Most Recent Messages in ICDs

New to ICD

One week ago today I had a Medtronic ICD implanted and have so many issues and questions to deal with. The decision for an ICD as very sudden after I died during the EP Study. I would love to speak with someone that has had a similar experience. I live in Staten Island, New York. My cell phone number is (917) 297-3830 and my name is Lorraine. If you think you might be able to help, please give me a call.

Thanks,
Lorraine

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i've been there

Hello everyone
i was 39 when i had my heart attack my left side was blocked 100 percent for about 1 hr, a month later my right side was blocked 80 percent, then i failed my last test and the doctor said i need an icd, boy i felt like my life was over 39 a county job and a icd, well i told the doc i would lose my job because i was a bus driver for Akron Metro Rta, he said your job or life, well i told him who would hire me with an icd, so i had it put in and two weeks later they fired me, wo...

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ICD erosion

Has anyone had this happen to them. My ICD was put in 4 yrs ago. Turns out I had one of the Medtronic wires that was recalled and it started to fracture. May 5th this yr I had a new wire put in. I have been complaining that something is not right from week 4 post op. Six months later I made another appt. with the surgeon who then confirmed that everything was not alright and told me that the skin by the new ICD was eroding. This only happens 1% of the time. Now I am waiting for the date of my ne...

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I am tired of being tired

  • by rjlit
  • 2009-10-16 11:10:11
  • ICDs
  • 1572 views
  • 0 comments

Hi Everyone,
I am new on this board so I don't know if this is the right place to post this but I am hoping someone might have some suggestions. I got my dual PM/Defib a year and a half ago and feel worse after the surgery. Prior, my ej frac was 20% but I was asymptomatic. They think it is postpartum cardiomyopathy and fortunately, I had no symptoms whatsoever. They caught the enlarged heart through an xray when I had pneumonia. I had the device implanted and felt horrible for 3 weeks.....

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children with ICD

  • by Anita
  • 2009-10-06 07:10:44
  • ICDs
  • 1324 views
  • 1 comments

Is there anyone that has a child with an ICD. My son turned 16 Oct 5 . He has had his ICD since he was 13. He had a ICD storm 5mos after he got his and was shocked 8 times in 19 mins. I was hoping that someone might know another child that has same problems. thanks mom

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Exercise

Hi everyone. Have had 2 ablations and a Pulmonary Vein Isolation (last ablation and PVI were a little over a year ago).

Recently I upped my exercise program to a 2 mile walk prior to an 8 mile bike ride. Twice (10 days apart at exactly the same spot during my walk) my heart has jumped from 95 exercise rate to 111 and 116. The last time the happened I had strong PVC prior to the event. The event doesn't last long only about 30 seconds before coming back down to my exercise rate of 95 (...

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help!

Ok,
My ICD is currently under my pectoral muscle.... right under my arm. when my arm moves, the devise does move a bit. Does anyone have this???? Are there any arm movement restrictions?????

When my battery goes a new surgeon thinks it should be repositioned. Above skin and under my collarbone. Will this be better or worse? I considered it under my breast..... but i think that may be a littke too personal!!!!!

Any advice or suggestions!!!

Molly:)

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Cuba Anyone?

Hi everyone! Hope you are all well. I have been reading your helpful posts for the last couple of months and I thank you all for sharing your experiences. My best friend had an ICD implanted in April, and I am trying to educate myself in order to better understand, help, and support him. My question is about travel. For those of us who risk no legal repercussions by travelling to the beautiful island of Cuba, I was wondering if anyone on this message board is aware of how safe it is to travel to...

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Update and thanks

Greetings,

Just checked my email and I'm encouraged by all of the positive messages. Thank you.

I saw the Pacing Nurse this morning and she still cannot detect what is wrong. She wants to give me a router and have me record what my ICD is doing when I feel icky on the way to work. The problem is that the device I have is so new to this practice, that she does not have any to give me. Even if she did, they have not had training on it. That will not happen until Oct 7th.

