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Endocarditis

I was diagnosed with endocarditis and was wondering if anyone with the same complication would share their exp. with me.

Thanks!

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CHD Awareness

Hey, it's me again! This year, I am going to attempt to raise all sorts of hullabaloo about CHD awareness. We'll see how it turns out... I am shooting to raise at least $5,000 for various CHD organizations and to go around and speak at local schools. Maybe I'm going too far with plans, but you've got to, right? Anyway, wish me luck!

P.S. CHD Awareness Week is February 7-14!! I know it's a bit early, but you know...

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How much it means....

Hi fellow pacers.... Just feeling a bit down today and thought I would tell you guys how much it means to be able to read of the good news, the showing of support for one another and general feeling of good will that I find here.
Some days just seem to be difficult . Just when I think things are working out.... life just kicks me in the seat of the pants again. So sorry to be so down.... this will pass, I hope and I hope it is sooner than later. Somehow I keep thinking if I didn't have this...

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new PM

Hi there, first - I would like to apologize because of my English - I hope that you will underestand me... I am from the Czech Republic (Europe), I am 22 years old. I had many (5) ablation of sinus node. Each ablation took a lot of hours (from 6 till 9 hours). First I had 2 normal (endocardial) ablation of SA node, then 1 endocardial and epicardial ablation of SA node too, then 1 surgical (thoracoscopical) ablation with take away the phrenicus nerve, because I had the nerve really very near the...

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pacemaker and rides at eurodisney

Hi there
my 2yr old has just had her 1st pacemaker fitted (she has complete heart block amongst other things). we are taking her to meet mickey mouse as a reward for being so brave. does anyone know how i can judge if the rides are safe for her/her pacemaker.

Many thanks

Emma

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Blood pressure monitor

Hello
Because of my blood pressure being totally irregular, one minute normal then the next minute out of control, i have not been fitted with a 24 hour blood pressure monitor. Before this was put on i was asked what side is my pacemaker in. The nurse has put it on the opposite side. Any reason why this should be? I should of asked really.
On the opposite side there is the old lead still insitu from my old pm.
Regards Fluzy Suzy

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shoulder pain

i had long awaited surgery four days ago to have old pm removed and new one put in deeper into the muscle. i have the expected soreness around the wound but unexpected shoulder problems almost like a severe muscle spasm stopping me putting my shoulder in a comfortable position does anyone know what position your arm is in when they do the surgery as i was well sedated and dont remember anything thanks

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HAHA!

Hey guys!!!! OMG I missed everyone here sooooo much! I am like so hyper right now! I can't wait to apply to Camp Odayin to actually really truly physically meet other kids JUST LIKE ME!!!!!!!!!!!!!!!!!!!!!!! Oh, I was reading one of my brother's church magazines and I FOUND A GIRL ONLY 2 YEARS YOUNGER THAN ME WITH A PM! OMG HOW COOL IS THAT!?! Now the only question is, how to contact her... Anyway, thought I would check back and get some steam out.

P.S.- Go to YouTube and check out th...

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Our Mug Shots - and how the heck do we put them on the Gallery??

Dear Admin! or indeed anyone else who has managed it......

Please share the secret of downloading our beautiful Mug Shots on the Members Gallery!?

Thanking you with a cheesy grin!! :))

Love, Loopy Lou xx

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Skipped Beats

Hello everyone!

It's been a while, so I will give you a recap. I had my pacemaker implanted in November for NCS and SSS, since then I have developed IST (inappropriate sinus tachycardia) and have had two SA node modifications. I was told after the last modification that I would have a hard time getting my heart rate above 80, but that sure hasn't been the case.
I am still experiancing episodes of tachy at rest where my heart rate will get up into the 160's. When my rate gets tha...

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swollen feet

since having my PM implanted about 5 months ago I have been experiencing swollen feet from time to time which may last up to one week or more. Does this mean my PM settings need to be tweaked a bit more or could it be a more serious problem, thanks for any thoughts on this :)

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swimming & lead wire

What have you been told about swimming & a single lead wire? My EP said that I could swim, and my cardiologist said the same. However, he did say I should be aware of the fact that swimming can cause wear and tear on the lead wire. Does anyone have any knowledge of this? I do swim a half hour straight about five days a week. Because I am 80, I don't "sprint", but do so enjoy the swim. Would like to know your thoughts and your doctor's advice. aldeer

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Lisinoprol reaction

I was golfing with a friend last week and after an hour or so, his lip started to swell. He thought it might have been an insect bite. By the end of the round, it really swelled up and even down to his cheek.
He went to the ER and they gave him a steroid shot and antihistomine. He went home but the next day, he felt trouble swallowing, so went back to the ER.
They surmised that the Lisinoprol he had been on for 4 years had reacted badly with him all of a sudden!!
Just thought I wo...

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Stinging sensation

Can someone please answer a question for me? I had my pacemaker implanted 4 weeks ago.

Several days ago I started experiencing a stinging sensation on the left side of it. The stinging increases when I move my arm up or if I extend it in front of me.

I can't prop up on this arm while lying down.

Is this normal or should I contact my doctor?

thank you, thes0wer

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complete heart block

I had joined this group last year. I don't remember the user name I used. I have been told I had complete heart block since I was 25. I'll be 37 this September. Last year I had an episode and was told by 1 cardiologist I needed a pacemaker then. I got a second opinion and opted not to get it. I had talked with a girl with the same situation who opted to get it and wondered how she was. I don't remember her name.

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UPDATED PICTURES OF ME ON MEMBER GALLERY ON THE VERY LAST PAGE !!!

Haha sorry guys but I am sooo excited that it finally worked !!!So I look different and I have contacts!!! Yesss !!! Ok That is enough hyperness for today !!! E-mail me !!!

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Good news for me.

Some of you who I have chatted with here knew I was going in for a prostate biopsy. Got it done last week. Not a very pleasant experience to say the least. My wife tells me you should try everything at least once. Trust me guy's you don't want to try this one. But if the Doc says you have to then you have to. This week I heard from the Doc. NO CANCER!
I didn't think there would be a problem because I felt that would be a very cruel trick to play on me. God, saving me almost 3 years ag...

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Pacemakers

Hi Everyone.

Haven't posted for ages but please can someone verify for me the concern I have with a pacemaker.

My pacemaker works when my pulse drops below 50 which is if I am sitting in the evening or asleep at night. Other than that my heart's own pacemaker works for me.

My question is does a pacemaker actually weaken your heart muscle over a period of time when it takes over your heart rhythm. I have asked my cardiologist here in France but as usual the answ...

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can the leads move?

Hi every one!!! Its me again..jeje. I just have this question. Every time i am in the shower washing my hair i feel like my heart is racing. I dont know if its because i have my arm way up so that i can wash my hair..or if its that i have it stretched too far for too long...but i feel funny and sometimes a little dizzy. Can the leads move if i do this for too long? I have had this pacemaker already for almost 2 years so i didnt think the leads would move out of place. But it is just weird that i...

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New website for LVNC patients

Hello everyone!

Looking for more patients that may have been diagnosed with Left Ventricular Non Compaction or Non Compaction Cardiomyopathy. There are 5 of us at this time and we would love to talk to more people and compare notes, etc.

We have a new website to try and pull patients together since there are so few of us. Check it out.......
http://groups.google.com/group/left-ventricle-non-compaction

Thanks-
Candi

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You know you're wired when...

Friends call you the bionic woman.

Member Quotes

I wouldn't be alive if it wasn't for pacemakers. I've had mine for 35+ years. I was fainting all of the time and had flat-lined also. I feel very blessed to live in this time of technology.