Most Recent Messages in Coping
Daily pacing w/ new defibrillator/pacemaker. Diagnosed with LVNC
My ex-wife is still a very good friend of mine and I'm trying to be supportive because she's going through a lot. When we were married she often passed out and it was always assumed it was just because she had a low ejection fraction etc. When she went to the VA doc (she's a veteran) they never found anything. She's now 45 and this past spring she was told that she has Left Ventricular Non Compaction along with the low ejection fraction. She had a pacemaker implanted before th...
New Pacemaker
Hi everyone! :)
After a one-time fainting, I was urgently diagnosed with Bradycardia. It was such a surprise!
I had my PM installed on Jan 11th. I've had a few complications, but recently had it reset.
I feel a bit better, but I've noticed a numbness in both of my thumbs. They are tingly and a little pain.
Has anyone experienced this?
I'm just hoping that it is unrelated to my new PM.
Thank you for the support!!!... so glad I'm not alo...
Palpitations
- by Jmonastero
- 2023-02-23 13:12:16
- Coping
- 444 views
- 6 comments
Hello everyone,
I've had my pacemaker implanted on October 12 2022. I was diagnosed with SSS (sick sinus syndrome) with symptomatic bradycardia which caused my heart to pause for 12-seconds. Trying to cope with this life changing event along with palpitations, anxiety and fatigue. Some days the palpitations are not as frequent as other days and some days I feel fatigue and other days not so much.
I have always had p...
swallow syncope
After TAVR in late October of last year and while wearing a monitor, I had 4 AV blocks with a pause. Only one was diagnosed as 2nd degree and all 4 episodes were within the first week after my procedure.
Now 14 weeks out my electrophysiologist asked that I wear a monitor for 2 more weeks to see how my heart has healed. I trust he is trying to make a final determination to eliminate the need for a permanent pacemaker. Today is my last day of monitoring and this morning while taking ...
CPAP and Pacemaker
- by pastormike
- 2023-02-21 02:27:00
- Coping
- 322 views
- 5 comments
Just wondering if anyone here uses a CPAP machine. Things were great for about the first three weeks, but the last two nights have been a nightmare.I have had the CPAP for years and had no problems. Maybe these are not related but just would like to know if im alone on this one.
re covid
Hi fellow Pacemakers...I have finally managed to get Covid...day 9 so far...I had thought I was getting better as really only had minor symptons.Today I woke up chesty with a productive cough. It was a bit of a surprise as I had been progressing well. My heart rate PM has been very good at 58 and now shot up to 70, BP is up as well....feeling ok just a little nervous about the next stage.Any advice out there from fellow sufferers..? Thnks Dave
Hello to my new normal
- by doodlelover
- 2023-02-15 15:53:08
- Coping
- 357 views
- 2 comments
Hello friends!
My name is Meghan. I am 30 years old and suffered cardiac arrest at the end of October last year. My husband was up having a midnight snack and heard me aginal breathing. He did CPR on me for 10 minutes while he called 911. Once there, the EMT's shocked me and rushed me to the hospital. I was put into an induced coma and when they tried to take me out of it about a week later I had another cardiac arrest. spent a week in the cardio intensive unit where I suffered from...
Raised Blood Pressure whilst on Digoxin
Sorry to be a pest but its my second day in Digoxin and the first day my BP was normal (122/80) and the second day (today) its shot up to 147/96 and Im panicking a little...is this normal whilst its settling down? I know you have to take an average reading over a certain time but should I be worried about these high readings?
Smoking cannabis
It's been 2 weeks since I've had pacemaker implant. Smoking a little cannabis really helps my depression and anxiety. I asked my doctor and he said it would be o.k. He didn't say how long I should. wait. So my question is - How long should I wait? Thanks to whomever can help me
insurance
- by Sydney.A95
- 2023-02-10 21:22:47
- Coping
- 261 views
- 4 comments
Good evening!
My whole life I have been blessed with tricare insurance because of my dad being in the military and then my husband as well, so I have never had to worry about copays or anything like that. Unfortunately, I am about to be divorced and now I need reccomendations on good insurances for people with pre existing conditions and pacemakers like us. If anyone has any suggestions and can also tell me how much you pay in copays for pacemaker replacements, I co...
