Most Recent Messages in Coping

Soon to be connected

A hello from south of France.

I found out last november (2020) in the local emergency hospital, that I have serious heart failure - dilated left ventricule cardiomyopathy, with acute pulmonary edema, and I am lucky to have survived.

Im 55 years young, and never had any health issue before. After 3 months, and non satisfactory improvement with meds, I will have my pacemaker/icd (CRT-D) installed in just a few weeks.

I know my heart and I will be better, and I must admit I m r...

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Pacemaker Aches (and Pains)

My Pacemaker was installed back in October, 2020. To make a VERY long story short, I had  immediate (and painful) complications with the placement of the bottom lead which was tweaked   repeatedly, then repositioned (twice), and then (when all that didn't solve the problem) was just simply shut off. My Electrophysiologist says I am incredibly sensitive to the bottom lead when it paces, so  you'd think that shutting of the bottom would do the trick, and it has&mdash...

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Thanks!

To those who replied so quickly, and those who may read & respond in days ahead: Thank you for all of the wisdom & encouragement!

I was feeling quite negative about my experience, but now I can see there may be light at the end of the tunnel. It makes sense that there would be adjustment time--for me & for my heart! I think what really bothered me the most was the fact that I had already fought through afib symptoms (with help--a long road of cardioversion, then ablation &am...

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New to this & not really happy

Hi to all! 

I am only 1 week from impant (just had my "wound check" appt & it's healing well). My biggest problem is the total lack of instruction/education that has been made available to me about a device that is now inside my body & connected to my heart!

My doctor was pretty good about explaining the reasons for the pacemaker & the expected outcome. I am in a-fib about 13% of the time--that's with medication (tikosyn)--but when going in &...

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Heart BPM

  • by Pop
  • 2021-01-31 18:46:16
  • Coping
  • 315 views
  • 4 comments

Had PM fitted Nov 2017, Had e few problems ever since device was fitted, Been back quite a few times, see different Cardiologists each time always get different diagnosis each time. Today went up stairs to bathroom had dizzy spell out of breath reart rate was very slow and palpitating again for around four or five minutes, any one else had simular symptemy?

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Post Implant Trauma

I had a nearly fatal event that resulted in getting an implant. How long does it take to get over the trauma of the entire experience.

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ARE WE ABOUT TO RUN OUT OF PACEMAKERS?

Good Evening, I havent been on this site for quite a while. I live in the UK across the pond. I am a little worried that the heath service will not replace my pacemaker in about 3 years time. And being totally dependant on it due to an AV node ablation proceedure. The pandemic is causing chaos in the health service and i think we may have to live with it which our governments dont yet understand. I suspect the helth service will go bancrupt . Peter

 

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The Nurse congratulated me on getting paced..............

Three years ago now. I had sever A Fib the rythem specialist told me the ablation didnt work and he would install a pacemaker After the surgery The nurse asked if I was excited to know I would likely live a very long life now that I hada St Jude pacemaker/Defibrillator ? Who wouldnt be right?  I was always known for being high energy, I was very active skiing, swimming, scuba, weight lifting/body building. I could play my drums for hours on end. I'm 70 Y.O. now, grateful to be alive...

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Pacemaker syndrome

Had my pacemaker for a year and have been diagnosed with pacemaker syndrome.  My Dr reccomends changing out my pacemaker and adding an additional lead plus defibulator type pacemaker.    When my device was first implanted one lead came loose and several weeks in they had to go back in and reposition lead.  Now I am faced with this situation.  This will be third time under the knife for this implantation, Dr doesn't think there is any adjustment on current device t...

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Responses to my message

I want to thank everyone that replied to my post.  Its great to be associated with so many people that have already gone through most of which im about to go through and are willing to share their experiences.

I think therapy might definitely be in the cards for me once I physically heal up a little more. Looking forward to more support from the group and someday offering my support to others that might need it from me.

