Most Recent Messages in ICDs

St-Jude CRT study

bcme136 , Yes i am in the st-jude crt study.I told the doc as long as it doesnt cost me anything or extra dr visits or trying to make defib zap me they could study me.Wish I could get discount on dr bills for being in study

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tapping noise

hi, can anybody help me please. i have just been fitted with a pacemaker for the first time and while still in hospital could hear a tapping noice in my chest. i told the doctors who had no idea what it could be. they tested my pacemaker and said it was working properly. at home the next morning the tapping noise has started again. i have just been reading on this site someone else with the same problem.
can anybody help please

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Medtronic ICDs

As i look around this site and a few others i have been on looks like medtronic makes junk. Im haveing a defibulatar put in on week from tuesday, I think i will contact my cardioligist and request he not put one of theirs in me. Am i seeing this right anyone have a commment on this. Please please let me know quick.

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Guess im getting a defib in a week

Hello all, just found this site. Ill give you my bio. On July 13,2008 I went to urgent care as i thought i had broncitis, dr gave me some antibiotics, the next two days later woke during the nite not being able to breath, went back to dr he ordered a chest xray as he thought i went into pnenimoia, called and said i had had congential heart failure started me on some heart medicine and water pills went in monday and had a eckocardigram, dr calls wants me to see a cardioligist, friday july 25th ha...

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interesting info on ICDs

I am always researching and found this interesting article on ICDs:

http://www.webmd.com/heart-disease/heart-failure/news/20080903/heart-device-may-not-hurt-life-quality?ecd=wnl_nrn_090308

it was just published today!

Pookie

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my icd feels like it moved..

hi im Cristal, i recently had an icd implanted on July,21,2008 for me it was a little complicated due to the fact i also had to recover from giving birth..=/ yeah i know woo hew, but the thing is Ive been a month with the icd and yet still feel slight pacing not as much as when swelling went down my cardiologist told me i was feeling that because i was just a little extra aware of it..but see now my arm hurts like hell and sometimes i feel like a little stabbing/squeezing in my heart also it mov...

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OK Next Question

Is there anyone that likes their ICD? It seems that everyone hates being defibrillated by it. Does it leave you completely stunned? If you got zapped while driving, could you continue to drive? Is it painful as in ouch or as in screaming agony? Do you eventually get used to it? Is the technology improving so that soon the ICDs may not be so uncomfortable?

The closest I have come to regularly submitting to pain is when I got allergy shots twice a week for three years. At least I knew...

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Excuse me but...

What exactly is an ICD?
Implanted Cardiac Device?
Internal Cardiac Defibrillator?
Is it different than a Pacemaker? I am new here and don't get a lot of the jargon.

Thanks

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Do ICD's restart themselves?

  • by sis
  • 2008-08-28 12:08:32
  • ICDs
  • 1540 views
  • 0 comments

I have had my ICD since April of this year and have been fortunate that it has never went off yet but Monday night I felt something for the first time that felt like 3 or 4 big heart beats that felt like they were coming out of my chest! I called my Doctors office the next morning. The nurse called me back asking how I felt and told me I could come in but I was feeling fine and didn't think I needed to go in. I have an appointment on Sept 10th and just jotted down the date and time it occured...

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One year no shocks

  • by Anita
  • 2008-08-26 07:08:12
  • ICDs
  • 1365 views
  • 3 comments

Hi my son Devin was shocked 8 times in 20mins in June 07. He has ventricular tachycardia and his heart rate goes over 300bpm. We have been going to the Mayo Clinic in MN where the doctors feel they have fixed his tachycardia. He has alot of aniexty and everyday things can be very difficult. He still has his ICD and lives with fear everyday. Just wanted to share our good news with you.... one year with no shocks.... thanks to the good doctors at the mayo... all other hospitals did not give...

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How does rate response work

I have an ICD and have problems with getting the rate response settings adjusted correctly. A small level of activity or road vibration results in my heart rate increasing significantly and I feel pretty awful. Could someone please advise how an ICD works, in particular the sensing of activity and how it increases your heart rate. Thank you

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Road vibration causes increase in heart rate

I have ARVC and was fitted with an ICD approx 7 years ago. I suffered many VT's and subsequent shocks untill last October when I was treated with ablation. Since then my heart rythm has been fairly stable except when travelling along a bumpy road in a car with fairly hard suspension. This has got worse since my pacing technician adjusted the Rate Response, Activity Threshold from Medium Low to Low. She adjusted the setting because I complained that I need a bit more "go" when exerting myself or...

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PM change Aug 19th

Hey. Just wondering if any of you had a PM change yet? Im booked in for mine on the above date n im terrified. If any of you have had this done can you put my mind at rest please? Their not changing my leads just the PM but any form of procedure scares me lol - any help and advice would be great!

Marcia xx

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Exercise, How much & when

Hi,
Thank you all for this wonderful site I visit it a lot and find your messages very inspiring. On 7/7/08 I had cardiac arrest in my local gym. Luckily the staff there had the training and an AED and they revived me. I now have an ICD (put in on 14/7/08 and my cardiologist has told me to continue as soon as I've recovered from the surgery with an exercise program as there wasn't any significant damage to my heart. At the moment I'm walking and I feel great. I would like to go back to my...

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Swimming protection

Can anyone tell me what they use on their scar for protection against the sun.

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ICD's in a factory setting

Hi
I am diganosed with hypertrophic cariomyopathy and have been told for sometime I should have an icd as a preventive measure. I am unsure whether or not to proceed with one. I work in a factory (shipping and receiving) actually it is a foundry. There are coreless furnaces in the building that probably put out somewhat of a magnetic field. I do not work directly with the furnaces but pass by them periodacally.This is good paying job and I don't want to do anything to jepordise i...

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pacemaker change

Hi

Just wondering if anyone else here is in a similar situation to me.

I was really poorly in 2002, my heart failed and i was on ICU. Dialated Cardiomyopathy was the diagnosis i was given. Leter that year i had two ablation procedures performed but to no success. I actually ended up with burns on my back - has this happened to anyone? I then had my pacemaker fitted. I work in a hospital and see my technician around quite regularly, on thw wednesday i asked when she thought...

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Catheter Ablation

My husband is scheduled for a catheter ablation for ventricular tachycardia. His ICD has gone off approximately 5 times in the last three months. Has anyone had this procedure done and if so, what were the results. There will be three EP's in attandance as well as a representative from the mapping company. I am worried sick and would appreciate hearing from anyone who can provide some insight into the procedure. Thank you very much.

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biventricular pacemaker

  • by njh
  • 2008-07-13 10:07:11
  • ICDs
  • 3701 views
  • 5 comments

Hi everyone,

I've had my biventricular pacemaker (a 3rd wire was added to my ICD) for four days. I'd love to hear success stories. Tell me about why you're happy with yours and how wonderfully your life has changed. Thanks!

Tulip

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Thanks everyone

For the responses. My husband has an appointment tomorrow with his EP. He's not had any more events since last Wednesday...knock wood. I wonder if maybe the surgery of having the old ICD replaced didn't aggrevate his heart. And the virtuoso is a much more advanced ICD. I don't know just guessing here, hopefully things will calm down and go back to where we were pre ICD replacement....Cissie

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You know you're wired when...

Friends call you the bionic man.

Member Quotes

I am 100% pacemaker dependant and have been all my life. I try not to think about how a little metal box keeps me alive - it would drive me crazy. So I lead a very active life.