Most Recent Messages in General Posting

pacemaker removed may 1 2008

hello I just want to let everyone know that tomorrow is the big day i go to lincoln nebraska and my doctor miller is removing my pacemaker and defib for good i . i have a broken wire from the recall my heart % was under 10% now it is over 45% the normal heart is 50% they say and since it don't work I decided to get it removed I had it since december of 2005 and never had a issue with it except for when the wire broke and it went off 14 times
I know there are not very many people that has t...

Read More...

any help??

hi guys i know you all probably think im insane but i need some advice im not sure if its related to my heart so just need general advice.
i get headaches and dizzyness frequently i white out but not completely faint and have blacked out. i feel light headed constantly. i get twinges in my head which make me blank out for a milli second i also get a warm sensastion in my head that feels as if something is leaking.i then get flushed and dizzy.i had an MRI scan about 4/5yrs ago due to constan...

Read More...

farfield??

hi guys hope you are all well.. wondering if anyone can help me???
i had my one month after implant pacemaker check up and i told them i was still feeling very unwell and dizzy so the meditronic reps came in and did the check up. i heard them disscussing that they could see FARFIELD on my graphs what is that?? as stupid me forgot ask please help really want to know what that is.
thanksxxxxx

Read More...

On seeing the gallery

Please forgive my ignorance. I just logged on yesterday for the first time in a long time after the e-mail about the pulse, and I went into the gallery, looked at the pictures and cried. I have been looking at you and reading post all day long. You people are all so young, vibrant, and well so normal looking. I expected more of you to, well, be older, sickly looking. I always thought that the need for the PM was for the older generation. I hope I did not offend anyone. Let me vent if you...

Read More...

Rate Response

Hi All,
I've been reading this forum for quite some time now and was very interested in the postings about Rate Response.
I have had a pacer for a very long time now and the rate response has always been turned on. Yesterday I went for my clinic appointment and mentioned I had been reading about it. Well, guess what? I haven't needed it turned on all this time, so off it went. So far so good! I am hoping that it will now help with the shortness of breath and arrythmias I get wh...

Read More...

more "cable" than before......

I am 9 months post biventricular ICD implant. - Today I did a great deal of strenuous work - (I'm moving.....) tonight I noticed it feels as though there is more "cable" around the unit than before - as if I pulled it from somewhere (under the device?) by lifting and hauling so much. The area is tender (it always is when I push myself hard) - since mine doesn't regulate my pulse I can't tell if it's otherwise doing it's thing - (keeping things in synch - ) or not. Has any one else ever ex...

Read More...

changing the pace

hi everyone

i just wanted to know if anyone has had the same problem as i have. I went to the doctor recently. I actually met the doctor who created/invented the software for our pacemakers. He changed the rate to go faster when I do extra activity. When i greek dance or go up the stairs or anything that requiries heavy activity I tend to get shortness of breath to the point i couldn't breathe, i felt my heart was going to burst, it really hurt and i felt my heart out of sync. I haven...

Read More...

Warfarin for atrial fibrillation

I know this is a question I need to ask my doctor, but until I get a chance to ask, does anyone know how long people generally stay on warfarin (Coumadin) for afib? I had one episode of afib in December. As far as we know that was the first and only episode we are aware of. (My pacemaker event recorder has not recorded any since that one.) How long would I need to go without another episode before they might consider discontinuing warfarin?
Vonnie

Read More...

Just a little helpful info I hope

I do quite a bit of studying on the chemical workings and nutritional needs of the heart and body and just thought this info might be helpful to some. This is taken from a book titled "Reverse Heart Desease Now" written by a "new cardiologist" named Dr. Stephen T. Sinatra:
"Every cardiologist should be interested in the following benefits of fish oil:

Decreases Lp(a), triglycerides, and blood pressure

Increases HDL

Reduces arterial wall inflammation

Read More...

Digitek

I am sure some of you are on the drug DIGITEK. If you are not aware, it has been recalled. Check with you Pharmacist, your Doctor, go on-line at www.actavis.us or call 888-276-6166 for more information

Read More...

Congrats!

Hello! I just want to say congratulations to CathrynB for making the newsletter! She is a great friend and she deserves it 100%! Just thought I should say that, and to everyone, have a nice day!

Sydney

Read More...

Care Link Home Monitor

Where do I get information on the CareLink Home Monitor? Is it similar to the telephone pacemaker telephone check which I was issued at the time of my PM implant.

Sharon B

Read More...

Pacemaker turning

Hello everyone, I was wondering if anyone has had problems with there pacemaker turning on its side? Mine does this from time to time i have mentioned it to the dr's and there sems to be no concern i would think it could turn totally around and dislodge the wires maybe i am wrong but was wondering about this...thanks

Valerie - mytrose44444

Read More...

pacemaker information

My Dr. has suggested that I see a Cardiac Physician regarding a pacemake because my heart rate is too low to suit her. If the Cardiac Dr. says I need one, what is the cooperation period involved with this procedure?

Read More...

Pacing Sensation

Over the last couple of weeks I've occasionally noted sensations of pacing. Always just a kick or maybe two and they seem to be entirely random. The feeling is identical to the kicks (but lower in intensity) I feel when the EP cranks up the PM voltage during periodic tests. I'm approaching my 5th month after implant and it seems odd that I'd suddenly begin feeling these. They are not painful and really not much of a bother, just a bit odd. About the only function of my PM being used is a lo...

Read More...

Thanks

thanks everyone for your comments i think i will return the bracelets and find something a bit safer,my dr started me on celebrex so hopefully that will help,also i did say on the bracelet package not to wear if you have a pm/df so its best to hede this warning..once again thanks

VALERIE mytrose4 4444
this is a wonderful site with wonderful people

Read More...

Camp for kids with PM

I'd like to respond to the message sent requesting information about camps that are offered to kids with PM's. The hospital for Sick Children, which is located in Toronto Ontario offers a summer camp to kids with Pacemakers. The camp is open to children that are pacemaker patients at the hospital. It is fully staffed with doctors/nurses etc, and is a great opportunity for the children to meet with others with similar medical concerns....and just to give a little info on the hospital, "Sick Ki...

Read More...

battery replacement

Have had my pacemaker since 2001. I am due soon for a battery replacement. Does this take a stay in the hospital. Would appreciate info from others. The pacer is working fine!

skwimgal

Read More...

Sick Sinus Syndrome.

Hello all. My name is Brian and I am 25 years old. I have always been an active person, however lately I do not have enough energy to stay awake for an entire day. About a month ago I went to the doctor with nasuea, while I was there they found that I had a low pulse. I had several EKG's and all revealed a low heart rate. I have also had two echocardiograms which show my heart as healthy just slow. I ended up in the hospital with chest pains and was admitted for 3 days. While there and being mon...

Read More...

Military Service

Hi my name is Scott and I am 27. I have had my pacemaker since I was 18 and have had one Pulse Generator replacement. I was born with a complete heart block.

I have been disappointed that I have seemingly been blocked from military service due to my device, and here and there I read all of these stories about military folks with pacemakers. What gives? Also, recently I found out I may not even be allowed to become a police officer with my pacer :(

Does anyone have advic...

Read More...

You know you're wired when...

You have a $50,000 chest.

Member Quotes

Thank you technology! My life is much improved.