Most Recent Messages in Coping

Travel right after implant

I had a pacemaker implanted on Monday after two separate collapses a few months apart.  I have a major international trip planned in April, with Dr saying it will be ok.  Anyone else have experience with major travel soon after implantation, and if so how did you handle luggage, etc ( we can only take 20 kilos with no wheels or frame) i know about going through security etc, but logistics may be tricky.  We're you headed well enough to not have incision pain?

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PIP (UK specific) question

I'm currently filling in an application for PIP -- based on restrictive cardiomyopathy and the resultant heart failure and VT/ICD, plus an Essential Tremor. Does anyone have experience of what works?

I'm particularly interested if the ICD makes any difference -- my suspicion is not.

However, I'd like to hear advice from anyone who has gone through the PIP process.

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A little punch in my left side of abdomen

Hello all, 

Well now I have been on Entresto for a little over a month now, and I think I am getting used to it, I still get dizzy spells but it doesn't last long and it is really a matter of me watching the foor and water intake to keep me balanced.

But now I do have a new thing that just started three or four days ago, when I lay down in bed or sit in a reclinere, I feel this punch (contraction) in my left side of my abdomin, it goes on for five or six  punches in...

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New member - recent first pacemaker implant

Hello everyone, I'm new to the Club, having had my first PM implanted on 1st March.

I'm trying to walk every day and currently managing about 3k to 4k steps before becoming tired and having to stop. I still have some occasional muscle aches in my upper left arm and lower left chest, nothing major, just the odd twinge. I'm eating and sleeping OK.

I had a first check of the PM at the hospital cardio clinic a week after surgery and they said everything is fine - my next c...

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High anxiety

I am a recent recipient of a pacemaker and the process of recovery is turning out to be more difficult than I anticipated.  I have periods of low anxiety and every now and then a panic attack will develop.  I am getting help that is much appreciated but anticipating driving gets me reved up.  I am wondering if anyone has a suggestion that might be helpful?

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when can the pacemaker be turned off or who turns off the pacemaker

My sister called me to ask this question for her male partners brother.  As she knows i have a pacemaker.  I did not know the answer.  Thought i would ask this knowledgeable group.

His brother is in rehab and has not eaten or drank for a week.  Has a pacemaker, they wanted to know who and when can it be turned off.  As they did not want him to suffer. So far his kidney has shut down.  since it is there to keep the heart beating.  Next week his medicare...

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Better mentally & physically

Hi everyone!

I haven't posted for a little bit--been going through some stuff. I wanted to stop by with a reminder to take care of mental as well as physical health.

I had been feeling too tired to do anything & really wondering about the cause as well as the cure. I was sure it was my meds. Then, when my annual pulmonary function tests were coming up (I also have COPD), I was certain that they'd see a decline in lung function. The tests were the same as past year...

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Anxiety

Hi everyone!

My PM implant was in 927//21 and I am thankful for this site. Has anyone experienced increased anxiety after receiving a PM ? 

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Help two days after ep study and PM install - PVC’s

Hi everyone,

I was diagnosed with rate related left bundle branch block a couple of years ago which then became left bundle branch block. I've had every test possible and they can't find any issues apart from the slow left bundle. Apparently whilst very rare it can just happen (in very rare cases) and is "unlucky". They said it shouldn't be dangerous however it really affected my exercise capacity, so they said I could have a PM.

I had an...

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The bucket list.....

I have to beleive most of us have seen the movie "The Bucket List".  I was just wondering what everyone's favorite part of the movie was.  For me, it was when Jack Nicholson invites Morgan Freeman on the journey with the line "what are you going to do, go home to the endless procession of people who have come to watch you die while you try to comfort them" or something along those lines. 

What was your favorite part?  Everyone is welcome to co...

