Most Recent Messages in ICDs

omg the itching

when does the itching stop? it's like a cast and with all my blood thinners it's not a good idea to scratch so anyone else have itching from thier site and how long till it went away? it's been 2 full months I'm hoping once me scar goes fully white it will go away

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ICD

Today makes 9 weeks post op of my ICD. The last few days I’ve been experiencing some pinching sensation around my ICD. Even when turning my neck, I feel the pinching. I would like to think this far out it should be settled in. 

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Possibly having an ICD implanted after my 27 year old sister died suddenly

My sister and i are two years apart exactly (she just turned 27 and i just turned 25). We have both had seemingly random syncope episodes our entire lives. We both have had extensive cardiac workups that showed nothing. She died suddenly a couple weeks ago, presumably a sudden cardiac death as her heart stopped beating for no apparent reason. Everything looked normal on her autopsy too. I went back to my cardiologist and he has mentioned potentially putting an ICD in sometine soon. Even...

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20 year old female with pain

My 20 year old daughter was diagnosed with a left ventricular  aneurysm at birth and followed by a pediatric cardiologist for 20 years. In these 20 years she never had any substantial symptoms (besides some dizziness) that would lead us to believe that her heart condition would cause her any problems in life...until recently. She was waitressing at a small  restaurant in town when she went into sudden cardiac arrest. Luckily there was a first reaponder nearby who pref...

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Jobs

Well I'm back again. Just had my checkup after ICD implant and all is good.  Sorta. Been told I can go find a job but with only half a working heart finding that my options are pretty limited. Nothing too strenuous is quite a gray area. So am asking if anyone can relate and what kinds of jobs can I do. Feeling pretty stressed about now Thanks for any imput, I would appreciate it.

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Pinching & Tenderness 7 post implant

Currently going on 7 weeks post implant. My dominant arm is the left, while at work my arm and around the ICD was sore. I feel that the next morning the implant seems a little more pretruding than usual. Also feel some pinching sensation mainly around top the ICD. Is that normal?

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Soarin at Disney

Has anyone with an icd done this ride!

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Facial burns from shock therapy

  • by LoriF
  • 2018-12-17 05:56:30
  • ICDs
  • 570 views
  • 4 comments

Hello. Has anyone experienced “burns” and bleeding after receiving shock therapy? My device shocked me but it also sent a shock thru my face and lips that left me bleeding and red streaks on my upper lip and cheeks. 😱. I have received one other shock in the past 17 years and it was nothing like this one. I have the same leads for 10 years but just received a new device 3 months ago .

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Tickling feeling in my heart

Hello everyone,

I am new to this site, also to the new journey of being a patient of an ICD. Currently going on 6 weeks of my ICD being implanted.

This has been quite a life changing experience at my age.

Since my implant I have noticed and also talked my cardiologist and EA nurse about feeling some tickles in my heart. They seem to happen when I laugh or move certain ways. Has anyone else experienced this before?

Thank you,

Melissa

 

&...

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Diaphragm Twitch - After Adjustment

Is it normal after installation and adjustment of your ICD to still get the occasional diaphragm twitch? Or, are there people out there with one installed and never get a twitch of any kind?

In the week I've had mine, I always get one when seated (especially at funny angles) and lying down but never standing.

Any advice much appreciated. 

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Home monitor

I have a Medtronic with a home monitor and last night the screen just lit up by itself it has been jus a blank screen before any idea of why it lit up? I have had the ICD for 3 months and the home monitor for 2 months. ICD fitted for VT.

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ICD Fitted 8 Hours Ago - Stomach Spasms

Hi everyone,

Just joined the site after having a quick Google for symptoms. I have just had an ICD fitted literally 8 hours ago and was put in a room to rest. Ever since I have come out of the op, the left side of my stomach / area below my left rib has not stopped twitching. It is now doing hard spasms and will not stop. I can't even sleep because the spasms are that hard. I have drunk plenty of fluid and just took some paracetamol but none of that has changed anything.

They...

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Device Experience

When I got my ICD in 2013 my BP became extremely low. My normal, even when healthy, is pretty low.  I insisted they change my settings (I got ignored until my cardiologist read EP the riot act!) & I had significant improvement. Eventually I was at 45EF up from 20. Now 5 years later I have a new device. I was disappointed to need the new battery so soon but I pace at 100%. 2 years after my great succes, I declined to 35, now a year later I am 20EF.  I am VERY DISAPPOINT...

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Low BP after ICD

CB  please let me know how your appt. goes.

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Lower blood pressure after ICD implant

Has anyone experienced a lowering of blood pressure after having an ICD implanted.  I have a bi-venticular pacemaker/defib for cardiomyopathy probably inherited.  I have had to decrease my COzaar (ARB) by half since the implant, but have remained on the same amout of Coreg (beta blocker).  My resting heart rate is always around low 60s since the implant.  I have feelings of blood pressure dropping occasionally, cut not daily.  Has an implant lowered anyone else's...

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Dentist For ICD

Hi everyone. Just got my second icd (battery change) about 2 months ago. The first one was great, hardly ever felt it. This one is just under the skin, very visible battery and leads etc. I am trying to keep my morale high, and tolerate the pain as well, hopefully it will get better in time(that is what doctors are saying atm)

in any case, I need to go to the dentist for a filling or possibly root canal asap. Most of the previous posts I have found are related to pacemakers. Are th...

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CRT-D removed ?

Can a person have a pacemaker removed?  I’ve had it for 2 years after I refused for a year. Doctors convinced me into getting it. I’m trying to go back to work and I think it will prevent me from getting my job back. My EF is 10 for 2 years now. I go to the gym everyday, cardio with some weight training. I actually feel really great!  

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ICD/Pacemaker

I just joined!  I got my ICD last summer 2017 and this summer got an ICD/pacemaker becuase I have heart failure, afib and an irregular heart beat. I just had 4-5 taps/thumps to my ICD/pacemaker.  It didn't hurt, but I did notice it.  What was it?  Anyone have the same think?

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Boat mechanic

Hi I just got my icd on 10/11/18. I am a boat and small engines mechanic. I’m wondering if I’m going to have to find a new profession. I love what I do so I’m a little worried. Just wondering if other members have the same job - thanks in advance Aaron 

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Flying with an ICD?

Am flying to Atlanta this Friday. First time flying with my ICD. 
A little nervous about airport security - any advice? 

Thanks! 

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Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.