Most Recent Messages in ICDs
Pain in Left Arm due to ICD Placement?
Hello, I am also new to this forum and hope this is not unusual but I am posting on behalf of my mother. I've been reading some of the other postings and am writing about my mother's nightmarish ordeal in hopes of getting some help for her. On top of other symptoms, she has an excruciation pain in her left arm and we think the ICD may be affecting the nerves in her arm. Is this possible and if so, what can we do about it?
My mother had a three lead ICD placed middle of July, 2007 s...
medtronics icd shocking experience
Sorry this is so long, but need to vent. Posting this for my husband since he's in the hospital. Husband had a ICD implanted approx 1 year ago. Friday night he was working out of town and his ICD went off 39 times within 3 hours. He was taken by ambulance to a small local hospital and then transported to a larger hospital where a Medtronics rep came and turned it off. There was no indication that there was any cause for it firing. Husband overheard the cardiologist & rep talking that there...
Periodic Flushing and Accelerated Heart
Hi There:
I have a dual chanber ICD had an ablation back in May and every month or so I expereince flushing and my herat will go from a reasting bpm of 60 to 85 and then within 2-3 minutes the flushing goes away first anf the heart slows don in 2 stages: Stage 1 around 75, Stage 3 around 65 and then a retrun to 60. ANYONE ELSE HAVE A SIMILAR EXPERIENCE?
Dave
Terrible Dreams
- by tallandstrong
- 2007-10-07 07:10:39
- ICDs
- 2866 views
- 4 comments
Hello there I am new to this site and glad I found it. Had a ICD put in about 8 months ago. Very athletic and energetic guy here. Of course had to wait several months until I got to do my normal things. I just turned 40 and feel like I am 100. Seriously. This devise has changed some many things in my life. Activity no more really. Sex >>forget it. Told the doctor that my sex life was suffering. Doctor told me to increase my dosage of medication. Didnt work. And ever since my operation I have ha...
Strings of Shocks
Ive been petrified for years and on anti anxiety and amiodarone most recently to ward of anxiety attacks that seem to increase my heart rate enough that it registers as VT. I have also read that if you have unnecessary shocks it can knock your heart into a lethal rhythm.
I have ARVC and have had ablation and am on my second device after two years. I have had over 200 shocks and many times almost 27 in a row, am I alone in this? It doesn't seem worth it. I thought you would only need a shoc...
Finally, an Explanation
Hello,
This will be brief as I have my arm in a sling. When I went to the rhythm clinic, they discovered one my leads had detached and so they did surgery right away to fix it. They don't know how or when it detached, but they've fixed it and now I'm on the mend. Hopefully, from here on out, it will only go off when truly necessary. Thanks again to everyone for the words of encouragement or facts, you're all wonderful.
Rae
Here it goes again!
Wow, this has been quite the week. First of all, thank you to everyone who commented or sent me a message. It can feel pretty lonely sometimes to have this machine inside me that acts of its own free will, and even though I wish none of us had them, it is really comforting to read other people's postings or hear their feedback.
Well, apparently I was in for yet another surprise this week. After the shock with my boyfriend, my doctor increased my beta blocker in hopes it would calm my...
Shocked and In-Contact with Someone
Hello again,
Haven't posted in a few months, although I got great support the last time. I received my second shock last night, again, it shakes me up more mentally than physically. This time, however, I shared my shock with my boyfriend, as we were being intimate when it went off. I am too much of a lady to get into details, but he said that he experienced a flash of light in his head and felt a jolt. It certainly was not as strong as what I experienced, but it did freak him out pret...
latest rush to the hospital
hi this is my second time to post,i went to the er in my home town with chest pains racing heart,dizziness and very weak,they called a guidant rep to come to er to take readings ,she turned down the lower chamber as low as she could,and left the er dr,sent me home with an angina attack, told me to follow up with my family dr next day, went and the ekg reading then sent me to a heart institute, where the pacer was put in 2 yrs ago, the tech was thier and he said the bottom chamber was pacing befo...
phanthom strikes again
i jumped out of bed it was really weird my chest hurt i had shortness of breath my bp 98/52 hr 55 my head hurt i went and had my device checked no problems where found this is not the first time within 15 mins.my hr was78 my bp 128/70 i have had this thing(st.jude v193) since 01-15-05 and have pulled my leads out 06-06 my real shocks have come while i was asleep and i jumped out of bed........murf
Paid Research Opportunity
MedQuest, a medical market research company is conducting interviews with people who have an ICD or Bi-V. Our client is in the process of coming out with a new implantable device and wants to hear some opinions on the perceived benefits & challenges of using this new device. We are seeking your opinions only and you will be compensated for your time. We are conducting this study in Boston, Chicago and Los Angeles. If you are interested please follow the link below and we will contact you. W...
