Most Recent Messages in Coping

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One Year Anniversary

Hi all!! wanted to comment I am having my one year anniversary on Sunday march 26th. It was a nightmare a year ago was on vacation in Florida having a great day in the sun and surf!! But that night was passing out all over the place. Thanks to my wife's quick action in getting me an ambulance and the closeness and expertise of the hospital I sm her today to talk about it. 

A year later I seem to be no worse for the wear. Feeling good blood pressure is perfect and my blood...

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Preserved left Ventricular Systolic Function?

Hello,

 

I have written many messages on here an always get great help back, and I just have a question please that is quite worrying me.

I had contacted my cardiology team about a few symptoms I have been facing recently ( extreme fatigue, headaches  and no energy ect.) and I had a phone call and a letter sent back. 

In my letter the notes say Jun 2022, normal LV function and size with no aortic root dilation. 

But then further down in t...

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Pacemaker battery nearing the end of power.

I've been told my pacemaker had several weeks left. I totally rely on it because of total heart block. I'd rather get a new one sooner rather than later. I'm so nervous that it will just stop one day and my heart will stop right along with it. My cardiologist says insurance won't cover the procedure until I need the device changed. This is freaking me out. How close do you have to be to flatlining before Medicare will cover the procedure?

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New PM

Good evening, 

I had my PM placed on Monday the 13th of March. Big surprise to me. Micra AV.

I'm 58 years old. 

I have so many questions and looking for help. 

1. When do the PVC's calm down?

2. Is it normal to be so emotional? Anger, crying, anxiety and fear?

3. Are there any online support meetings?

Thank you for the acceptance to this forum and grateful for any help. Feeling alone and scared!

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Pain at Site of implant

I got my pacemaker inserted on Valentine's day...now over a month has passed and the bruises and swelling have pretty much gone away. The skin over my pacemaker is very sensitive and still painful. I can feel all the bumps and where the wires connect if I run my finger over it. Just about everything I wear rubs against it. I bought the pads you attach to bra straps, but as I don't wear one, they aren't much good. I tried taping them over the site, but they aren't soft enough a...

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any help or advice would be great, getting fed up

Hello Again,

I am looking for some advice/ knowledge please. 

For about 3 months now I have been feeling bad, I am extremely tired, lacking energy and motivation to do anything, and I have had almost constant headaches throughout this time aswell. 

 

More recently a few weeks ago, my legs began to ache and really hurt. This pain gets worse when I move around, and nothing seems to be helping the aching and pain. 

I feel weak and tired all...

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Moms with pacemakers? Looking for advice for comfort when managing my LO

My Medtronic CRT-D is not submuscular unfortunately and I am quite petite framed, I have been struggling with holding my son during feedings or just carrying him as I get pains in my shoulder, and he keeps accidentally faceplanting onto my device (poor little guy). I also have a port under my skin on the opposite shoulder which he has accidentally bonked against during crying bouts.  I have resorted to wearing multiple layers and sweatshirts to help cushion him if he does faceplant on me...

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Ouch, I am new to the ICD club

Hi all!
About 2-ish months ago I suffered a "cardiac event." Luckily for me, my husband rolled over in bed to make fun of me for making a weird sound. He saw my eyes rolled back in my head and noticed I wasn't breathing. He immediately pulled me onto the floor and started CPR while calling 911. He got me breathing, and luckily I live really close to an excellent heart center. Doctors installed a defibrillator, but we still do not know what caused my ventricul...

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Recent "episode"

Hi All.

I've had a pacemaker now for 3 years. Last night I had a rough bradicardic episode: the PM did cut in and slowly resolved the problem but I felt really Ill with all the symptoms.

I intend to contact the cardio unit at my local hospital on Monday.

My question is, what pulse rate do other members PMs cut in at? 

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Hello from Australia, new to all this

Hi Folks,

 

 I'm a 55year old male and was diagnosed with HOCM about 6 years ago.

It was a shock but did answer some questions as to why I was having trouble exercising (I used to do long distance cycling events), it also put a halt to my hobby of motor racing as they would not endorse my license anymore.

 Anyway three weeks ago I collapsed for a few seconds, stupidly I left it till the next day to go to hospital... Now here I am...

