Most Recent Messages in Coping
Thanks
Thanks for the positive feedback for someone who tends to take life and everything else too seriously. I never had any forewarning and went form 60 BPM to 10 BPM within 24 hours for no apparent reason at a young age so maybe I am still a little - whatever. Sometimes I just need a little reminder of what's good about this thing.
Yours Truely
Deb
Worried - Now
I really don't know what tothink when someone tells me that the thing that keeps me alive is in going to kill me? I am 100% dependant and without ventricular pacing would not be around to complain, however now I have to worry about my family losing me ealier than maybe they would have because of this thing. Sorry, but I don't always handle this well and don't need bad news that I cannot change. Please be more sensitive to what you say, be it fact or not. Thanks for making my day!!!
having a frustrating out of breath day
Hey ya'll,
I sure can't breathe today. It's very frustrating. Every time I complain to my cardiologist there's nothing he can really do, so I just quit complaining and deal with it. Doesn't make it any easier though. I'm wondering if I need to go back down on my beta-blocker. It's been a few weeks since my increase, and I wonder if it's now starting to get the best of me. I just really feel like crap. I think I'm gonna call him anyways. I have a history of phrenic nerve damage back in April...
Scarey
I am finding it difficult to cope with my hubby at the moment who has a difib/pacemaker. Since his beta blockers were upped his personality seems to have changed. I do everything I can to help him and will never stop loving him but I am finding it very difficult at the moment. Has anybody else experienced this?
To vent or not to vent.....
I am 49 now, my biotronic ICD was put in last September after a horrible gall bladder surgery (in June).
I knew things wouldn't be "by the book" when the cleaning lady threw it away while I was in the ICU.
I am part of a study "Cosmos" I believe. Is there anyone out there who is also part of this study?
I know I should take my questions and fears to the Doctor with me, but when I get there I feel so.... intimidated or ??? Anyway it would be nice to talk to someone about some thin...
THIS MAKES ME ANGRY
- by uvagershwin
- 2008-10-07 08:10:24
- Coping
- 1730 views
- 10 comments
Ok, I know that the general public doesn't think about young people having pacemakers, but I just picked up a college preparation "magazine" in the library the other day and on every other page, there was an add for some sort of US military service. I CAN'T STRESS THIS ENOUGH: I know that hardly anyone thinks that kids can have pms, but it is demeaning to the general public when the say "Do something with your life" or "Accelerate your life". Excuse me??? I can do great things just staying on ci...
Dealing with people who don't have PM's....
- by ladyofmercy
- 2008-10-07 06:10:08
- Coping
- 1860 views
- 12 comments
Hello all. I have a question. I am soon going back to work and the secretary there is a real pip! She is one of those who thinks she knows everything and then gets real mad when someone corrects her. She actually doesn't talk to people who do that to her for days! Her grandma has a PM and I just know that she is going to be a real ***ch to me and say a lot of nasty things and try to compare us. Short of throwing one of my imaginary hand granades at her, I am at a loss for dealing with her...
tightness/stifness
- by thecrazyone25702
- 2008-10-04 12:10:42
- Coping
- 1539 views
- 2 comments
I was wondering about the tightness of the whole pacemaker area. Does this go away? My whole upper body is really stiff and feels almost stitched together.
Not on time!!!
- by brokenheart
- 2008-10-03 01:10:45
- Coping
- 1677 views
- 5 comments
Hello my friends!!! God bless you all. Here i am again asking if any one has had these problems. I have not been feeling the best...seems like something is "off". Like my pulse is delayed and it comes in late...not on time at all! I cant really explain it. I mean, it is like if your heart is supposed to beat and it doesnt for a second and you wait for that moment but it takes forever and you feel like you can die. Like, oh my God is my heart going to beat? And then it does. But the rest of the b...
New pacemaker at 48
I am hoping I am not alone... I just recently had to have a pacemaker for third degree heart block. I'm 48 and it has just thrown me for a loop. I was walking over 2 miles a day in 100+ heat here in FW, TX, eating very healthy, drinking the water, etc., etc. Now I have to go for a ton of tests to find out what caused this and not only am I scared to death I am also still in a state of shock. Any help/advice/info would be GREATLY appreciated.
