Most Recent Messages in Coping

BRADYCARDIA

I HAVE ONLY RECENTLY BEEN DIAGNOSED WITH THE ILLNESS(3WEEKS) AND SEEING A CARDIOLOGIST SOON.I HAVE HAD 1 EKG AND ECHO AS WELL AND FORTUNATELY OR NOT MY HEART IS IN GOOD SHAPE OTHER THAN LOW PULSE,44 TO 55.mY CONUNDRUM IS THAT THE TECHNIIAN HAS STATED THAT A PACEMAKER IS UNLIKELY SINCE I AM OTHERWISE HEALTHY.THE LEVEL OF FATIGUE THAT I COPE WITH IS ALMOST UNBEARABLE;THIS IS VERY NEW TO ME AS I WAS AN ACTIVE GUY EVEN THO RETIRED AND WORKED A PHYSICAL JOB MY ENTIRE WORKING YEARS.I NEED TO PERSUA...

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Mental Health

hi, i never use forums or anything like this so sorry if my post etiquette or anything is incorrect. but i'm a 19 yr old female and march 29th 2022 i had an s-icd implanted. ever since leaving the hospital i've been extremely depressed. the scarring i have is terrible, it's mostly on the side of my ribcage under my arm and i hate looking at it. the device itself is also clunky and can be seen through my skin and it's always sore and trying to sleep comfortably is impossible. a...

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Post pacemaker symptoms

First I just wanted to thank everyone for their inspiration during my pre PM procedure. It was on June 7 & the procedure was a snap. But now I am experiencing the following: Higher B/P, nothing drastic, weird dull throbbing sensations in left arm, every now & then, and yesterday some several kind of mild  jolt sensations from my heart. I am a little light headed and low energy. Now keep in mind I have high anxiety and freak out with any strange or unusual feelings....

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Electric Blankets

Hi, I have a saint jude ICD I was wondering if anyone here knows if an electric blanket would be a bad idea?   I stay cold all of the time and used to use one year round but have been too scared to try since my ICS placement.  I have a lot of other conditions as well amd the cold really affects my quality of life.  Cold air is like needles to my skin. 
thank you!

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fever with backache

Hello everyone. I threw my upper back out about 4 days ago and the last couple of days i could really feel it when i breathed. Now, it seems im starting to run a mild fever last couple of days, its only at night. its impossible making an appointment because they are all booked up. Does anyone know whether aspirin is safe to take, also, this has elevated my heart rate as well, is that to be expected? thanks for listening

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Return of symptoms

11 days post op and up until today all my previous heart block symptoms had gone completely. Today however on a walk they all came back. Shortness of breath tight chest dizziness. I’ve done some mild exercise and housework and it’s hot today. Would this cause it?

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Ablation part of pace and ablate

In the AF Association leaflet it says the following:

"The procedure does not restore the normal heart sinus rhythm and so the heart will not work as well as it would in the normal rhythm. Therefore symptom relief may not be as good as might be expected with restoration of the normal heart rhythm."

I've had my pacemaker fitted and awaiting the AV node ablation. I read this today and nobody else has mentioned this at all. Are there any other people on here that have ha...

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This One is Interesting!

Hello PMC!

I hope you are all doing well! I have something interesting to share with all of you and hopefully you can provide some feedback. I will start by saying that I have an appointment 6/9/22 with my Cardiologist to discuss same. I've been experiencing leg weakness daily and sometimes my thighs burn when I walk as if I was doing intense exercise at the gym. I've noticed that my legs (thighs mostly) have trouble doing anything really&...

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Extremely high anxiety

I'm 28 who gotten a pacemaker going on 4 weeks now and every since I've been unable to sleep well. My anxiety been through the roof. Scared of everything to go out to far from hospitals, to have intimacy,to run to anything. I feel like my pacemaker might have a malfunction one day. And when them thoughts get inside my head. I try to get them out but my anxiety won't let me. I feel like I'm getting depressed as well. I made me appt to see a psychiatrist for tomorrow and hopeful...

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Symptoms before PM

I have implantation surgery scheduled Wednesday. I have AV Heart Block, the doctor expects I will use almost 100% of the time, my heart rate is usually around 32-39, currently.

