Most Recent Messages

TO MY FRIENDS

My Friend,

I'm writing to tell you that you're not alone. We must not give up hope. We must stand in this fight together. I'm not going to leave this earth until I have move these mountains that stand before me. I want to ask each and everyone of you to stand in faith and pray for others. Some times we go through the storms and our boat of hardship tends to be sinking. Just when you think life is going to end, remember that Jesus is the Son of Man and His image He has not fo...

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Here I go agian

Hi everyone:)
First of all love the updates on the Pacemaker club web page:)
Well I thought I was doing well but my pacemaker is now having times when it record my heart racing...then I start to feel sick when my heart rate goes to about 44 and it takes a few mins for my P.M. to kicks in. Anyone feel light headed and there head hurt before there P.M. kicks in? I just feel weird and my doc. wants to do this new cat scan test that takes photo faster then most scans.. Has anyone had this...

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7 Days and Counting

I was shocked yesterday to discover where all my energy went. My handy little St. Jude Identity, which has served me well for 3 years, one month and 2 days, reached battery life on March 8, the very day I became a zombie. I'm now in battery saving mode, which apparently means that if I don't have to walk more than a few feet and take really slow deep breaths (hibernate maybe?), I will last until Tuesday morning when I get a new St. Jude. Where oh where is the Energizer Bunny when I need him?...

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so i finally got the lowdown on smoking

marijuana, that is. 20 days post-surgery i ran the query past my nurse, and she said she'd never say it's okay to toke up, but in terms of my pacemaker recovery & everything, it was pretty much a non-issue. she said it'd have no effect on the pacemaker or the incision sight at all! so i thought i'd just share....

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trusting pacemakers performance

Hi, just had implant of a"Sorin NEWAY VDR" pacemaker 2 months ago, I am wondering how long it takes to get used to idea of dependancy on it & trusting its performance?. Have any of you got the same type of pm?. I couldnt find much info. on it in google search.

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pain after pacemaker surgery

On Dec. 1st, 06 i had a dual lead medtronic pacemaker put in. It works just fine as far as my heart is concerned, ( used to beat 30 to per min., now in 60's and 70's) problemis ever since the surgery my left upper chest to my shoulder has quite a bit of pain and my left arm has lost probably 75% usage. my heart doc said sometimes it takes awhile to get used to it, the second time i went to complain, he said the pacemaker is fine and i would need to see another doctor for the symptoms, even thoug...

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Website Feedback

Hi Blake,

It's been a few days since I last logged on and just saw the new website format today. So I am trying to get acquainted with it.

If I may I would like to share some feedback. (I sent similar feedback to the webmaster address under the contact info, so I apologize for redundancy here).

I think the site looks nice and professional. However, I am already finding it frustrating at best to use. I think it's too complicated and cluttered. There are also some...

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Side Effects

My mother had a pacemaker implanted last year. It was a Guidant 1290 and she has been having side effects like tiredness, dizziness (when standing up), blurred vision, shortness of breath, and ringing of the ear. I am trying to help and find out if anyone who has had a pacemaker implanted has had the same symptoms. I'm reading up on a conditions called a Sick Sinus Syndrome, which is a result of taking meds like Warfarin and Metoprolol. Would anyone be able to tell me her side effects may be...

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New member, new pacer

Hello to all! I recently had a pacer implant 2/26/2007 and am happy to say that I am on the mend w/o any complications thus far. I had experienced "episodes" that would often involve seizure like activity. One recent episode was witnessed by my son which
scared the living daylights out of him. I had recently changed PCP and mentioned this to him upon a follow up for a back injury. He quickly made referrals to an EP and a neurophysiologist after the results of a Holter. One test led to...

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Hello everyone!

I had my visit with the new EP and it was the worst check up I had in all my pacemaker checks. My heart is very sensitive to my pacemaker pacing my heart. My pacemaker is on stand by. The new EP was trying to figure out why my heart beats was acting up at a certain heart rate. He was puzzled and asked me does this happen all the time. I said yes and away he went trying to find out the problem. After countless tries I said to him, " Doctor you have to stop this, I know where Benlauden is,...

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Unecessary Defibrillation

I have had my defibrillator for over two years with no problems. I had one shock within a month of the implant and my cardiologist raised the threshold slightly. No more problems until a group of VA doctors got a hold of me and made a lot of adjustments in the device two weeks ago. Last Thursday while cooking dinner the defibrillator decided to start going off and it proceeded to defibrillate me over 60 times in a matter of 35 minutes. The printout showed the only heart change was Atrial Fibrill...

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Displaced Lead

Has anyone left a displaced lead (it is apparently caught on to a place in my heart where is is not supposed to be, not free floating) in for an extended period of time like months or years? The Atrial lead is shut off for now and I am having minor symptoms, but nothing too uncomfortable. I am wondering if this can be a long term solution or if another surgery is inevitable. Thanks always for the feedback and support. Shanna

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ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.

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Help

Does anyone know the proper protocol for administering a Stress Test to someone who is likely to experience sudden cardiac arrest , has only 1/3 of her heart , a completely defective ICD acting as a time bomb in her chest, needs a heart transplant , is deeply depressed and stressed to the max ?

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Getting used to it!!

Hi Blake,
Thanks for the new website.You did a great job.I was a bit confused at first but now I have worked it all out!
I love all the "youre wired when" jokes.
Regards from Kay(rewiredaussiegirl)

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Sick sinus syndrome

My husband Stu has SSS he received a pacer in Jan 06 for bradycardia and now requires ablation for atrail flutter. He has been expereincing breathlessness and chest pain. The balation is set to take place on Wednesday. Are there others who have had similar expereience. Would love to know if and how they doing.
Regards Donna

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New batteries going to 15 years!!

http://www.engadget.com/2007/03/18/eaglepicher-claims-worlds-smallest-implantable-battery/

EaglePicher claims "world's smallest" implantable battery
Posted Mar 18th 2007 1:48AM by Darren Murph
Filed under: Misc. Gadgets

We've just about had our fill of "world's smallest" gizmos this week, but when it comes to a new development in the battery realm, we certainly won't complain with delivering power in a less burdensome manner. Vancouver's own EaglePicher Medical P...

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New Pacemaker

I recently had a "new" medtronic pacer put in. The batteries on my old one pooped out. I feel like this pacer does a better job.
I have noticed during exercise that I am less short of breath now, then I was with the older Medtronic. Could this be possible or am I just imaginging it?

Another question.

Are life expentancies the same with pacemakers or are they lowered?

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Help, I need input!

While on Chemo, I was put on Amiodarone for Atrial Fib. After chemo I wanted to get off of this nasty drug. Since then I have been on Propafanone, Flecanide, Tikosyn and 2 ablations, I am at the point of either another ablation (if I have the courage) or a pacemaker with AVNode ablation. The rock and roll effect of the AF has decreased quite a lot, so I am more comfortable, but the energy level and stamina is crappy. I would like to hear from anyone with a pacemaker or someone with similiar...

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My Lump

Hi, my name is Paul and I live in Austin, Tx. I just received my device 4 weeks ago (st. jude #365) and its been very difficult. I found this site and viewed some postings and see that I am far from being alone! My device moves when I lift my arm just like the other member was saying....phew glad to hear that. I must go find a job now, although I get tired so easy I am scared. I am glad that this site is here and I wish fellow members a hello and smile. Thanks for allowing me your time. Paul

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You know you're wired when...

Friends call you the bionic man.

Member Quotes

Try to concentrate on how you’re able to be active again and feel normal, rather than on having a machine stuck in your body.