Should I get a pacemaker
I recently saw my doctor and through the ECG 12 lead test he said I have trifascicular block. He said I am a candidate because two of my electrical system are blocked, The third one is open but it could block anytime or never block. If the third one started to become blocked I would possibly become dizzy or faint the first time . If I was very unlucky and there was a complete blockage which occurs rarely my heart could stop or die. I am 64 very active by hiking,biking,...
Paraxysmal afib
Hi everyone, it's 1:30am and I'm at the emergency room for slight case of afib. This was a total shock to me because the last time I had afib is when they detected I needed a pacemaker from sleep apnea. I'm just wondering because I do have anxiety if that might of caused it. I'm just so miserable being here but the Dr said my case was very mild with my heart rate going between 89-105. Hr was 110/70. Oxygen at 97. Can I hear from others experience and how they manage, it would...
Bumpy Roads--should I change my vacation plans?
- by Mad Hatter
- 2023-01-31 14:42:21
- Coping
- 465 views
- 13 comments
I have a Biotronic pm with CLS and just recently noticed minor discomfort on bumpy roads. I see there are lots of posts with people experiencing similar issues with the pm unnecessarily raising the heartrate. Our daughter in stationed with the army in Alaska and we were planning to go with her to Wrangell-St. Elias National Park this summer. The primary destination is the town of McCarthy, the old Kennicott mine, and the Root Glacier, reached by 90 miles of rough a...
Newbie husband
Hi. My husband who is 77 had a dual lead PM inserted 16th jan. He's had Afib for 4 years with occasional dizzy spells. Takes digoxin and blood thinners. A few days before his op he blacked out and fell and broke his nose. Trip in an ambulance. His heart rate had been as low as 38 and high at 151 all over the place all the time. He came out the next day on a high. Over the moon to get his PM said he felt better already. Next days kept telling me how good he felt. No pain at site all good....
Tiredness and Lower Limit
- by PacerPrice
- 2023-01-23 07:10:49
- Coping
- 395 views
- 7 comments
Hello,
I feel tired pretty much everyday, this could be due to stress and work, but also i had a thought about my pacemaker settings.
My lower limit is 50 and my average pulse is 54, I am 19 years old, dual lead pacemaker for 3rd degree heart block. I was wondering if this low limit of 50 could be causing my tiredness? If it was to be raised would that increase my atrial pacing to 100? or does it not work like that,
Thank you,
Pacemaker
- by tncaviness
- 2023-01-21 23:27:37
- Coping
- 462 views
- 3 comments
Hello Everyone,
This post is actually very hard for me but here we go. I am a 41 year old female and in August 2022, I had cardiac arrest which required CPR and an AED machine to revive me. After a week in the hospital I had no diagnosis. Everyone was cracking their heads. I was told that I had gone through stress enduced trama that cause me to pass out which caused me to go into cardiac arrest. I have absolutely no health issues what so ever. I just so...
Long Term Effects?
- by PacerPrice
- 2023-01-20 03:55:13
- Coping
- 450 views
- 9 comments
Hello All, I hope you are well,
It has been a long while since i've been on here, firstly i wanted to wish everyone thanks for their support over my last post, the messages both private and public where lovely. Sadly In april my mum lost her battle at age 38, and passed away, cancer is a horrible horrible disease.
I mainly wanted to come on here to ask about complications of long term pacing. I have been doing really well lately, physically and mentally, but...
Recent insertion of pacemaker
I have Mobitz 2 and had a pacemaker fitted in November 2022. So far I haven't felt any better at all, still breathless and dizzy, especially in the morning, does anyone know how long it will take for me to start feeling well? I am 84 and have always been a very fit bloke but this has really floored me.
Would appreciate any comments or advice.
Advice, please
Recently, I have experienced some episodes of light headedness. I suspect it may be because of low(ish) blood pessure. My readings run about 94/65 with a pulse at 64. I do take medications (Entresto, for one) that do affect my blood pressure.
I had my CRT-D recently (on the 12th) scanned and it is working fine.
I suspect that the problem may be related to the fact that I do not drink enough water. I am a bit like a camel in that department. ...
Palpitations when flying?
Hey PMC!
Hope this post finds all of you blessed and feeling well. I wanted to find out from others if they’ve experience palpitations when flying. Ever since the PM I’ve noticed I get really bad palpitations once in the air. I’ve taken something to relax me (Ativan) but they still persist. Once I land I start to feel better. Anyone else experience this or found a way to stop/reduce them? Thanks for any input and thanks for reading my post. Take care everyone!
You know you're wired when...
Airport security gives you free massages.
Member Quotes
I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.