Most Recent Messages in Coping

Skipping beats

I’m in a hotel at the airport and noticed my heart skipping the odd beat. I’ve only had my PM for about 6 days and my anxiety is going through the roof. Please tell me this happens to other people. I’m on the verge of not getting on the plane. My heart is still regular but skips. I’ve suffered with AF and Flutter for years and had multiple ablations. This was meant to be my new beginning. Help 

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Nerves

Weill this nerve twitching, pain in my armpit ever get better or is it here to stay? I hate it but I guess is better than alternative, just wondering if anyone else gets this it is on and off  been almost two years.

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Which would you believe?

1. Manual BP check (Stethescope held by a nurse with good hearing): "I can barely hear your pulse!  - I come up with something like 85/48."

2. Arm BP device: Usually "E" - due to my PVC's or various numbers high and low.

3. Wrist BP device: Seems the most reliable. My usual numbers are 105/64 P85 PVC's ignored 

Who would YOU believe?

-Dave--

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Only 4 days after PM op

Hi I am a newbie to this site and also to having a pm. I had op last Thursday. 

I am 57, live in UK and all my life I have had Predominantly cardioinhibitory automically mediated syncope with a heart stop of 18 secs, although this was only fully and properly diagnosed 18 months ago. Finally 2 weeks ago I agreed to the pm and had the operation last Thursday. 

I am still shocked that it has come to this although I clearly understand the help it can give me,...

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Pain

Hi I am almost at the end of my tether I had my pacemaker implanted on 3rd April this year so over four months now I lost my job due to working in an electro static industry and being 61 am not optimistic about getting something else I’m still in pain daily in my neck shoulder and chin the only relief I get is when I’m in bed it’s like a shooting pain going up to my chin and the area round we’re my heart is sometimes hurts I’ve been back to cardiologist and they...

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Anxiety and ocd

I have ocd and it seems a bit worse since getting a pacemaker and having a faster heart rate. Has anyone else experienced this and did it get better after some time passed?

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Mental Health ?

Does anyone have those days where you mind just gets caught in a loop of thought that your heart isn’t ok but you know that it is ? How do yo get out of that loop ?

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pacemaker denpent

thank for the info,

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July 3rd had pacemaker installed

 good morning, I am a 54-year-old woman that just had a pacemaker and defibrillator installed on July 3, 2019. This is very hard for me to process and deal with. I’ve always had major heart palpitations and it seems like they’re worse now. Even though I just went to my doctor last week for my bandage removal and he said see you in five months I just carry a major fear. I feel like my heart is beating out of my chest. Has anyone else ever been so afraid to feel better?...

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Youngest Longest Living

I had my first implant at the age of 18 in 1994. I am on device number 5 now. That has to be some kind of record.

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New tachy-brady diagnosis

Hi all,

I don't really know what to say, I feel a bit overwhelemed.  I was just diagnosed with tach-brady syndrome which was a shock.  I've had heart palpatations since my mid teens, I'm 37 now.  I just mentioned the palpitations to my pcp because I've lost a lot of weight and have been feeling anxious lately. The weight loss was intentional, I was 460 pounds now to 260. I wore an event monitor for a month but the cardiologists office called after a week t...

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New pacemaker patient feeling very anxious

Hi all-

I'm 28, and I am 2 1/2 months out from getting my dual chamber pacemaker. It was a very traumatic experience- I discovered I have sick sinus syndrome by flatlining in my home in front of my husband (poor man, he still checks that I'm breathing at night). I was gone for 29 seconds. I received my pacemaker five days later. The five days in between what happened and my surgery were the most paralyzing days of my life. I was convinced it was going to happen again a...

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100 % Pacemaker Dependent

  • by J B
  • 2019-07-05 10:18:53
  • Coping
  • 396 views
  • 5 comments

In early Apirl I had my pacemaker installed.  Then 2 months later I found out that I was going to have to have an AV Node Ablation, after which my pacemaker would then be doing 100% of my heart's work. I had the procedure 2 1/2 weeks ago and am now 100% dependent.

I am trying to find information on what happens when my pacemaker quits (battery dies).  Will there be enough time to get a new battery/pacemaker or when this battery dies is that the end of me?  This probab...

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anxiety post AV ablation and pacemaker insertion 6/20

Hello Folks, I am new to this sight and grateful to have found it. I'm 100% paced and have had an AV ablaton as well. I am 100% dependent on the pacemaker. The pacemaker was put in on the 20th of June. Since then I still feel the palpitations (from persistent afib) but not as bad. An SA node ablation was not possible due to my mitral valve repair in 2003. I understood from my heart surgeon that the afib would still be there, but hopefully my palpitation would be less. My PM is set at 90-1...

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Anxiety

Hey Folks! I’m six days post PM insertion. I think recovery is going well. I’m still tired and have a new symptom of bpm that shoots up to the 130s when I stand up. My EP has increased my dosage of Flecainide so hopefully that will get better.  However, my biggest road block throughout my heart journey has been my terrible anxiety. I have been on meds for 14 years for my anxiety. The crippling anxiety attacks I have been having since my ablation in December 2018, are nex...

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Feeling groggy since my last tuneup

Just wondering is it normal to feel groggy after having what I refer to as a tune up.  I am new to the forum. Received my PM in  April 2018.  First installed I was told it would kickin like a hybrid car would when gas was needed.  After more tuneups it turns out I am totally dependent on my PM.  I had another tune up a few weeks ago. There was a setting turned off, which is now turned on to have the PM keep up with me when I exhurted myself, which was possibly why I w...

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3 weeks post op

Good Morning All

i am glad I am finally 3 weeks post as everyone says first few weeks are the worst.

i felt great two days in a row this week and then by third day tired headache off and on but made it through the day and now this morning I am feeling tired and dizzy off and on and day just started.

i don’t go for first check until July 1...

is this all normal ?

appreciate thoughts 

Blessed Day!

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re- surgery recovery

have has this thing in my chest for 4months still not feeling great however i now developed a sore shoulder next to p/m this cardio keeps telling me to hang in there every thing looks and i am doing great with the healing i am wits end as he tells me i must have shoulder problem like arthriris or frozen shoulde i do nt know what to do can anyone give me some advice would appreciate  thanks to u all     robert

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Feeling dizzy

How long does the dizziness last, not super bad just a woozy, top heavy feeling?

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LV dysfunction??

Hi all. Further to my previouse post about being told i have heart block and require a PM, I have had my letter from the cosultant, (the one he sends to my GP) and at the end it states that he is sure I will need a PM but he is concerned that looking at my ECG suggests that i may have LV dsyfunction also.

 

I had googled this and now I am scared. Does anyone have this and what does it really mean . Im reading that its not fixable and will get worse. Is this the case? And if t...

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Member Quotes

Your anxiety is normal. It takes some of us a little time to adjust to the new friend. As much as they love you, family and friends without a device just cannot understand the adjustment we go through. That is why this site is so valuable.