Most Recent Messages in Coping
Newby
Released from hospital yesterday. I discovered this club today. The psychological side of this life situation has really hit me hard today. I am 46 and need help adjusting. Any tips from anyone? I am grateful for any wisdom. Thanks Jon
no hugging
- by new to pace....
- 2019-10-27 17:01:21
- Coping
- 249 views
- 0 comments
today decided it would be better for me not to hug. As was having pain in spine on my right side. Explained to others why i did not. All were understanding. Also did not want someone resting their hand on my right shoulder. Causing pain there in the right side of the spine was enough.
To my ...new...friends
Just joined ...the club...oct 25fh...did my 1st post...I JUST WANT TO EXPRESS MY THANKS TO..SWANGIRL...RIVITHEAD....THEKNOTGUY...AND TRACE-E FOR ANSWERING AND GIVING ME SOME GUIDANCE ! NEVER EXPECTED TO GET A RESPONSE SO FAST AND INCISIVE ! I ALSO PICKED UP FROM THE COMMENTS ....THAT A REGULAR HEART DOCTOR IS NOT THE SAME AS A CE...AND ONE MUST BE CAREFUL IN FINDING THE ....RIGHT..ONE...I’M TRYING. ITS NICE TO KNOW ALL YOU FOLKS ARE OUT THERE....AND...
25, nervous, & 2 weeks away from surgery..
- by feelmyfrequency11
- 2019-10-25 01:34:12
- Coping
- 404 views
- 5 comments
Hello all! This is my first post here so bare with me.. I'm struggling with accepting the fact that I'll be getting a pacemaker at only 25 years old. I have congenital heart disease.. more specifically born with an atrial septal defect which was surgically corrected via open heart surgery when I was 1 1/2 years old. Ever since then I've been dealing with symptoms resulting from bradycardia even when I do something simple such as walking.
I was so young when...
Recovery time
- by JIMMYANDJEREMY
- 2019-10-24 12:57:53
- Coping
- 325 views
- 3 comments
I am a 68 yr old female had a pacemaker put in 5 weeks ago I still don’t feel great Just wondered how long is the average time to bounce back I had a full electrical heartblock
Relationships, scars and secrets, help!
I’ve had a heart condition all my life however It wasn’t a big part of me, I had cardiologist appointments once a year and nobody even knew about my heart condition (expect family and a few close friends) because I never felt the need or comfort to let it out. When I was 12 my condition worsened and I got my PM and since then it’s been a pretty big impact on my life but still nobody knows about it (including friends) because they never knew about my condition in the first pl...
Scared as **** and I don’t believe
EDIT by a Moderator: There's a time & place for "Soldier talk," and this isn't it. I've gone through & cleaned it up a bit. This is an importrant subject & needs to be addressed. All of you guys know better, so keep it clean!
Donr - Retired Soldier for 32 years after 28 plus years activ e duty.
Original text starts here.
Hi everybody...
what am I doing he...
95 year old Mom
- by lakegirllynnie
- 2019-10-05 13:24:12
- Coping
- 513 views
- 8 comments
My 95 year old Mom (I am her POA and caregiver) has a pacemaker ( the shocking portion has been turned off). Her battery is good for another 6 months and she doesn't want to have a new battery. I am reading with interest the comments about end of life and wondering how to make accommodations for her. Wondering if I shoudl bring her home with me. I undesrstand that she would revert back to her "natural" heartbeat when the battery dies but jsut wondering wh...
Feeling tired
I’ve had my pacemaker for 4 years now for av block through myocarditis without any real problems.. however last weekend I nearly passed out while shopping. I take Concor betablockers 2.5mg and lisiniopril 10mg a day.. I am constantly feeling tired and not 100% like me.. I’ve been to my GP who did say he will have to send me to the pacemaker clinic but they always say at the yearly checkups that everything is ok and tiredness is just my life (48 with 3 te...
pacemaker speeding up during transport to hospital
- by CHMGOLFNUT
- 2019-10-04 23:43:08
- Coping
- 340 views
- 6 comments
I was transported 3 hrs down a bumpy interstate in a emegency van. I had blockages and had stints installed two day later. I have a question for the medtronics people. From what i have been told by the doctors installing the pace maker,the shaking of the chess however cause the pacemaker to speed up. Th three hr trip ended up being 3 hrs with my heart rate at over 100plus. I felt tightness in my chess. The problem I am having my pacemaker speeds up with the pul...
