Most Recent Messages in Coping
Trying to get through these rough times
- by Chatterbox
- 2020-12-24 05:51:45
- Coping
- 666 views
- 10 comments
Hello, I wanted to share some thoughts,because recently I have felt so sad with my pacemaker and although grateful for science, I seem to be crying everyday you see I regret not to have asked for a second opinion. I had no health problems except passing out. Eight years ago I passed out on a Summer afternoon after having a Dejavu moment. and they said it was dehydration. Then it happened 6 yrs later same thing and I saw a neurologist he said it was syncope vasel vagal nerve. Then the De...
new
- by cyborg_manifested
- 2020-12-22 20:28:53
- Coping
- 368 views
- 3 comments
hi all,
I just got my Medtronic implanted last week and I'm adjusting to this new cyborg feeling. I'm 31 and experienced Sudden Cardiac Death (SCD) while sleeping on the beach with my partner. I ended up having open-heart surgery for a myocardial bridge unroofing, but my EP was still worried that I could be at risk of another SCD episode....after a long failed battle with insurance, who denied the dr. recommended subcutaneous ICD, I now have the transvenous ICD/PM. It...
Post PM soreness
Hi
I had my PM fitted 3 weeks ago in 3 weeks time I am going back for a AV node ablation which means I will be solely reliant on the PM I'm feeling a bit jittery about it probably a normal feeling but just need some reassurance from anyone that has what they call a Pace and Ablate if anonee can help I would be grateful
Also how long after PM fitting should I still be feeling discomforting around the arm and shoulder area where the PM Iis it's on the left side&n...
sarcoidosis diagnosis --> anxiety
I had an MRI two days ago and yesterday the EP called to say there were signs of sarcoidosis (I guess I should say "sarcoidisis or other infiltration," because my understanding is that sarcoidisis diagnoses are hard to make definitively). So my PM plans have become ICD plans, and I have been referred to a specialist at another hospital for follow-up, possible PET, etc.
Edited for brevity:
How do others with this diagnosis deal emotionally and intellectually with the shor...
Can i go back?
A week ago I was happy and relatively healthy. After my implant on 12/10 my happy life ceased to exist. I expected some issues like getting used to having a machine regulate my heart. I was prepared for some pain. My EP told me I needed a PM for bradycardia and I stupidly and naively went along with the suggestion. The procedure itself wasn't too bad although I did feel more pain during than I anticipated. But it's the after effects that nearly killed me. A reaction to Vancomycin. My...
New to pacemaker
Just got my PM inserted on 12/2 after ablation in September and fainting episode on 12/1. Loop recorder implanted in October showed my heart paused for about 7 seconds causing fainting episode. Hence loop removal and PM insertion. Since then I've felt like absolute crap. I almost constantly feel like I weigh a thousand pounds and am being pulled to the ground. PM is set so I won't have pauses again, but I just feel awful. They did adjust some settings (?) at my followup ye...
Sick Sinus Syndrome impact on life expectancy
Hi Fellow heart-device owners, I'm a 47yr old father of 3 girls (aged 9 to 15) and was diagnosed with Sick Sinus Syndrome last month after a couple of fainting spells and got a PM fitted. Was at my follow-up with the dr, but forgot to ask him what the expected impact on life expectancy is. Any informed views on this (scary) topic? I am healty otherwise.
Waking up every night
So three weeks in after my implant I'm still waking up every single night without fail
At first I suspected it was the uncomfortable nature of the location of the device but that has settled down nicely.
I get off to sleep absolutely fine but after about 2 hours I wake up and then again 2 hours later.
Has anyone had the same due to a new lower heart rate during sleep?
Any tips on keeping asleep until my first appointment?
Dreams are they really so sweet
I would appreciate some help. This might seem like a fun question but what do dreams and nightmares really mean? Could it mean that the sufferer has unresolved psychological issues or medical conditions or both?
Can our medication, pacemakers, health conditions cause bad dreams and nightmares? I know beta blockers which are commonly used may increase the potential for a nightmare. I occasionally get them with Bisoprolol and my doctors tell me that this is because...
Pain at pacemaker area
I had My PM implanted 2 weeks ago (October 19th). For the first time Today i have noticed pain at the incision area but it doesn't feel like it's the incision. It's a dull achy pain. Could it be the Pacemaker itself that I am feeling?
