Most Recent Messages in Coping

CONGENITAL COMPLETE HEART BLOCK FOUND AT 23

Well this is going to be a long story. My name is Thomas Watkins, I am a 23 year old male from Cambridge UK. About 6 weeks back I experience an episode of hyperventilation syndrome (A panic attack) at university and my house mates called an amublance.

Upon their arrival they calmed me down and hooked me up to an ECG and discovered a complete (third degree) heart block. I was taken to hospital and thats where I stayed for 8 days while they conducted several tests including multiple...

Read More...

Pacemaker/Defib Questions

I had heart failure July 26th, 2019, while working. The next day, the doctors put in a PM/Defibrillator.  I have had several checks since and have a complete checkup for me as well as my unit next week.

I have experienced some transitional things such as it moving (slightly), mild pain and discomfort from healing and some mental adjustments. I am blessed to not have any major complications so far.  

Just in the last two weeks, I smell a tinny burning smell (ever so...

Read More...

20 years with a pacemaker (had it since i'm 6)

Hi everyone !

I´m 20 years old and have a pacemaker since i was 6. This last week i was told that my lead where malfunctioning (they're kinda old). My doctor decided to abandon the leads and the generator because it's not worth the risk and lead extraction is a high risk procedure that can end with open heart surgery. She also decided to implant new lead and a new pacemaker on the other side. Here are my concerns:

-Does lead abandonment can cause future complications...

Read More...

No body mentioned an anxiety disorder would develop with heart problems!

I nearly died three weeks ago with a stage three heart block. Heart rate was 20 bpm. I am a 61 year old female being treated for mild heart failure cased by left-bundle-branch block. I was taking carvedilol (Coreg). The dose was recently slightly increased which caused the heart block. At first, the beta-blocker was the primary cause. Then they put in a cardiac loop, and that recorded my heart stopping twice. I learned this on a Friday and by Monday I had a 3 wire CRT put in.  I’ve...

Read More...

Two weeks away from getting a PM

Good morning everyone. I am a 55-year-old female without any exterior signs of having anything wrong.  I was told I need an ICD by two different doctors. I going to have a procedure Tuesday before Thanksgiving. I have elected to have it put in under the muscle. As I'm sure all of you were, I'm kind of scared. I feel I'm too young but I have to listen to my doctors. Anybody currently have one that was put in under the muscle? I could really use some words of encouragement. It&...

Read More...

Overwhelmed

Hello, 

I'm a few days out from having an emergency pacemaker installed.  Woke up the other morning to what the cardiologist is calling a type iii block which caused my heart rate to drop to the 20's.  The whole incident lasted about 4 hours and caused me to blackout.    I'm a health conscious and very fit male in my early forties with no other health issues. I'm still in shock and denial about what happened. Honestly, I feel really dep...

Read More...

Three weeks into this life-changing event

 Well I’m 56 years old been working on elevators for almost 20 years never been a member of any club never been a member of any open form or blog so I don’t know what to say and I don’t know what to do  so I guess I’ll just speak my mind.  It’s been three weeks I’m already back to work on light duty I feel a little lightheaded when  i’m working around elevator controllers  I Purchased an EMF meter and if I stay 2 feet away fro...

Read More...

Vagus Nerve Stimulation

I have a variety of HR issues, essential hypertension, sinus node dysfunction, dyslipidemia and atrial flutter.  I received my pace maker in January 2019 and it works great.  Didn't know at the time it does nothing for flutter and tackycardia (sp).  I am lucky I don't have symptions often.  Have only had systems twice, overall fear/janxiety and high HR.  Have had some success with practicing some vegus  nerve stimulation, deep breaths,  ice pack...

Read More...

Newby

Released from hospital yesterday. I discovered this club today. The psychological side of this life situation has really hit me hard today. I am 46 and need help adjusting. Any tips from anyone? I am grateful for any wisdom. Thanks Jon

Read More...

no hugging

today decided it would be better for me not to hug.  As was having pain in spine on my right side.  Explained to others why i did not.  All were understanding.  Also did not want someone resting their hand on my right shoulder.  Causing pain there in the right side of the spine was enough.

Read More...

