Most Recent Messages in Coping

Recently had CRT-D fitted

Hi. I'm new to this forum. I had a CRT-D fitted 2 days ago. Feeling pretty low and am surprised at how big the lump is under the dressing and how very sore. Is this normal experience and how long can I expect it to hurt so much? Any experiences appreciated 

Dave

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Antidepressant

I have been experiencing lots of anxiety this past few months. Was wondering if anyone can share an anti anxiety medicine that worked for them or any other type of treatment or therapy. Thanks so much 

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New to this

hi. I am due to have a crt-d fitted tomorrow and I'm really scared. I have an ef of 22% but no real symptoms of anything. Found out I had heart failure by accident as I had an xray and had an enlarged heart. Not sure I really want this procedure as I feel so well. Really struggling with the decision and very emotional about it. Any comments welcome.

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New to this

Hi I am new to this club 7/4/20. I had a flush feeling,went to ER was discharged,called back and sent to ICU and told I needed a pacemaker.

I have lost my appetite but get so nauseous if I don't eat.Did anyone else feel this,?

I think I am getting panic attacks although I am not sure I have never had them before. 

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ICD shock

Hi all. 

I had a shock this morning and had to go to hospital. Thing is I have a 2 week old baby and now I am frightened to hold him incase it goes off again whilst I am holding him. 

I really don't know what to do or who to talk to about it. 

I can't go on just looking at my baby and worrying about not wanting to hold him. 

Any advice would be much appreciated. 

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Hello

I just had a pacemaker put in last week. A little over a month ago, I fainted while eating dinner. I went, with my wife, to the urgent care the next morning. They set me up to consult with a cardiologist, who decided I should wear a heart monitor for two weeks to see what is going on. He also had me schedule an appointment for an ultrasound of my heart. A week after I sent the monitor back, and while I was at the ultrasound, I had a phone call that I let go to voice mail. When I checked my vo...

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General

My a-fib has always been higher when I lie down and since getting my pacemaker (January 2019) I have developed insomnia.  It has been erratic until the last four months, but now bedtime has become a source of stress.  Once I fall asleep I'm fine, but the problem is at the beginning.  Has anyone else had a similar problem?  Other than taking sleeping aids, could the pacemaker setting be changed?

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Facemasks

Just a question. Is it safe to wear a facemask?. I'm told that these slow down your breathing.

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Bradycardia

Hello my name is Priscilla, I had my daughter 4 months unfortunately I had to have an emergency c section because we almost lost her. A week after birth I was in the ER because I felt dizzy and seeing blurry I was told that my pulse was very low around 35 that wasn't the first time I had been told that my heart rate was low but I never had any symptoms until than. The next day a cardiologist called me and said I might need a pace maker I felt like my whole life just eneded I was stil...

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Wish I had found this club sooner

Hi all, 

wish I'd come across this club sooner and been able to ask questions, I was 25 when I had my pacemaker put in and will be a year next month. Have no idea what the medical term is but was diagonised with having 2 holes in the heart and a lazy valve.. simpleton terms for me blood was going in dropping through a chamber and going back out. 
I haven't had any issues since having it put in and i do feel a bit more energetic, guess i'm lucky enoug...

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New ICD recipient

Hi I got my pacemaker 1week ago. It's been quite stressful. My family doesn't understand the impact this has had on me. Physically I'm doing better but mentally I'm not myself. I feel disconnected.

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Post Pacemaker fitting

Hi everybody, I am glad I found this site as it has put some of my concerns at rest.

I had my pacemaker fitted on the 15th June 2020 so I still have the wound dressing on, I was glad to see other comments re the last few days as I had the op on Monday , Tuesday I felt fine as I was still drugged up, wednesday felling light headed, Thursday noticed my oxygen saturation levels wer low about 94% was told to breathe deeper, Friday oxygen levels stabilised stil feling slightly light headed b...

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Scared

Hello everyone. I'm a 47 year old male and just had my pacemaker implanted on the 04Jun20. I was starting to have some mild chest pain and shortness of breath and sweating a lot. My doctor referred me for a stress test again. I didn't get into the stress test until begin of March of 2020. They start the test didn't like something they see and the doctor tell me I need a ablation and schedule it for the following week. Covid-19 happens and everything is put on hold. They finally ge...

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Underarm psin

So hard to explain briefly. 
I recently started having pain on the left side where the cd is. My Ep said it could be the pocket maybe I've loses weight several variables. I believe it's now something pressing under the left arm is where it's hurting. 
 

im at a loss and I keep having all this pain  
 

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ICD placed in 5 days ago.

I had ICD placed 5 days ago. I was feel ok but today I started noticing my heart beat and even when I am reclined I feel it. I will be contacting my heart dr and let them know. It is hard to explain what I'm feeling but i will explain it and someone can make sense of it and be more direct. 

I feel a heart beat that appears to last a couple seconds. It is like my heart beats and is like in slow motion. It has happened quite a bit today. 

I also have issue with sl...

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Shortness of breath

I am 10 days post PM implant.  I've experienced severe shortness of breath since implant, especially when reclining, and I  am gasping and wheezing. 

Any advice from those who have had similar experiences?

 

 

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Using a blood pressure monitor

Is it OK to use an electric/ Battery operated Blood pressure monitor ?? Only had my PM for 2 weeks so I’m still learning !! 

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New pacemaker and sleep test ??.

I’ve only had my pacemaker for about 2weeks and I’m still trying to get used to everything. My cardiologist wants me to have a sleep study. I’m not totally against the idea but told him I need to wait a while, maybe 6 months. I know lots of people who have been diagnosed with sleep apnea, get all the equipment, only to stop using it after some time. 

I would like to hear from anybody who has been diagnosed, pro and cons on the Cpap and sleep apnea treatments.

<...

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Pain in my ICD site

This is a edited post -- can't sleep on my side 

After many years of being a side sleeper. 
Now all of the sudden I can't sleep on my ICD side. Small History I have HOCM and have had 2 open heart surgeries and on my second ICD. 
Post surgery and open heart of course I had to sleep on my back or sitting up in a recliner. 
That was over 10 yrs ago and this ICD is Over 5 years old. I've adventually returned to side sleeping until now. 

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New to This

After having typed out a very long story of how I arrived here, I wondered who would want to read it. In an attempt to find somes peace with everything, here's my shortest version.

CHF brought on by Coxsackievirus B. A friend pointed out this is the same as Barbara Hershey's character in the movie Beaches. That's uplifting!

EF initially 10%. It improved to about 20% within the three months I wore an external defibrillator.

Fast forward a couple of weeks ago, I re...

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You know you're wired when...

Intel inside is your motto.

Member Quotes

Yesterday I moved to a new place in my mind and realized how bad I felt 'before' and the difference my pacemaker has made.