Tammy
djt
hi everybody i have just had a pm fitted two weeks ago and i am experiencing like an uncomfortable pulse every 3 hours day and night so bad that it can wake me up i can set my clock by it as it happens 13 minutes to the hour every 3 hours. has anybody any ideas.
thanks
djt
Still low after 2 years....
Hello,
I haven't been on the site for a good while but feel really low at the moment and didn't know where else to go? I have my pacemaker 2 years, and mostly I go by the day without giving it much thought, I 'spose I'm just getting on with things but I keep getting very depressed, and seem to spend half the time thinking I'm going to die. I know this sounds ridiculous, it's all "retrospectively" as my Doctor put it, and he's right I should be grateful that nothing 'bad' happened and I h...
more counselling needed
hi everyone ive been bowled over by some of the stories i have read here. so many people have gone through so much it is hard to think that they just keep going.i thought once i had the pacemaker fitted it would all be over and done with operation wise. in three days i go in again to have more procedures done i wasnt expecting to have to do this again.i suppose i hadnt really thought about it.i had to make the decision to have one very quickly and i had no counselling . when all said and done...
I'm doing wonderful but.....
does anyone ever get the short lived desire to rip this clunk of metal out from underneath their skin?
Just wondering if these temporary bouts of insanity ever disipate?
Don't get me wrong, ya'll. I love my new life. It feels wonderful to feel well and "my age" again. I'm slowly picking up the pieces of things I missed out on the last 8 years. I now feel like I have my life back....somewhat.
It feels like I have a small deck of cards under my shoulder, and it's horrible when I cr...
Can they move it easily?
- by tcrabtree85
- 2008-09-22 10:09:52
- Coping
- 1771 views
- 4 comments
Hi all I have missed you guys lately. I was hoping for somebody's opinion. Lately I have just been wanting to have my pm taken completely out and never deal with it again. I know not a good attitude and I am working on its just shes been giving me hell for so long.
I thought it was so much better after they turned off the bottom lead and then a month ago when I went into the hospital they turned it back on. My spasms have gotten worse and I feel as my pm moves around and presses on a ne...
Trying to Cope
- by grntygreyez
- 2008-09-22 09:09:56
- Coping
- 1716 views
- 11 comments
Hi everyone. I'm 34 and I just got a defib implant on August 8th. I had been diagnosed with SVT for the past 13 years - but the past couple of months it turned into v-tach and atrial fib. HR would top out at 240 or so. My dr discovered it when he did an event monitor after i told him my symptoms - tunnel vision, blacking out. He admitted me immediately into the ICU to run more tests.Two days later, I had the defib.
The problem is I hate it. I know - it could and probably will save my...
Book Recommendation
- by Broken Hearted Jane
- 2008-09-22 04:09:10
- Coping
- 1555 views
- 2 comments
Just thought I'd share a book recommendation with you guys (aimed primarily at anyone with panic and anxiety concerns). I've posted here several times with questions about panic attacks and crippling anxiety and am glad to report that I have discovered a wonderful source of relief! The book I used is called "When Panic Attacks" and it's written by Dr. David Burns. This book has helped me solve problems that go far beyond my anxiety, and I really feel I've learned a lot about myself. It's a workb...
Pacemaker
Have just found out that after passing out 3 times they want to fit a Pacemaker in MY heart! Well I was stunned, only old people have those dont they! I know I am 62, but like to think of myself as a young fit 62. So I looked up on webiste about Pacemakers and came across your site. I can breathe a sigh of relief when reading your letters, not only has it helped me, but most of you so young 20's and 30's. Quite looking forward to having it fitted now.
Thanks all you Pacemaker Buddies...
Sleeping
Hi
I don't have a pm but someone I love does and I am trying to understand things. Did anyone ever experience the fear of dying while they slept and if so how did you learn to cope with that. I just want to learn as much as I can from others so I can better understand what is is like to have pm and what worries come with one and what to say and when.
Thanks
Need your advice
Hi
I don't have a pacemaker myself but someone I love does. He has had it two years and he is 38 and it has been hard for him to except. I don't know what to say to him when he thinks about dying and having the pacemaker put in and how it bothers him sometimes. I want to learn more about how it feels to have one and what I can say to encourage him or ease his grief. We have known each other for a while and having this between has caused some seperation in our relationship. I just want to be...
You know you're wired when...
You prefer rechargeable batteries.
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