Most Recent Messages in ICDs
phanthom strikes again
i jumped out of bed it was really weird my chest hurt i had shortness of breath my bp 98/52 hr 55 my head hurt i went and had my device checked no problems where found this is not the first time within 15 mins.my hr was78 my bp 128/70 i have had this thing(st.jude v193) since 01-15-05 and have pulled my leads out 06-06 my real shocks have come while i was asleep and i jumped out of bed........murf
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Pre- ICD Any Advice?
Hello All,
I am new to this site, but have a feeling that we will be here quite a bit. My husband will be receiving his ICD on August 14th. i am doing last minute panic research online. Any advice, do's don'ts. Things we should ask, things we should know? Just know that it will be a Medtronic, that is it.
Taking baby steps, terrified the whole way.
any info, tips, advice, things to be concerned with would be greatly appreciated.
the wife.
ICD and returning to exercise
- by wan_lucky_sod
- 2007-08-08 07:08:02
- ICDs
- 1821 views
- 2 comments
Hi Everyone
I am from Northern Ireland and have Long QT Type 1. I got a shiny new I.C.D in Nov '06 and I have been scared to return to any sort of proper exercise ever since. I was quite active before my diagnosis but after finding out that my heart condition is triggered by exercise has made me very wary. I have the usual fears of leads being pulled out and inappropriate shocks so my question is..... what sort of exercise do any of you guys do? I have started cycling and walking agai...
need to know
- by tallguyjoe
- 2007-07-30 10:07:31
- ICDs
- 1787 views
- 5 comments
Hello there I am a new member would like to know if there are any men who dont like the location of there ICD> Mine is above my left chest and sticks out some. I am a tall 6'7'' guy and really like to work out,. The doctor said I could not work out or play golf or catch for two months. Already dont really care for the way it looks when I wear a T shirt. Question is when I work out will the ICD stick out more. I am not being vain. This is all new to me and would really like to have this question...
New and confused
- by tallguyjoe
- 2007-07-30 08:07:31
- ICDs
- 1813 views
- 1 comments
Hello there I am a tall 6'7'' 39 year old male. Just had a ICD put in me two months ago. My life has changed so much and now I have so many questions. Find it hard to sleep at different times of the day and evening. I am still young. But this ICD is getting me depressed and man do I worry alot now. If anyone can answer questions that I have which is many. Please do.
Need questions answered
- by tallguyjoe
- 2007-07-30 08:07:05
- ICDs
- 1610 views
- 2 comments
Hello I am new to this site. Just did a google search and found it. If anyone is out there who could help me with some questions about this ICD I would appreciate it. Thank you
lightning and icd
- by ferretgirl22
- 2007-07-28 04:07:43
- ICDs
- 3389 views
- 3 comments
hi, I have a bizarre question has anyone experienced problems with their icd after a lightning storm? We had a nasty one that hit a house two doors from mine and caused a huge explosion then fire. Since then my chest has been tight and the icd site has been very painful as if it sending out little electric shocksevery twenty mins or so they only last a second. I went to the hospital and they found nothing on the ekg or blood work. I still feel the pain is icd related not heart but they never lo...
interfere
does anyone know if an icd can interfere with radio equipment I am a 911 Dispatcher
Thanks Denise
relocation
Hi everyone,
Just joined the club. Received my ICD in March, 2007. I'm not happy with it implanted subcutaneously. Hurts. Itches. Gets in the way. In Aug. I talk to the surgeon about the possibility of having it relocated under the pectoral muscle. Have done lots of reading about the pros and cons of the relocation. I've read a few postings from people who are happy with the ICD under the pectoral muscle. I'd really appreciate your feedback. Once the ICD is relocated, I know that the...
ICD WebRing
Would like to hear from all of you. I am starting an ICD WebRing if anyone is interested in more exposure for heart disease.
www.jimsjems9.com/icdring.html
It's good to know I am not alone in my experiences.
