Most Recent Messages in ICDs

Feeling like a big CHICKEN...Help!

August of 2007, I was diagnosed with Congestive Heart Failure(EF-25%) this was after about 4 month with the doctors thinking and treating me as if I had asthma. Wow do I wish this could be treated with just an inhaler...lol. In December 2007, I received a Bi-ventricular Pacemaker/Defibrillator. I am 36 years old and was looking for some support and ran across this website. It has not been the best 3 months with the implant; I have had to go back for surgery 2 more times because my leads con...

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I can't sleep

Ok here it goes, On January 18th 2008 the Doctor placed a Defibrillator in my chest and I had my first shock a week ago. I was young, active and happy with a itte fatigue. Now I am SAD, ANGRY, AFRAID and SORE. If there is anybody out there that help me make through this next hour. I need help.... My family members are helpless and tonight I keep crying and I can,t sleep....

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ICD to PM "Downgrade"?

Howdy,

Wow two posts in one day I need to get a life! ;-) Anyway I keep meaning to ask has anyone ever had an ICD removed an replaced with a PM because over time it was determined that the ICD was never doing anything but pacing the heart? A follow up question is has anyone ever had a PM removed because there heart somehow started pacing normally again?

I'm going to guess no to both as Doctors may never want to put themselves is a position where they might become liable if...

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another new icd member

Well this is my first posting. I got icd planted in my chest on Jan 17 and I have not had any problems. Just itches a little bit around the edges. I have been short of breath for several years of smoking stupid I know. I haven't had one sence Jan 15. The only real question I want to know is does anyone make a remote for this thing, if they do please don't tell my wife she wants one so she zap me like dog with a shock collar. LOL

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ICD&Advanced Medical Directive

Here is an interesting one:
What are the implications of having an Advance Medical Directive that specifies Do Not Resuscitate (DNR) and having an ICD that does exactly that. I realize that the the defibrillator used my EMT's is more powerful and therefore different than the ICD. I'm thinking more about intent. Could medical facility conclude that since the person consented to the ICD that there is a question about their intent and decide it was better to resuscitate and ask questions late...

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IM ONLY 34 WHO CAN RELATE

  • by Heidi
  • 2008-03-11 03:03:19
  • ICDs
  • 1948 views
  • 11 comments

I NEED TO TALK WITH SOME YOUNGER PEOPLE WHO CAN RELATE. I JUST CANT GET USED TO THIS THING AND ALL THE RESTRICTIONS THAT COME ALONG WITH IT. I NEVER THOUGHT I WOULD HAVE TO DEAL WITH ALL THIS PAIN AND LIMITATIONS THAT COME ALONG WITH IT. I ALWAYS THOUGHT THIS WAS SUPPOSED TO HAPPEN TO OLD PEOPLE. WHAT NOW??? CAN ANYBODY RELATE???

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well its done

hey thanks for all the tips i do apreciate them. yep surgery no big deal but not driving or doing anything for 2 weeks is the tough part. I was a cop but now they say i cant do that and shouldnt be around transmiting equipment..or powers tools etc...etc... so what do you do if you cant do anything else..Im not complaining just wondering what is next?????

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lead migration

i had a three-wire pacemaker-defib st. jude unit implanted feb. 18, 2008. at my 2-week checkup, the company reps had hard time finding the pacing feature.
doctor said one of the wires had migrated inside the heart vein and i wasn't getting the pacing feature. i'm scheduled to return to have this lead either pushed further into the vein or removed and have another one put in.
my question: why didn't they fix this problem when i was in hospital? i stayed overnight after the implant. the...

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slow vt?

i am a 51 year old man had an icd for 12 years. Ive had 3 ablations in that time with little or no sucess.The EP says i have scare tissue on my heart from a mild heart attack. i am on sotalol mexiletine and lopressor which seem to be working . ive had my share of shocks over the years,but have been under control pretty well the last couple years. anyway.what im having now is high heart rate under no exertion at all between 100 and 120 bpm. my normal rate is 50-60 bpm .This is not high enough for...

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Scuba Diving with ICD - some errors in information

  • by DP
  • 2008-03-03 09:03:05
  • ICDs
  • 8440 views
  • 2 comments

I found some posts here which I followed up on. They were concerning diving (scuba) with an ICD. One poster had found information from another web site (which I verified) stating that the St Jude ICD was rated to 230 feet (70 meters) of hyperbaric pressure. I called St Judes and they claim 3 atmospheres (which is 66 feet !!).

