Most Recent Messages in General Posting

ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.


Getting used to it!!

Hi Blake,
Thanks for the new website.You did a great job.I was a bit confused at first but now I have worked it all out!
I love all the "youre wired when" jokes.
Regards from Kay(rewiredaussiegirl)


Help, I need input!

While on Chemo, I was put on Amiodarone for Atrial Fib. After chemo I wanted to get off of this nasty drug. Since then I have been on Propafanone, Flecanide, Tikosyn and 2 ablations, I am at the point of either another ablation (if I have the courage) or a pacemaker with AVNode ablation. The rock and roll effect of the AF has decreased quite a lot, so I am more comfortable, but the energy level and stamina is crappy. I would like to hear from anyone with a pacemaker or someone with similiar...


My Lump

Hi, my name is Paul and I live in Austin, Tx. I just received my device 4 weeks ago (st. jude #365) and its been very difficult. I found this site and viewed some postings and see that I am far from being alone! My device moves when I lift my arm just like the other member was saying....phew glad to hear that. I must go find a job now, although I get tired so easy I am scared. I am glad that this site is here and I wish fellow members a hello and smile. Thanks for allowing me your time. Paul


New, improved website!

Hi Everyone, WOW - this new website is fabulous but I am having a heck of a time using it. I feel very awkward, most likely because I could almost navigate the old site with my eyes closed (exaggeration). It will take a little time to get accustomed to the changes but the site looks very professional and is extremely well done. Great job, Blake!


New Website


To post a message, click on forum and scroll up to post a message. (for those who did not notice it yet) The new format looks nice Blake.



You know you're wired when...

Your license plate reads “Pacer4Life”.

Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.