Most Recent Messages in General Posting

Disneyworld with a Pacemaker

My now 15 year old son had a Medtronic EnPulse E2 DR Series Pacemaker implanted in December, 2005, to compensate for a Second Degree Heart Block. He is about to go to DIsneyworld with the local high school Band/Orchestra/Choir trip. I have my concerns even though his health and checkups have been great since that time. Does anyone have any suggestions/information either pro or con for activities he will encounter in the various Disney parks?
This is my first posting on what appears to be...

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7 Days and Counting

I was shocked yesterday to discover where all my energy went. My handy little St. Jude Identity, which has served me well for 3 years, one month and 2 days, reached battery life on March 8, the very day I became a zombie. I'm now in battery saving mode, which apparently means that if I don't have to walk more than a few feet and take really slow deep breaths (hibernate maybe?), I will last until Tuesday morning when I get a new St. Jude. Where oh where is the Energizer Bunny when I need him?...

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Website Feedback

Hi Blake,

It's been a few days since I last logged on and just saw the new website format today. So I am trying to get acquainted with it.

If I may I would like to share some feedback. (I sent similar feedback to the webmaster address under the contact info, so I apologize for redundancy here).

I think the site looks nice and professional. However, I am already finding it frustrating at best to use. I think it's too complicated and cluttered. There are also some...

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New member, new pacer

Hello to all! I recently had a pacer implant 2/26/2007 and am happy to say that I am on the mend w/o any complications thus far. I had experienced "episodes" that would often involve seizure like activity. One recent episode was witnessed by my son which
scared the living daylights out of him. I had recently changed PCP and mentioned this to him upon a follow up for a back injury. He quickly made referrals to an EP and a neurophysiologist after the results of a Holter. One test led to...

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ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.

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Getting used to it!!

Hi Blake,
Thanks for the new website.You did a great job.I was a bit confused at first but now I have worked it all out!
I love all the "youre wired when" jokes.
Regards from Kay(rewiredaussiegirl)

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Help, I need input!

While on Chemo, I was put on Amiodarone for Atrial Fib. After chemo I wanted to get off of this nasty drug. Since then I have been on Propafanone, Flecanide, Tikosyn and 2 ablations, I am at the point of either another ablation (if I have the courage) or a pacemaker with AVNode ablation. The rock and roll effect of the AF has decreased quite a lot, so I am more comfortable, but the energy level and stamina is crappy. I would like to hear from anyone with a pacemaker or someone with similiar...

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My Lump

Hi, my name is Paul and I live in Austin, Tx. I just received my device 4 weeks ago (st. jude #365) and its been very difficult. I found this site and viewed some postings and see that I am far from being alone! My device moves when I lift my arm just like the other member was saying....phew glad to hear that. I must go find a job now, although I get tired so easy I am scared. I am glad that this site is here and I wish fellow members a hello and smile. Thanks for allowing me your time. Paul

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New, improved website!

Hi Everyone, WOW - this new website is fabulous but I am having a heck of a time using it. I feel very awkward, most likely because I could almost navigate the old site with my eyes closed (exaggeration). It will take a little time to get accustomed to the changes but the site looks very professional and is extremely well done. Great job, Blake!
Sharon

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New Website

Hey

To post a message, click on forum and scroll up to post a message. (for those who did not notice it yet) The new format looks nice Blake.

Millie

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You know you're wired when...

Airport security welcomes you.

Member Quotes

I am just now 40 but have had these blackouts all my life. I am thrilled with the pacer and would do it all over again.