 

 

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New To Club

Hi All 

Just had my pacemaker installed ( A Boston scientific L331) last week and Ive been healing up physically pretty good but whats getting to me right now is the mental brusiing that I received after learning that I had Sick Sinus Syndrome and Bradycardia and needed a pacemaker. I am a depressed and anxious  and worried that I will not be able to get my old life back. I was very active prior to this diagnosis;  lots of exercising, weights, boxing gym, snowmo...

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St Jude abbot PM2272

I am a active 53 year-old male and had a pacemaker installed in August 2020 with an AV node ablation. My condition is hypertrophic cardiomyopathy that I did not discover until my 40s. The first medication I was on after discovering it through arrhythmias was Verapamil. I felt the best I ever did with my condition while on that medication. As Time passed heart problems began to increase including atrial fibrillation. After four extensive oblations and numerous cardioversions (too many to count...

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Heart pain

Hi

I had a pacemaker implant on 10th November due to grade 2 heart block.

I was waiting to see if it was a temporary thing but for the fourth day in a row I've had an ache in what I presume is my heart. 

It is not unbearable but when resting or at night it is like a tooth ache and I am needing to take painkillers to get to sleep 

I know I need to speak to the cardiologist but is this something others have experienced? 

Could it be healing still...

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New defibrillator

I'm getting a defibrillator Feb. 3 by Dr. Seger in Houston. Any advice about what to expect will be appreciated. How long should I expect to heal and be able to walk 3 miles a day and back to light weight lifting?

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Trying to get through these rough times

Hello, I wanted to share some thoughts,because recently I have felt so sad with my pacemaker and although grateful for science, I seem to be crying everyday you see I regret not to have asked for a second opinion. I had no health problems except passing out. Eight years ago I passed out on a Summer afternoon after having a Dejavu moment.  and they said it was dehydration. Then it happened 6 yrs later same thing and I saw a neurologist he said it was syncope vasel vagal nerve. Then the De...

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new

hi all, 

I just got my Medtronic implanted last week and I'm adjusting to this new cyborg feeling. I'm 31 and experienced Sudden Cardiac Death (SCD) while sleeping on the beach with my partner. I ended up having open-heart surgery for a myocardial bridge unroofing, but my EP was still worried that I could be at risk of another SCD episode....after a long failed battle with insurance, who denied the dr. recommended subcutaneous ICD, I now have the transvenous ICD/PM. It...

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Post PM soreness

Hi

I had my PM fitted 3 weeks ago in 3 weeks time I am going back for a AV node ablation which means I will be solely reliant on the PM I'm feeling a bit jittery about it probably a normal feeling but just need some reassurance from anyone that has what they call a Pace and Ablate if anonee can help I would be grateful 

Also how long after PM fitting should I still be feeling discomforting around the arm  and shoulder area where the PM Iis it's on the left side&n...

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sarcoidosis diagnosis --> anxiety

I had an MRI two days ago and yesterday the EP called to say there were signs of sarcoidosis (I guess I should say "sarcoidisis or other infiltration," because my understanding is that sarcoidisis diagnoses are hard to make definitively). So my PM plans have become ICD plans, and I have been referred to a specialist at another hospital for follow-up, possible PET, etc.

Edited for brevity:

How do others with this diagnosis deal emotionally and intellectually with the shor...

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Can i go back?

A week ago I was happy and relatively healthy. After my implant on 12/10 my happy life ceased to exist. I expected some issues like getting used to having a machine regulate my heart. I was prepared for some pain. My EP told me I needed a PM for bradycardia and I stupidly and naively went along with the suggestion. The procedure itself wasn't too bad although I did feel more pain during than I anticipated. But it's the after effects that nearly killed me. A reaction to Vancomycin. My...

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New to pacemaker

Just got my PM inserted on 12/2 after ablation in September and fainting episode on 12/1. Loop recorder implanted in October showed my heart paused for about 7 seconds causing fainting episode. Hence loop removal and PM insertion.  Since then I've felt like absolute crap. I almost constantly feel like I weigh a thousand pounds and am being pulled to the ground. PM is set so I won't have pauses again, but I just feel awful.  They did adjust some settings (?) at my followup ye...

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You know you're wired when...

Your old device becomes a paper weight for your desk.

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