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Newbie

Hi all! I'm new to PMC, glad I stumbled upon it! Brief backstory, I'm 26 years old, I've had 5 previous ablations, my latest being two weeks ago. Unfortunately it put me into a brady junctional rhythm after I was discharged and I was throwing 6 second long pauses every couple of minutes so last week I had a Medtronic dual chamber pacemaker placed. They were able to implant it under the muscle so it wasn't as cosmetically noticeable (which I wasn't concerned about but...

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Daily pacing w/ new defibrillator/pacemaker. Diagnosed with LVNC

My ex-wife is still a very good friend of mine and I'm trying to be supportive because she's going through a lot. When we were married she often passed out and it was always assumed it was just because she had a low ejection fraction etc. When she went to the VA doc (she's a veteran) they never found anything. She's now 45 and this past spring she was told that she has Left Ventricular Non Compaction along with the low ejection fraction. She had a pacemaker implanted before th...

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New Pacemaker

Hi everyone!  :)

After a one-time fainting, I was urgently diagnosed with Bradycardia. It was such a surprise!

I had my PM installed on Jan 11th. I've had a few complications, but recently had it reset.

I feel a bit better, but I've noticed a numbness in both of my thumbs. They are tingly and a little pain.

Has anyone experienced this?

I'm just hoping that it is unrelated to my new PM.

Thank you for the support!!!... so glad I'm not alo...

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Palpitations

Hello everyone,

I've had my pacemaker implanted on October 12 2022.  I was diagnosed with SSS (sick sinus syndrome) with symptomatic bradycardia which caused my heart to pause for 12-seconds.  Trying to cope with this life changing event along with palpitations, anxiety and fatigue. Some days the palpitations are not as frequent as other days and some days I feel fatigue and other days not so much.

I have always had p...

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swallow syncope

  • by 5id
  • 2023-02-22 16:28:43
  • Coping
  • 182 views
  • 3 comments

After TAVR in late October of last year and while wearing a monitor, I had 4 AV blocks with a pause. Only one was diagnosed as 2nd degree and all 4 episodes were within the first week after my procedure.

Now 14 weeks out my electrophysiologist asked that I wear a monitor for 2 more weeks to see how my heart has healed. I trust he is trying to make a final determination to eliminate the need for a permanent pacemaker. Today is my last day of monitoring and this morning while taking ...

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CPAP and Pacemaker

Just wondering if anyone here uses a CPAP machine. Things were great for about the first three weeks, but the last two nights have been a nightmare.I have had the CPAP for years and had no problems. Maybe these are not related but just would like to know if im alone on this one.

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re covid

Hi fellow Pacemakers...I have finally managed to get Covid...day 9 so far...I had thought I was getting better as really only had minor symptons.Today I woke up chesty with a productive cough. It was a bit of a surprise as I had been progressing well. My heart rate PM has been very good at 58 and now shot up to 70, BP is up as well....feeling ok just a little nervous about the next stage.Any advice out there from fellow sufferers..? Thnks Dave

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Hello to my new normal

Hello friends!

My name is Meghan. I am 30 years old and suffered cardiac arrest at the end of October last year. My husband was up having a midnight snack and heard me aginal breathing. He did CPR on me for 10 minutes while he called 911. Once there, the EMT's shocked me and rushed me to the hospital. I was put into an induced coma and when they tried to take me out of it about a week later I had another cardiac arrest. spent a week in the cardio intensive unit where I suffered from...

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Raised Blood Pressure whilst on Digoxin

Sorry to be a pest but its my second day in Digoxin and the first day my BP was normal (122/80) and the second day (today) its shot up to 147/96 and Im panicking a little...is this normal whilst its settling down? I know you have to take an average reading over a certain time but should I be worried about these high readings?

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Smoking cannabis

It's been 2 weeks since I've had pacemaker implant.  Smoking a little cannabis really helps my depression and anxiety.  I asked my doctor  and he said it would be o.k.  He didn't say how long I should. wait.  So my question is - How long should I wait?  Thanks to whomever can help me

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You know you're wired when...

You’re officially battery-operated.

Member Quotes

My pacemaker is intact and working great.