I had recently changed PCP and mentioned this to him upon a follow up for a back injury. He quickly made referrals to an EP and a neurophysiologist after the results of a Holter. One test led to...

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Hello everyone!

I had my visit with the new EP and it was the worst check up I had in all my pacemaker checks. My heart is very sensitive to my pacemaker pacing my heart. My pacemaker is on stand by. The new EP was trying to figure out why my heart beats was acting up at a certain heart rate. He was puzzled and asked me does this happen all the time. I said yes and away he went trying to find out the problem. After countless tries I said to him, " Doctor you have to stop this, I know where Benlauden is,...

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Unecessary Defibrillation

I have had my defibrillator for over two years with no problems. I had one shock within a month of the implant and my cardiologist raised the threshold slightly. No more problems until a group of VA doctors got a hold of me and made a lot of adjustments in the device two weeks ago. Last Thursday while cooking dinner the defibrillator decided to start going off and it proceeded to defibrillate me over 60 times in a matter of 35 minutes. The printout showed the only heart change was Atrial Fibrill...

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Displaced Lead

Has anyone left a displaced lead (it is apparently caught on to a place in my heart where is is not supposed to be, not free floating) in for an extended period of time like months or years? The Atrial lead is shut off for now and I am having minor symptoms, but nothing too uncomfortable. I am wondering if this can be a long term solution or if another surgery is inevitable. Thanks always for the feedback and support. Shanna

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ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.

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You know you're wired when...

You read consumer reports before upgrading to a new model.

Member Quotes

My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.