To my ...new...friends

Just joined ...the club...oct 25fh...did my 1st post...I JUST WANT TO EXPRESS MY THANKS TO..SWANGIRL...RIVITHEAD....THEKNOTGUY...AND TRACE-E FOR  ANSWERING AND GIVING ME SOME GUIDANCE !   NEVER EXPECTED TO GET A RESPONSE SO FAST  AND INCISIVE !  I ALSO PICKED UP FROM THE COMMENTS ....THAT A REGULAR HEART DOCTOR IS NOT THE SAME AS A CE...AND ONE MUST BE CAREFUL IN FINDING THE ....RIGHT..ONE...I’M TRYING.  ITS NICE TO KNOW  ALL YOU FOLKS ARE OUT THERE....AND...

Read More...

25, nervous, & 2 weeks away from surgery..

Hello all! This is my first post here so bare with me.. I'm struggling with accepting the fact that I'll be getting a pacemaker at only 25 years old. I have congenital heart disease.. more specifically born with an atrial septal defect which was surgically corrected via open heart surgery when I was 1 1/2 years old. Ever since then I've been dealing with symptoms resulting from bradycardia even when I do something simple such as walking.

 

I was so young when...

Read More...

Recovery time

I am a 68 yr old female had a pacemaker put in 5 weeks ago I still don’t feel great   Just wondered how long is the average time to bounce back I had a full electrical heartblock

Read More...

Relationships, scars and secrets, help!

I’ve had a heart condition all my life however It wasn’t a big part of me, I had cardiologist appointments once a year and nobody even knew about my heart condition (expect family and a few close friends) because I never felt the need or comfort to let it out. When I was 12 my condition worsened and I got my PM and since then it’s been a pretty big impact on my life but still nobody knows about it (including friends) because they never knew about my condition in the first pl...

Read More...

Scared as **** and I don’t believe

EDIT by a Moderator:  There's a time & place for "Soldier talk," and this isn't it.  I've gone through & cleaned it up a bit.  This is an importrant subject & needs to be addressed.  All of you guys know better, so keep it clean!

Donr - Retired Soldier for 32 years after 28 plus years activ e duty. 

Original text starts here.

Hi everybody...

what am I doing he...

Read More...

95 year old Mom

My 95 year old Mom (I am her POA and caregiver) has a pacemaker ( the shocking portion has been turned off).  Her battery is good for another 6 months and she doesn't want to have a new battery.  I am reading with interest the comments about end of life and wondering how to make accommodations for her.  Wondering if I shoudl bring her home with me.  I undesrstand that she would revert back to her "natural" heartbeat when the battery dies but jsut wondering wh...

Read More...

Feeling tired

I’ve had my pacemaker for 4 years now for av block  through myocarditis without any real problems.. however last weekend I nearly passed out while shopping.  I take Concor betablockers 2.5mg and lisiniopril 10mg a day.. I am constantly feeling tired and not 100% like me.. I’ve been to my GP who did say he will have to send me to the pacemaker clinic but they always say at the yearly checkups that everything is ok and tiredness is just my life (48 with 3 te...

Read More...

pacemaker speeding up during transport to hospital

I was transported 3 hrs down a bumpy interstate in a emegency van. I had blockages and had stints installed two day later.   I have a question for the medtronics people.  From what i have been told by the doctors installing the pace maker,the shaking of the chess however cause the pacemaker to speed up.  Th three hr trip ended up being 3 hrs with my heart rate at over 100plus.  I felt tightness in my chess.   The problem I am having my pacemaker speeds up with the pul...

Read More...

Meeting with EP tomorrow

Cardiologist suggested I meet with EP after latest echo said EF 29% after I have holding steady at 41-43% EF for years - have LBBB - I am shocked at latest echo  results as I walk every day 9-10 miles.  Jog sometimes an hr, slow but jog.  No symptoms ie Shortness of breath, lightheaded ness, fatigue.

 

Very anxious, pissed, skeptical, depress, all the emotions.   Assume down the road I might need a CRT but not now- I am very skeptical of this latest echo-...

Read More...

Dreaming after pacemaker

Hi all. Since my pacemaker was fitted I have started dreaming at night. The dreams make me very active, punching and kicking the bed much to the alarm of my wife. The pacemaker was fitted to cure complete heart block. The theory is that the minimum HR rate of 50 is faster than my previous resting rate. Has anybody else had a similar experience? Cheers Bob 

Read More...

You know you're wired when...

You have a high-tech ticker.

Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.