Most Recent Messages in General Posting

Post Message!

Please post me a message

I posted the other day about my current problems and got a lovely response from a member. But I only got one response. Please read my post again and if you can give me any help, encouragement, etc. please do so.

I have felt really bad all week and just can't seem to get my strength back. Is is gone forever or what. I went up north to visit over the holidays and it was way too much for me. I just can't seem to bounce back. Not that I am expecting to go roller skating or anythin...

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New guy

Im new here and just wanted to introduce myself. I’m a 33 yo Marine that was diagnosed with Long QT Syndrome. I had an ICD implanted in Feb of 07. I found this site while doing some research for myself and have been on it for a few hours reading. It’s comforting to know that other people have had the same question, concerns and things that I have had. Most of the time I feel like I’m on my own. It’s been a long year adjusting to this. I have always been very active and involved in the outdoors....

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Again!

I passed out again today! I am so frustrated! I was doing so well...for the last 6 weeks - since my pacemaker was implanted, I have had hardly any problems...but now, it seems like everything is going down hill. I was having a hard enough time coping with the fact that I have a PM at 23, but now I am having all these issues, and I am having to continuously seek help from my EP. Don't get me wrong, she is an amazing doctor, and I love her, but I know that I must be driving her crazy! I have an ap...

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Genetic Testing

Hi my name is Debbie I have posted before. I have a ICD implanted in April 2007. I have Dilated Cardiomyopathy and Long Q T Syndrome. I just got my results from genetic testing yesterday, they found genetic mutation that has the potential to cause a familial arrhythmia-causing syndrome.(LQT1). I am still processing it all and not sure how to feel about it. I have 3 children that will be getting tested. My son is 17 and I have daughters 5 and 8 years old. Anyone else go through this testing ?...

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About to lose my PM virginity

Hi Guys, well, been waiting 2 months, and I'm 21 hours away (can't stop clock watching) until I receive my first dual chamber PM for 3rd degree AV block at 29 years of age. Just wanted to thank all that have shared their experiences over the past few weeks with me, it really does help in giving you a base of information to move forward. Of course, as a human being with young children I am naturally terrified still but know exactly what is happening and why, which certainly out ways the operation...

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Members list.

Smitty is the Smitty you want.

~ Dominique ~

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Suzy and Rach

A special thanks from me for being such fantastic support, you know who you are - Thanks!
Gary

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anne8486

Please check your private messages. I sent you one...hope it went through!

Theresa

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Pre-PM Symptoms

The sypmtoms that I was experiancing pre-PM are starting to come back. The headaches, dizziness, fatigue - I was completely losing conciousness before the PM, but today I blacked out which has never happened before. I have also been feeling my heart beat very strong, and it feels like it is just sort of flopping around in my chest. Could it have something to do the the PM? I was having really bad chest pains over the weekend, then that finally stopped and now this. I feel horrible again, I am re...

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Does anyone...

Does anyone...
1- Occasionally want a completely and totally normal life?
2- Get treated at the University of Virginia Medical Center?
3- Have congenital heart block or got their PM @ 15 hours old?
4- Know how I get another PM ID card?!?! Mine went through the wash! >:)

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sauna/spa/jaccuzzi

does anyone know if having a sauna/spa/jaccuzzi is ok if you have a pacemaker?
also just to let those who were intereted know how the acupuncture went, i had it done yesterday the neck pain has started to ease already suprisingly and i feel much more relaxed in general which probably helps too, slept soundly afterwards for the first time in ages. i very much recommend it.

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Question

I enjoy this group a lot. I found you on a Google search for recovery from PM. I was feeling quite depressed and second guessing everything. I had my PM implanted on emergency basis and am 100% dependent on it as I have complete heart block.

I am 7 weeks from surgery and feel as if the pm is moving. I have had more discomfort the last few days but just finished driving from FL to MD (ep said it was okay). Have any of you ever heard of a PM dislodging and moving?

Kay

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I Need Some Feedback/Help

I have a St. Jude pacemaker with one lead. I got my original one in 2002 and in November 07 it was replaced with a new one as my battery had run out. My lead was not changed. At the end of September I got really low in strength, stamina, etc. When I was changed out, I noticed a difference right away. The technician told me I am 98% dependant on my PM and my new one should be good for 9-12 years. Another fact is that I am moderately overweight and need to drop some pounds. I will be 64 in...

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cary-58

did you grrt my message? kessie

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cary-58

please go to chat quick jessie

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stop harassing me todd

look todd i want a stop to this and now, you can't go around saying things like that to people, you think you can say anything because you are an attorney. not so. so cut it now or i will involve blake. jessie

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hay river

who is the young man who lives in hay river? my memory is bad for names. do you have a need for mitts? childrens mitts hats etc up there please let us know.also used blankets?

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New Year's Baby

I could give you the whole long verson of the last 2 1/2 years but to sum it up 14 months ago I lost 106 lbs, took me 1 yr to do it, on my own no surgeris! Shortly after I began having proplems with low heart rate 40's but no symptoms.Went through all the heart tests told me all was well my body just needed to adjust. About 6 months ago started feeling very fatigued, cold just coudnt get myself moving, now they said depression. 2 months ago started fainting for no reason would just drop over. 2...

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Chest Pain Update

Thanks to everyone who welcomed me to the site and offered their advice!
I contacted my EP this morning, and she is pretty certain that my pacer is causing the chest pain. She said that it is probably either the pacing that I am feeling, or some sort of maintenance that my particular device preforms.
I often feel it pacing in the atrial lead, but never in the ventrical lead...she informed me that I am probably extememly sensitive to the pacing in that area. I am not so sure though, a...

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HAPPY NEW YEAR

I would like to wish everyone in this fabulous group a very happy new year. I really enjoy this site, and as I have been a pm user since 1987, I am still learning quite a lot. Sounds stupid really being in the medical profession but we learn something new everyday on this site.
Someone wrote maybe last week saying that they have been treated for epilepsy nearly all there life and have only just found out that it is not epilepsy but heart related, could this person please please contact me...

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You know you're wired when...

You have a dymo-powered bike.

Member Quotes

We are very lucky to have these devices.