Pre- ICD Any Advice?
Hello All,
I am new to this site, but have a feeling that we will be here quite a bit. My husband will be receiving his ICD on August 14th. i am doing last minute panic research online. Any advice, do's don'ts. Things we should ask, things we should know? Just know that it will be a Medtronic, that is it.
Taking baby steps, terrified the whole way.
any info, tips, advice, things to be concerned with would be greatly appreciated.
the wife.
ICD and returning to exercise
- by wan_lucky_sod
- 2007-08-08 07:08:02
- ICDs
- 1973 views
- 2 comments
Hi Everyone
I am from Northern Ireland and have Long QT Type 1. I got a shiny new I.C.D in Nov '06 and I have been scared to return to any sort of proper exercise ever since. I was quite active before my diagnosis but after finding out that my heart condition is triggered by exercise has made me very wary. I have the usual fears of leads being pulled out and inappropriate shocks so my question is..... what sort of exercise do any of you guys do? I have started cycling and walking agai...
need to know
- by tallguyjoe
- 2007-07-30 10:07:31
- ICDs
- 1945 views
- 5 comments
Hello there I am a new member would like to know if there are any men who dont like the location of there ICD> Mine is above my left chest and sticks out some. I am a tall 6'7'' guy and really like to work out,. The doctor said I could not work out or play golf or catch for two months. Already dont really care for the way it looks when I wear a T shirt. Question is when I work out will the ICD stick out more. I am not being vain. This is all new to me and would really like to have this question...
New and confused
- by tallguyjoe
- 2007-07-30 08:07:31
- ICDs
- 1963 views
- 1 comments
Hello there I am a tall 6'7'' 39 year old male. Just had a ICD put in me two months ago. My life has changed so much and now I have so many questions. Find it hard to sleep at different times of the day and evening. I am still young. But this ICD is getting me depressed and man do I worry alot now. If anyone can answer questions that I have which is many. Please do.
Need questions answered
- by tallguyjoe
- 2007-07-30 08:07:05
- ICDs
- 1771 views
- 2 comments
Hello I am new to this site. Just did a google search and found it. If anyone is out there who could help me with some questions about this ICD I would appreciate it. Thank you
lightning and icd
- by ferretgirl22
- 2007-07-28 04:07:43
- ICDs
- 3640 views
- 3 comments
hi, I have a bizarre question has anyone experienced problems with their icd after a lightning storm? We had a nasty one that hit a house two doors from mine and caused a huge explosion then fire. Since then my chest has been tight and the icd site has been very painful as if it sending out little electric shocksevery twenty mins or so they only last a second. I went to the hospital and they found nothing on the ekg or blood work. I still feel the pain is icd related not heart but they never lo...
interfere
does anyone know if an icd can interfere with radio equipment I am a 911 Dispatcher
Thanks Denise
relocation
Hi everyone,
Just joined the club. Received my ICD in March, 2007. I'm not happy with it implanted subcutaneously. Hurts. Itches. Gets in the way. In Aug. I talk to the surgeon about the possibility of having it relocated under the pectoral muscle. Have done lots of reading about the pros and cons of the relocation. I've read a few postings from people who are happy with the ICD under the pectoral muscle. I'd really appreciate your feedback. Once the ICD is relocated, I know that the...
ICD WebRing
Would like to hear from all of you. I am starting an ICD WebRing if anyone is interested in more exposure for heart disease.
www.jimsjems9.com/icdring.html
It's good to know I am not alone in my experiences.
JimsJems, Mayor
hometownusa@jimsjems9.com
www.jimsjems9.com/
You know you're wired when...
Your signature looks like an EKG.
Member Quotes
We are very lucky to have these devices.