Occasional soreness
Thank you so much for all your input. I feel better after reading your comments. Really appreciate your reaching out. Thanks again Trebla
Occasional soreness
Hi Treble here This site is amazing for information and support Got pm in May People said I would not know I had it But occasionally it is sore and I almost always know it is there Do I get to the point that I do not know it is there ? Thanks
Body Image
Hello! I have recently had my first replacement surgery to fit a dual lead pm and the box seems extremely visible which i'm really disappointed about. I wasn't told this would be the case prior to surgery (my previous pm was under the muscle and entirely non-visible - except the scar) so i'm finding it a bit upsetting and hard to accept.
I have discussed this with my pm tech but I live in Scotland and everything is on the NHS so it's not something the...
Pacemaker and afib
I had a pacemaker installed in May 2020. Felt so good. Still was going in and out of afib for a day or two but not feeling bad. Recently I have been in afib for over 3 weeks and feel lousy. . .tired, shortness of breath. Had an echocardiogram Monday to see if things have changed since the last one a year ago. EP is suggesting a cardio version to get me out of afib. So discouraged after feeling so great since I got the pacemaker--a Biotronic.
Heart function
Hey All,
So I am a63 year old female and got my dual chamber pacemaker in 2014 when I was 57. The past 19 months have been insanely stressful as my younger sister had a brain aneurysm burst, followed by a massive stroke. During that time I was making the 2-1/2 hour trip plus a 1/2-hour ferry ride (each way) running back and forth between where I live northwest of Seattle and the hospital 1 to 2 times a week. Long story but she was stuck in the hospital for 11 mo...
HaPpY bIRtHdAy Walter
So 4 years ago today I received my life back by getting my pacemaker AKA Walter. Yes I named my pacemaker because he takes care of me so I just had to make it more personal.
So on this day I like to celebrate my receiving my pacemaker and always will. I tell people all the time I love Walter and I truly mean it. I remember being scared of having the surgery mainly I think of being woken up to disapointment of still feeling bad but oh my goodness the change has...
so is it normal to feel like this
- by charlieinogden
- 2020-10-04 00:06:37
- Coping
- 603 views
- 7 comments
So I gotta admit since I got the pacemaker in early June I've -- and i'm sure this is no surprise -- been super paranoid about cardiac things in general. That said, I did the 3-month checkup, everything was fine and all I needed was a cupla software tweaks.
So all had been fine -- been out bicycling and carrying on as normal.
But this week has sucked -- I made the mistake of watching the debate tuesday evening and had to quit because my chest was thumping, i was sweating,...
Fatigued
Hello pacers, I have been feeling very fatigued and winded 2 ever since I had a pacemaker implant. I thought initially it may have been the side effects of the surgery itself then as it continued on I thought perhaps it's the medication. I persevered and now that I'm off all meds including no blood thinners, I still feel night quite right. Does anyone else feel the same symptoms and know the reason for this trigger ? Many thanks Loulou. 🙏🌸
PM for Bradycardia, exhaustion, mental fog
Hello all,
I'm hoping to get some advice regarding my bradycardia. A little background...
I'm 50-yrs old, 5'6", about 135 lbs. All my life, my HR has been a bit on the low side, but was chalked up to me being a competitive swimmer. I'm no longer what you would call an "elite" athlete by any means. I did swim in the summer, and would swim about 3x/week (about 2 miles per swim). However, I don't swim any other time of year. I try to go for walks wh...
COPD and my PM
Although I have a long list of health issues, other than my heart, the most pressing is the COPD. I just learned a lesson that may be useful to others. I use a Trelegy inhaler once a day and it works quite well. Then Monday when I used it I noticed that I did not seem to taste the powder as before, but just figured I was getting used to it. Yesterday it was like I simply inhaled air. I wear a smartwatch and frequently check my HR. I noticed early in the day that my HR was elevated between the...
You know you're wired when...
You make store alarms beep.
Member Quotes
Your anxiety is normal. It takes some of us a little time to adjust to the new friend. As much as they love you, family and friends without a device just cannot understand the adjustment we go through. That is why this site is so valuable.