Most Recent Messages in General Posting

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Advice (help please)

Hello my name is Lila 25y and I have been diagnosed with Neurocardiogenic syncope (or some know as Vasovagal syncope) this past fall. They give me some meds to bust my blood pressure and I am not sure it is working. I am mom of 2 year old boy and full time student, I am fine for 2-3 weeks and then I get worse, I blackout few times a day for couple of days or weeks. I just recently discovered that there are pacemakers that can help. lately i been thinking about pacemaker, but I needed some adv...

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Rollercoaster List

I have had a pacemaker since I was 10, i am 27 now, and I am now starting to have some issues... Now days they make alot of rollercoasters with electromagnets..can anyone out there give me a list of rollercoasters that have electromagnets?
Also..I just got denied a tattoo at a tattoo shop because of my pacer, they said I needed a doctors note..grrr..has anyone here had a tattoo with a pacer? Thanks ahead of time for advice and responses.

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cathrynB reply reg. REmodeling

Hi cathryn, Yes remodelling is a term sometimes used by doctors. Bearing in mind I still have permanent AF etc my heart has jumped through a hoop and performed a miracle. This was not expected by the doctors. They are dumfounded by my incredible almost unheard of recovery under the circumstances. They are shocked at how well I look. I do help myself though, ive never smoked only have a drink once a week and get a good nights rest and eat well. I tell the doctors I feel 15 years younger but actua...

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ONE YEAR SINCE IMPLANTATION

Its just over 365 days since I left hospital after a AV node ablation and a bi-phase resynchronising guidant pacemaker fitted. Only 2 leads were fitted as I have permanent Atrial Fibrillation which adding the third lead could not help.(this approach surprised the makers of my pacemaker who were taken aback when I told them the third lead was not fitted).Instead my ventricles only are beating in synchrony between 70 and 120 beats per minute. The decision as to whether or not to have the AV node a...

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Jump or Twitch - Not sure

Does anyone else get a jump or twitch, not sure how to explain it in their upper stomach now and then. Not sure whether it is the pacemaker or me.

Thanks Jules

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As I promised...

Hey, it's me again, here are the other jokes I promised...

An accountant was having trouble sleeping, so he tried counting sheep. But he made a mistake and it took him all night to find it.

A man was pulled over and the police officer says,"Sir, I need you to breath into this breathalyzer for me." The guy says, "Sorry officer, but I am an asthmetic and if I do that I'll have a really big asthma attack." "OK, then I need you to come down to the station for a blood test, just...

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insurance

hello i,am trying to sort out some travel insurance for my holiday in august and would like to know any recommendations of any good insurers to contact thanks

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1st Vacation Since Inplant

Hi All: I'm a Newbie here! I am planning my 1st vacation since inplant (Nov 2007). A friend and I are going to Disney Orlando and was wondering what restrictions, if any, I will have? I have a pacemaker for "on demand" purposes only. Has never gone off since it was done. I am 43 years old, female and not really big on coaster rides, but I do love the water coasters and the "small world" type rides. Any suggestions would be appreciated! Thank you.

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Question about Michigan Blue Shield

My company wants me to re-locate from BC Canada to Michigan. We have a group plan down there with Blue Cross / Blue Shield - but we just watched Mike Morre's "Sicko" movie and (of course) now have a few concerns - particularly about "pre-existing conditions".

I've had my PM now for a year, only pacing .4% of the time (!!!) so everything looks good at the moment.

My wife has Macular degeneration in one eye, so requires monitoring by an Optomologist every year.

Ca...

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our new cat

hi we have a new member of our family. he is male . he is two years old. he is a scottish fold and he is a beautiful orange stripe with matching orange eyes. his brother lives accross the street. his first breed came about in scotland in the early 60's since then they are a very popular cat to adopt. he is passive gentle.he takes time to blend in but when he does he is yours forever. he is very very affectionate. ours is named buford. he already had the name . my brother remembered the movie in...

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Pregnancy with Pacemakers?

I am a 22 year old Female and haven't met too many younger people with pacemakers - I am still in the pediatric ward at my hospital so haven't felt too comfortable asking my doctor but have always been curious if there are any major risks or complications with pregnancy and having a pacemaker. (I'm not pregnant but it would be nice to know for my future).
I am 100% dependent on my PM.
Any advice or personal stories would be appreciated :)
Thank you!
-Angie

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Sugery

I am a little scared because on May 7, I am having surgery on my knee, torn medius. I have not had surgery since my pacemaker in 2002. I have never been scared about going under, but I guess its the pacemaker. Some advice...

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I am blown just blown away.... :-)

I truly am so blown away by everyone's wonderful, kind and inspirational messages about my recent news of the opening of my new PR/art business. I am so happy and so very thankful for the blessings in my life. I can't hardly believe it myself. It really is a dream come true. Today I spent most of the day reading and planning and then I went to a party with some friends. It has been a great day. Thank you each and everyone for being a big part of it. Your support means very much to me. Peter...

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Anybody want to chat?

I'll hang out in the shat room for a little while.

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non-commercial vs commercial

Has anyone here had any problems flying in a non-commercial airplane? I'm getting ready to fly in one of our helicopters for the first time since my implant and I'm kinda nervous. I have been in the plane a lot with the engines running and the rotor head turning with no problems. I don’t think there would be a difference between flight and the ground except static electricity but, I'm no rocket scientist. Any experiences or info would be great, thanks in advanced

Billy

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Just saying hello to everyone..

Let us all continue to pace in grace. I'm sorry I haven't been posting much. I want you all to know I'm feeling better, but, every day is a new day to be thankful for. I wake up in the morning and touch me chest to see if my heart is beating.:0)
Thank you all for being my family of hearts. May you find happiness in all that you do. Let us have a great spring and an awesome summer. God bless you all.

Christmmpace
James



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Hi Everyone

Hi everyone, this is my first post. I've been a member for a little while now and have really enjoyed the postings and words of encouragement I've read.
I wnat to Thank Jessie for writing and welcoming me to the club.
She found my story interesting and thought you mihgt too.
Last year I was diagnosed with 3 congential heart defects: Ebstein's anamoly, an associated ASD, and Right bundle branch blockage. All of this was strange for me since I was 52 when they found my "birthdefec...

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Life after pacemakers

Well, some my have noticed that I have not been very active her at the PaceMaker club recently. I have a good reason. I have been very busy making some changes in my life. An opportunity had presented it's self, a life changing opportunity and I had to make some serious decisions. A little bit about myself first... I have wanted to start my own business for a very long time.... Well, I have realized that dream! I have started my own business! When I had the emergency dual pacemaker implanted...

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chat

blue i am in chat. jess

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lead wire recall

i just got a call from my lawyer that congress passed a law for the recalled pm and defibs that the companys are not responsible for the bad products that they make
So i guess we got to live with thier mistakes and errors my machine has been broke since oct 13 07 and i had numerous trips to hospital and doctors office and addmitted 3 times so far for their mistake bad lead wire I'm going in with in the next couple weeks to get my pm and defib removed becuase i don't need it any more. my h...

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You know you're wired when...

Your favorite poem is “Ode to a Cardiac Node”.

Member Quotes

I am a 58 year old woman, race cars, ski at 13,000+ feet, work out daily, have become a second-degree black-belt in Karate, run a business - no limitations.