I've been experiencing tiredness, irritable, confusion, feelings of being overwhelmed. This was why I was going to the primary doctor, but they missed it for awhile.

did anyone else have those symptoms before PM?

 

thanks

michelle

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Group like this but for cancer?

I have found this site very helpful in that it's basically user based and user driven.  I am looking for a similar group for cancer patients.  Everything I find is dr's, care centers, pharma, psycology, or societies/professional organizations all drven, mediated, or otherwise led by professionals in their fields.  That's all well and good but I'm looking specifically for how people handled Rituximab chemo treatment from a patient perspective.  No, I don'...

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New to this whole pacemaker thing

Hi, i am a 28 year old female, recently i got an SVT ablation done it was unsucessful due to my heart beating below 40's so i had to get a pacemaker. at first i was scared i cried like a big baby because here i am this young female gotta get a pacemaker put in. its been a week now and im just having hard time coping with it. at times i feel it other times i dont. hate the feeling. i just have so many questions about it. like im even scared to have sex now because i think my pacemaker migh...

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Uncertainty

I am 2 months post pacemaker implant.  Everything has been going quite well with including some of the emotional and physical adjustment.  I have some days I almost don't think about my pacemaker. Then there are other days I seem to be acutely aware of my pacemaker. I feel the physical presence on my body (a kind of tightness near the area or under my arm) and see it more than other times.  It seems like this occurs after more physical exercise (nothing extreme).&...

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increased heart rate

I have had my pacemaker for 6 weeks now and overall I have been doing pretty well. The input from this  this group has been a tremndous help. In the first week or so I could really feel the pacemaker at times.  It all seemed to settle down.  I have increased my activity through the weeks and feeling ok.  Today, for no apparant reason, I seem to be really feeling my pacemaker and my heart rate is up around 80-85 without activity. My pacemaker settng is currently s...

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New first time PM and overwhelmed

Greetings all. I had my pacemaker put in on March 7 2022. I am one of the ones who was going along thinking my heart was healthy and fine, fell and struck my head, had a complete heart block (still getting used to all these terms) and woke up with a PM the next day.

My recovery has thankfully been uneventful. But my emotions are all over the place: fear, feeling overwhelmed with adjusting to my new health concerns with my heart, and today a little bit of anger about the whole thing. Whi...

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Travel right after implant

I had a pacemaker implanted on Monday after two separate collapses a few months apart.  I have a major international trip planned in April, with Dr saying it will be ok.  Anyone else have experience with major travel soon after implantation, and if so how did you handle luggage, etc ( we can only take 20 kilos with no wheels or frame) i know about going through security etc, but logistics may be tricky.  We're you headed well enough to not have incision pain?

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PIP (UK specific) question

I'm currently filling in an application for PIP -- based on restrictive cardiomyopathy and the resultant heart failure and VT/ICD, plus an Essential Tremor. Does anyone have experience of what works?

I'm particularly interested if the ICD makes any difference -- my suspicion is not.

However, I'd like to hear advice from anyone who has gone through the PIP process.

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A little punch in my left side of abdomen

Hello all, 

Well now I have been on Entresto for a little over a month now, and I think I am getting used to it, I still get dizzy spells but it doesn't last long and it is really a matter of me watching the foor and water intake to keep me balanced.

But now I do have a new thing that just started three or four days ago, when I lay down in bed or sit in a reclinere, I feel this punch (contraction) in my left side of my abdomin, it goes on for five or six  punches in...

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New member - recent first pacemaker implant

Hello everyone, I'm new to the Club, having had my first PM implanted on 1st March.

I'm trying to walk every day and currently managing about 3k to 4k steps before becoming tired and having to stop. I still have some occasional muscle aches in my upper left arm and lower left chest, nothing major, just the odd twinge. I'm eating and sleeping OK.

I had a first check of the PM at the hospital cardio clinic a week after surgery and they said everything is fine - my next c...

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High anxiety

I am a recent recipient of a pacemaker and the process of recovery is turning out to be more difficult than I anticipated.  I have periods of low anxiety and every now and then a panic attack will develop.  I am getting help that is much appreciated but anticipating driving gets me reved up.  I am wondering if anyone has a suggestion that might be helpful?

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You know you're wired when...

Your pacemaker receives radio frequencies.

Member Quotes

It's much better to live with a pacemaker than to risk your life without one.