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Holidays

I had my pacemaker fitted just before we went into lockdown and I haven't had much information on anything. I'm looking to fly for the first time in March and am very apprehensive.  Any advice would be much appreciated.  Thank you in anticipation x

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My Mum is sadly dying…

Hello Everyone,

It has been a long while since I have been on this forum, but things have been really hard. I have had a few issues with artrial tachy and NSVT recently,but the main issue is my mum.

Last year we found out my grangrad had an incurable and terminal brain tumour, being the strongest and bravest person in our lives, and my mums absolute world, this reslly hit us hard. And as of october my mum too was diagnosed with a rare and aggressive form of cervical cancer, which...

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34 with AV Block

Hi all. This past year I had started to notice some extra beats of my heart happening. I was able to start catching them with the ECG app on my Apple Watch and identify them as PACs. They were just PACs not PVCs as well. Since PACs are usually fairly harmless I have gone about my business as usual. Being a person that has suffered from gastro issues (reflux, partial hiatal hernia, diverticulosis) for my whole life some of the weirdness feeling in my chest I had been attributing to my gastro s...

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Pacing 100%

I received my pacemaker after having TAVR valve replacement surgery. My whole story is in my profile.  At my one year check up this September I was pacing less than 1%. Come mid December I was feeling something in my chest and they checked my pacemaker and it turns out I am pacing at 100% that I went back into heart block. I was totally shocked and devastated! I'm having a very hard time coming to terms with that after I just had celebrated my one year and was doing so well...

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Recovering from Covid

Hi everyone,

So after 2 years of taking care of myself I finally got Covid last week. I was vaccinated with Moderna and not due for my booster until Feb.

I am on day 9 and my major symptom is occasional fatigue and on and off stuffy nose.

On my second day I had 24 hour fever which I treated with Tylenol, dry cough that lasted for like 2 days.... felt tired mostly. 

What was recovery process of anyone who had or has Covid? Any lingering sym...

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Dizziness, imbalance, weakness

Hello, I have been experiencing Dizziness, imbalance, weakness, so much so the I fell a few days ago, thankfully I don't think there was lasting damage, but am trying to figure out the cause. New medications are Entresto and Lasix, both have these symptoms as side effects. I am in communication with my doctors but have no answers yet. If it was my pacemaker it would show up on my Medtronic automatic transmissions, correct?

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Setting Off Alarms

My dual-chamber pace is blue tooth and it sets off a lot of store alarms.  Home Depot I shop at sets that alarm off going in and going out.

A few weeks ago I walk down through the mall here where I live and set off most of the store alarms if I walked close by them.  The young kids don’t know what to do when I walk in and the alarm goes off.  I have given up trying to explain it is my pacer blue tooth setting.

My pacer with all the scar tissue does set off the...

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Oxygen levels low. Meter show occasional low reading for pulse

My oxygen levels have been low with allergies and when I test with meter  it shows occasional pulse readings in the 50s and 40s. I had a sinking feeling when this happened.

I've had a two wire pacemaker 5 years. This happened  before and was put on a monitor which did not find low readings in hospital over night. Pacemaker Tech said that happens occasionally and not to worry, Pacemaker works more reliable thann tester. I've haad that sinking feeling again. My Card...

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Wishing all a wonderful new year!

Just stopping through to wish everyone a wonderful new year.  As difficult as it can be sometimes to deal with these devices it's nice to know there are others going through it and who understand it.

Thank you all for your continued support and comments whether in agreement with my opion or not!  I know it's all well intentsioned!

I wish you all continued good luck in your journey!

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Accepting My Pacemaker

A couple of days after I was released from the hospital after going into cardiac arrest and dying I started doing days of research trying to find out why this happened to me and how long I would survive.  The internet can be a great tool or it can be terrifying.

I searched what is the life expectancy of a person with a pacemaker?

Depending on how much you need to use your pacemaker, the lifespan can vary from anywhere between five to 15 years, and it all depends on how often...

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You know you're wired when...

You fondly named your implanted buddy.

Member Quotes

My pacemaker was installed in 1998 and I have not felt better. The mental part is the toughest.