Perhaps it's not the St Jude device, and another co. has that rating - which I sure wish I could find. The Guardant claims 5 ATA (atmospheres) which is the h...

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Can anyone feel the pacing with a Biventricular ICD

I am about to have a biventricular ICD implanted and was wondering if anyone has any experience with feeling the ventricular pacing that occurs during Cardiac Resynchronization Therapy? I currently have a two lead ICD, and can feel the right ventricle pace. My doctor said there is a possibility that the pacing could be felt, and also that it could stimulate the diaphram. Would appreciate any information you have.

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WONDERING

nyway. I get my defib next week im turn 45 in 2 weeks...anyone have sugestions or recomendations???????/

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My Story (Kinda long)

I had a pacemaker/defib inserted back in 2003. This past December, after receiving the famous Medtronic Recall notice, I visited with my doctor concerning the recall. The office read my pacemaker and there is a particular code that it reads (not sure what it was) and they are looking for a reading greater than 1,200 to indicate that there is a fracture in the lead. Mine was sitting at a little over 400 so I was ok.

On New Years day, just walking across the living room, my defibrill...

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Painful?

  • by ML
  • 2008-02-18 11:02:39
  • ICDs
  • 1622 views
  • 2 comments

I have A-Fib and continue to have frequent episodes of PVC's and I have read that they can lead to vtac. I know at one point my cardiologist brought up the possibility of a ICD. I already have a single lead pacemaker for sick sinus syndrome that does nothing for the A-Fib and PVC's and struggle with this at 41 years old. D/t my age and sensitivity/reactions to many meds, they have maxed on what can be done with them. I am on Flecainide, Verapamil and Fosinopril. For those of you that do have th...

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My Mother's Bloating...?

Hello!

My mother had a pacemaker/ICD implanted last summer, around late July/early August. Her heart has been fine ever since. No pain or complications - period.

However, lately, she's been experiencing some gas/bloating in her upper abdominal area. She's been to the emergency room, her cardiologist/specialist and our regular doctor. They ran about every test you can think of (x-ray, upper GI, ultra-sound, blood work, etc.). Her heart and pacemaker are working perfectl...

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Do i need Defibrillator??

  • by mohan
  • 2008-01-31 12:01:25
  • ICDs
  • 1978 views
  • 22 comments

Hello All,

I got a cardiac arrest 3 year back at the age of 25 and doctors have implanted Defibrillator in my chest. They said the haven't found any reason for the cardiac arrest. Till now they havent found any probelms or shocks or any other irregualar heart rythms after that in this 3 years span. I know it is always good if we have Defibrillator for secured life after the cardiac arrest. But iam not intrested this electronic device in my chest. And also iam playing sports...

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Back Home

Hi Friends,

Thanks for the support, especially those that read and commented to my previous comment. I am back at home with my new Medtronic Maximo ICD that shoul keep me company for the next 8 years, if we take care of each other.

All happened between 10:30 and 12:30 this morning and two hours after I am here sharing my experience with you. My Super Cardiologist also found time to improve the scar I had for the last 18 years and opened 4 times, I am really glad for that.<...

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Tomorrow is the day

Hi Friends,

Tomorrow I am having my ICD changed after 5 years and had been told that the new one will give me between 8 to 10 years, (obviously depend)

Actauly now I am looking forward to go through it and go on with my life as I did after each change, This is going to be my second ICD after three pacers.

Keep pacing.

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What to expect

Hello All,
I am a 43 year old female and was dx w/ Cardiomyopathy
3 years ago. My latest EF was 33-36% and had been feeling great until about 2 weeks ago (SOB and tired). Cardiologist said it was time for the ICD and I am scheduled to have surgery on 2/15.

I am very nervous about what things I can and can not be around and if I get too close to something what is going to happen. I have heard that when it "goes off" it can feel like someone kicked you in the chest. Any...

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Decision not to get pacemaker replaced

Are we allowed to make the decision not to get our pacemakers replaced when the batter wears out? I was asked this by a friend and did not know the answer.

Regardless of the consiquenses, do we have the right just to let it run out of battery and let nature take it's course?

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You know you're wired when...

Your device makes you win at the slot machines.

Member Quotes

I am 100% pacemaker dependant and have been all my life. I try not to think about how a little metal box keeps me alive - it would drive me crazy. So I lead a very active life.