Meeting with EP tomorrow
Cardiologist suggested I meet with EP after latest echo said EF 29% after I have holding steady at 41-43% EF for years - have LBBB - I am shocked at latest echo results as I walk every day 9-10 miles. Jog sometimes an hr, slow but jog. No symptoms ie Shortness of breath, lightheaded ness, fatigue.
Very anxious, pissed, skeptical, depress, all the emotions. Assume down the road I might need a CRT but not now- I am very skeptical of this latest echo-...
Dreaming after pacemaker
Hi all. Since my pacemaker was fitted I have started dreaming at night. The dreams make me very active, punching and kicking the bed much to the alarm of my wife. The pacemaker was fitted to cure complete heart block. The theory is that the minimum HR rate of 50 is faster than my previous resting rate. Has anybody else had a similar experience? Cheers Bob
Airport security one pacemaker at a time
Many newbies have concerns about airport security. I have always told them, "It's not a problem. Just keep moving as you go through the scanning machine."
At the Raleigh-Durham airport security checkpoint, this time, there was a big sign pointing pacemake-people to a different kind of scanner altogether. This machine had footprints you were suppoised to stand on, arms upraised. Then, once outside it, you were manually searched about the shoulders.
I went t...
Throat pain
I am grateful to hear other people with post op throat and neck pain. I also thought about it being related to thyroid? I have the same pain with moving from laying down and from getting up.
I had some fainting while swallowing solid food which was the root of my arrhythmia. I wonder if that’s perhaps what the pain is from?
I see my Doc Friday and will mention this posting. She has been great at listening to me pre-op. We will see.
Thanks...
Website My EP Gave Me
- by AngySparrow
- 2019-09-06 17:54:59
- Coping
- 374 views
- 2 comments
https://patientdecisionaid.org
Feel the Pace - Lead Revision to Bundle of HIS
I had a dual chamber Boston Scientific pacemaker installed back in May for Third Degree heart block as a result of an AVNRT ablation. My heart did not like the right ventricle pacing. One week ago today I under went a lead revision to replace the right ventricle lead with a bundle of HIS lead.
I am now pacing 100% in the HIS versus about 30-40% in the right ventricle. I immediately felt much better than I have since the pacemaker was implanted, the strength in my legs came back ve...
Newbie
- by jimlyon@hotmail.co.uk
- 2019-08-27 10:23:07
- Coping
- 508 views
- 3 comments
Hi everyone just joined! Had my on demand pacemaker fitted 16.8.19 very anxious at the moment, I have left hand bundle branch block, I went running on the 15th and went light headed and passed out, I came around and sent my symptoms via my reveal unit, then told my heart stopped for 30sec then reset itself! Haven’t been told it was a heart attack but pacemaker was fitted the next day sorry for the lack of technical knowledge but it’s an on demand type.
I am worried about my...
I am here for you
- by jeffreybiri
- 2019-08-25 03:51:50
- Coping
- 467 views
- 3 comments
Hello everyone on Pacemaker Club! I haven't been on in a while but I want to make an effort to come on more often to chat with my peers about anything.
Just a little background of my conditions
I obviously have a pacemaker which I received at the young age of 9 back in 1996 (wow I feel old saying that) and have had multiple new ones since.
I also have a few heart disease, I have double outlet right ventricle, pulmonary valve stenosis and transposition of the great arteri...
Disability due to heart disease
Hi. I have had Cardiomyopathy and Heart Failure since the age of 6 months. Was a very sick baby but not so much as a kid growing up... sure I had limitations and had to take medication but I never felt like my heart disease stopped me from living a full life.
Been through many traumas and scary situations through my life but, yet again, I seem to bounce right back until March 3rd, 2011. My whole world stopped. I went into a VTach storm and my defibrillator shocked me 23 times in a...
Skipping beats
I’m in a hotel at the airport and noticed my heart skipping the odd beat. I’ve only had my PM for about 6 days and my anxiety is going through the roof. Please tell me this happens to other people. I’m on the verge of not getting on the plane. My heart is still regular but skips. I’ve suffered with AF and Flutter for years and had multiple ablations. This was meant to be my new beginning. Help
You know you're wired when...
You name your daughter Synchronicity.
Member Quotes
My cardiologist is brilliant and after lots of trial and error got me running. I finished this years London Marathon in 3hrs 38 minutes.