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antonia vivar

Now that I read some comments from members, I am decided to join the club. I'm sorry that I am a very skeptical person to begin with because I was already burned when I tried to join a club and afterwards, I received a bill for my enrolment.
This is now clear to me that it is not the same as I had experienced in the past.
I was attracted to join because I have this palpitation right after it was installed and the doctor told me that it is the outcome of my activities which is not much....

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High Tension wires

Greetings,

I had an ICD put in my chest on Sept 3rd and I am healing well. I returned to work last Thursday and during my 37 mile drive to work I was having chest pressure, light headedness and had to pant to breathe. When I arrived at my desk, co-workers commented that I did not look too good and I explained that I was feeling "shaky". I called the cardio pacing nurse and she had me come to the office in the afternoon.

The rep for Medtronic was in the office at the time...

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CRT-D

My husband just had surgery to replace his 2 lead ICD with the 3 lead variety in July. He has been feeling better, more energy and most of all NO shocks. One problem has appeared, doesn't it always, his breathing is not as good as it was with the previous ICD. He does have COPD, but has never had a problem being short of breath. Could the new 3 lead ICD be contributing to his breathing problem, he cannot walk around the block without having to stop to catch his breath, he gets light headed and...

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fall clean up

i,was wondering,has any one ever used electric leaf blower,with the defib/pace,thanks

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icd replacement

Hi everyone!

I just found out today I have to have my entire ICD device repositioned very soon. They want to place it under my breast w implants on top of it! im 39.

Has anyone had this or anything similar done????? Would love the feedback. :)

I also have to have lead extractions...... any advice????

xoxo mols

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has anyone had these symptoms from an icd

  • by shar
  • 2009-08-17 02:08:38
  • ICDs
  • 1331 views
  • 1 comments

hi

i'm new here and i am wondering if anyone else has ever had these symptoms after an icd placement..my husband had his placed back in oct, this oct will be a year, he has now been having arm/hand numbness and his finger tend to cramp up..we are wondering if this could be coming from the icd moving and pinching a nerve...thank you all and any info would be great..

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atrial flutter and failing battery

I had a rate responsive pacer installed for bradycardia in 2002. In 2008 a Medtronic Concerto was implanted for crt reasons. At a recent checkup they found left atrial flutter which will require ablation. Most shocking (pun intended) was a radically depleted battery. The EP suggested an ablation and most likely a replacement of the pacer, this after less than a year. This model is capable of mild cardioversion if it senses arrythmia (flutter?). Has anyone had a similar problem?

Antiqu...

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NEW ST JUDE WIRELESS

ANYBODY GET ONE OF THESE YET ? ANY DETAILS ? MY ICD HAS TO BE REPLACED SOON !

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three wire MedTronic

Hi All,
I just had a MedT 3 wire implanted and oblation preformed on the right Atria, I had posted a message about cost a few weeks ago.Because of other med issues my BC insuance is at 100% and looks like they will pick up just about the whole bill. My work is having a fund raiser for me to help with out of pocket expenses ..... With all the encouragment I see on this site and the wonderful brave people that are registered here I feel I can make it .. I thank God for His goodnes in my life...

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ICD Alarms

  • by babuc
  • 2009-07-23 08:07:48
  • ICDs
  • 3167 views
  • 3 comments

Hi everybody,

I had my ICD (Medtronics Concerto) implanted in India in April 2008. After a few months, on returning to Dubai where I work, one morning I heard a sort of chiming sound. Though I looked around, I could not find the origin of the chime. The same repeated for a couple more days, every morning at the same time. On the third day whjile desperately looking for the source of the sound, I suddenly remembered my doctor telling me about the built-in alarm system in the ICD....

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motorcycle question

Should I be getting any kind of reaction from my device while riding my motorcycle????
Thanks in advance.

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