JimsJems, Mayor
hometownusa@jimsjems9.com
www.jimsjems9.com/
Okay to drive a motorcycle with ICD?
I've been considering getting an ICD because of my cardiomyopathy and as I was reading posts in this group about all the false positives -- shocks -- people were getting it made my wonder what the heck would happen if I were driving my motorcycle and the PM decides to zap me?
If I get an ICD will I have to give up motorcycles?
Thanks
Jim
My new ICD
Hi there. I have now got a new badge of honour. Yes, my Medtronic ICD was implanted successfully on July 4th 2007. I am grateful to be privileged enough to have such a device, considering the need in this world, just for food for most.
I knew it was an expensive item, but the cost of Australian $55,000, just for the device no doctors or hospital bills included, nearly gave me a heart attack!!! LOL. Really I only found out the cost after it was in. Thank the Lord I have paid for the to...
ICD and altitude
Hi everybody ....I had an ICD inserted 3 months ago with no warning. The Dr admitted me immediately to the hospital after a stress echo and I recieved my ICD the next day.
I have ventricular tachycardia. I also successfully had cardioversion for AF while I was under the anaesthetic. I had no pain or problems and recovered quickly and felt really good.
Some weeks later I began to feel tired and have since discovered that I am in AF again. I am medicated with digoxin and carvedilol and...
What the heck!!!
I keep getting what feels like a kick, not at all painful but very weird. It happens on my right side(my implant is on the left), and in my back. Is this a muscel spasam? Has anyone had this? I have had my implant for about 1 month and I am doing great. My device has been checked twice so far and both times they say it is functioning perfectly. Also, has anyone had a lead wire come lose? What does that feel like? it doesn't sound to good. thanks for any comments as I am new to surgery and not su...
Has Anyone Tried the EPFX/SCIO?
The EPFX/SCIO scans the electromagnetic frequencies of the body similar to the virus-scan on a computer. I had a diagnostic session the other day and while they would not hook me up in the same way they monitored my wife, the session seemed to be helpful just being next to the computer.
My concern is that if they do not want to hook me up in the regular manner, perhaps this tool is not for me. Sad, if so, since it seems to be a remarkable device.
First Shock
Hi everyone,
I had my ICD put in on June 8th, and was feeling remarkably good. Before the implantation I was feeling pretty hopeless and emotionally dead, I just couldn't cope. Following the surgery I was a little sore but sort of went back into "normal" mode emotionally. In fact, I stopped thinking about the big issues and was just relieved the surgery went so smoothly. Friday night while out with friends, I got shocked once. Not only was I completely surprised by it, I was also very...
ICD then ablation???
- by jane4herbs
- 2007-06-07 02:06:01
- ICDs
- 1866 views
- 4 comments
hello,
i recieved an icd in dec. of 2006 for which appears to be a viral cardiomopthy. i have since improved about 90%. the problem is that about 11/2 ago i recieved 4 shocks in one day from av node arrhythmia. my doctor said no big deal i will take you into the lab and do ablation. this was about a month ago and i am still feeling awful from it. i have off and on again burnning over my entire chest, i have not been able to wear a bra for a full day has it feels uncomfortable, just overal...
FU airline mechanic with ICD
This is followup from previous posting... from aircraft mechanic with major US airline. My concerns are related to the magnetic fields and others from the engine and apu etc as I work directly on these running and not runninig.The airline has recentluy approved a company to come into the work area to meaure the fields so that it can be determined if i can return to work or not. I believe this is the first time this would have ever been done. Risk management and legal are involved as I think they...
Plastic Surgery
Has anyone ever had any plastic surgery done perhaps some kind of fat filler around the ICD to minimize the appearance of the "lump" you see from the device? If so I'd be interested to hear your experience. I don't even know if this sort of thing is done but I thought I'd throw it out there.
You know you're wired when...
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Member Quotes
The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.