Most Recent Messages in General Posting

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Nice intro to pacemakers

I ran across this series of YouTube videos that I think might be useful for the club's new members. The cover the basics of pacemakers and some of the terminology.

<https://www.youtube.com/watch?v=gYyED7hz3W4>

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3 years since my SCA!

Today, marks 3 years since my sudden cardiac arrest, at the age of 32. Hard to believe! I'm lucky I survived and I now have my ICD to keep me safe :) This group has helped me a lot along the way. Thanks everyone!!

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Biventricular Pacemaker

Hi, it's been almost a year since I had a Medtronic Azure, model W1DR01, implanted. It's pacing rate is 100% and is a duel lead. A recent ehcocardiogram showed an Ejection Factor 40-45% for the left ventricular. I'm not on any heart meds.

I have an appointment at my EP request to discuss a third lead to the left ventricular, Biventricular pacemaker. I'm forming some questions to ask the EP regarding this procedure.

They are:

1. Can a third lead be added to th...

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2 weeks and a bit fearful

HI all, So I am nervous as heck but i also have a faith that all will be well. I just don't know what type of pm i can or shoudl ask for? Do i need a wedge pillow to sleep on? I have steps going up to my bedroom will that be a concern? I also was curious if it was possible for me to drive to Church ln  2 weeks after? Thank-you. Steven

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Pacemaker recall - Abbott

Hi, Everyone.  Received a letter Saturday that my pacemaker is part of a Class I recall by Abbott.  I am having a great deal of anxiety - feel like a time bomb.  Wondering if anyone else here is part of the recall and how you are feeling? 

 

Thanks.  Kristin 

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Lower blood counts and platelets

Hi,

 

I had pacemaker placement In 2020. I'm not sure how much radiation one is exposed to during this operation. Since my operation I have noticed my white, red blood cell counts, and platelets have been going down. Could this be from the radiation during this operation? 

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crt

hello, very new at this posting hope doing it right, 4 days ago had a crt implant really dont have a clue of what to expect , 

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Small infection treatment

Hello Everyone, Had my PM inplanted on 11/1/21.  Small pimple like spot on end of incision which looks like it might be infected a bit.   Red around edges, hurts a bit and it wasnt before..  The post op instructions  stated no creams or ointments.  Am I save in assuming they meant right after surgery? Since the surgery strips are off, sutures are gone, and wound is closed, would it be ok to put a dot on antibiotic ointment on it?  Has anyone else h...

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Gratitude

Hello all.  Today is Thanksgiving in the US so I'm taking this opportunity to express my gratitude to all of you here, for all you do to support others and share your knowledge and points of view.  You've touched the lives of many people.  Thank you.

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Pacemaker clicking

Boston Scientific U228 implanted dec 4 2019. When I sit at my desk I can hear it clicking (mechanical sound) Not all the time but lasts for a few minutes. I recorded it - I can hear two distinct sounds - the valve gushing sounds and the clicking sound. Curious - Is that normal?

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Curious

Hi, 

im just curious is anybody here in their 20s? I am 23 and I just feel like every one I know that has a pacemaker is much older than me (nothing wrong with that), but I was wondering if I can find friends here about my age and ask how they feel, because sometimes I get very anxious, I just got my PM implanted 3weeks ago (first time). 
thank you

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TRAVEL WITH A PACEMAKER

Just celebrated my second anniversary since having my pace maker installed. Had a recent checkup and was told my battery was good for eight more years. After receiving my pacemaker I decided to live ever day like it was my last.

I recently traveled across the coutry to the southwest and it's many natural wonders and national park. I decided to video my adventure and post it on YouTube, I wanted to get out as many handicapped and senior citizens who felt there active lives...

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Discharged from cardiologist

Had a CRTD implanted in January and it seems to be doing what it should but after a visit to the cardiologist last week I find I have been discharged which doesn't make sense as I , like many on here I guess, have Heart failure ? 

Have they made a mistake or is it normal ? I only know because I was checking on next pacemaker check up which is in May; then they said cardiologist has discharged me. Seems odd although I guess there is not much more the cardiologist can do now I ha...

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Covid vaccine booster

Hi everyone,

I had a mild case of Covid Arm (rash) after my second Moderna shot which cleared up in a few days and as I will soon be due for the Moderna booster I would like to know if there is experience here with having Covid arm after second shot and then getting the Moderna booster shot?  CDC guidelines say you should still get the booster.  I read the previous posts and replies regarding the booster shot here which are helpful.

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Weight Loss & PM placement

Hello all,

Anyone lose weight after their PM & what did you do? Implanted 4/2019. 
I've lost a decent amount of weight over the past year- about 40lbs. I think I was 180lbs when implanted; I'm now under 140lbs. It was mostly intentional- I lost some from ceasing antihistamines, realized I was under 160 last May, cut out most added sugars & picked up my walking. I *may be* still slowly losing, too. About 137lbs.
 

It'...

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Does Cardiomyopathy affect accessibility to Coronary sinus vein

 

Hi, Everyone:

I’m scheduled for  CRT-P surgery in three weeks. I’m 91 years old and had my 4th dual chamber pacemaker placed in March 2020. I have a history of cardiomyopathy, enlarged heart and atrial fibrillation. However, there have been no significant episodes of Afib for the past 6-7 years and it’s no longer an issue My meds include Carvedilol, amiodarone, furosemide, and pravastatin. I also have stage 3B kidney disease which has been stable over...

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I breath hard going up hills

I had pacemaker put in 2015 because I had bradycardia. I am 63 now and have always kept myself in good shape, In the last year or so when I take a walk in morning 4 miles or so I feel good but when I get to a hill I have a hard time catching my breath. I am really having a hard time going up a big hill----WHY.  I otherwise feel fine. It just seems lately I have a hard time catching my breath if I run even for a little bit. My blood pressure is ok.  Does anyone else have this problem...

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feeling heart beat off and Nausea

Hi,

 

I had my Biotronic Edo 8 impant 3 weeks ago.

The first week, even with little pain recovery was fast and I felt great.

I was diagnosed brady/Tachy cardia with arrithmia

After 1 week my heart started racing even resting never dropped 90-100, so I went to the ER.

The PM was checked by Biotronic techs, everything was ok. Dr. diagnosed Tachycardia and started me on 25mg Atenolol. A Inflammation with liquid was also treated with 9 days of Ibuprofeno

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Pacemaker pocket

Its just about 3 months since my dual chamber pacemaker was placed. My first in office appointment is in a few weeks.  
 

My pacemaker never seemed to sit snugly in a pocket. One edge always sticks up. At one point it would flip 90-180 degrees. (Quite annoying.  Now it only flips about 90 degrees and fatty tissue seems to be growing over it and adhering to it.  Is this normal?

They really need to issue a pacemaker handbook!

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Medtronic Pacemaker Members with MyCareLink Relay Home Communicator

Hello Club Members who have a Medronic Pacemaker with the MyCareRelay Home Communicator:  I read the book but not sure if I understand how it works exactly.  Am I correct in thinking that the Pacemaker itself stores data througout the day, when in range of the Home Communicator it transfer the data to it and stores the data until the  date Dr. scheduled to receive it?  So if that is correct, will the Pacemaker itself only hold one day of data and m...

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Your heart beats like a teenager in love.

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Without this little machine, we would not be here.