Most Recent Messages in General Posting

New to Club

Hello, everyone. I am new guy with new lease on life. Two weeks ago had a Heart Block. AV. New PM in chest. I have little info about experience with my new device. 70 years old with no prior history of heart problem. I want to thank you all for being in this club and sharing your journeys with me. Thanks Slowbeat.

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Scar treatment

Since I have had 3 pacemaker operations since January 2020- 

I now have a new third scar along with 2 smaller scars. Previously I used Bio oil. A friend recommended Dermatix silicone gel for scars. I wonder if anyone else has used this or something more effective than Bio oil?

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Changing EP

I have had my PM for several weeks now and I’m thinking of changing to a different EP.

Once my primary started the process I felt caught up in the current and was just along for the ride, but now that it’s done, I’d like to explore other options.

The EP that did the surgery is part of a particular hospital that seems to be old and antiquated, not to mention that it’s some distance from my house.

The Doc. himself is good but I’m a little tro...

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Echo Question/thoughts

I would like to get a little feedback on my situation. I have had my PM for 35+ years and seeing the same cardiologist/EP since 1998. I think that I had an echo sometime back around 2006-08, but not exactly sure. The result was at least 50+ back then, but I don't have my records in front of me. My point is that it was in the normal range. My cardiologist just never sent me for another one and it never occurred to me that I should ask him. So I didn't get another until last year (2021)...

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Abbott Aveir dual chamber leadless pacemaker

Hi group,

I"m scheduled for a dual implant of the Abbott  Aveir dual chamber leadless pacemaker this coming Wednesday.  I'm curious if anyone on the board has participated in this clinical trial and relate their experience so far.  Regardless I will report back with short term and medium term results.

Thanks

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Sotalol

Hello anyone on sotalol that experience weight gain due to water retention from the medication ? If you get water retention you gain weight I assume will this change over time or just keep going up ? 
Annette 

 

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My son

My son has a Medtronic pacemaker 2 leads.  His cardiologist wants to do an echo to see the efraction ratio. He said that if it's under 50 they will need to put in a third lead. I don't understand why the efraction ratio would go down and is this life threatening? Does anyone have any advice! 

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some news - and rather good

Hello members

Haven't been around for some time.

I had a check-up for my CRT-D last week.Thought I share it with you guys here.

(CRT-D Was implanted in Feb 2021 after severe Heart failure had been diagnosed in Nov 2020:  severely dilated left ventricule EF at 15 % and  lung oedema)

The EP doctor said that my heart is responding very well, and seems nearly back to normal. EF at 45.

All the genetically tests (72) came back négatif. So they stil...

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Thinking over... no response required.

Two years ago I had a PM implanted. A month after that I had a  cardioversion to reset my heart rhythm. Six weeks ago I had a series of ablations. I can see the mistakes that I've made that caused my heart to get worse. Throughout my life doctors would mention that I had an irregular or a premature heartbeat, etc. Than the docs would go on and talk about my sore knee or injured foot. Only once, after a high altitude run and a nagging (first) wife did I have follow up o...

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Aorta Stenosis

Hi therre.  Just got the results today from an echocardiogram.  It has been 3 years since my last one (due to Covid) and my EF has dropped from 67 to 49.  Apparently I have aorta stenosis and will be having an angiogram in the near future to see how bad it is. My cardiologist said it will probably end up with a valve replacement surgery in the future.  I have had my PM for Bradycardia since 2016 and I thought all was going well.  I am an active 81 year old f...

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Anyone else w/ 1st PM for SSS, bradycardia - now PM picking up V tachycardia incidents?

Got PM 10/6/21.  Since then, PM has picked up V tach incidences (longest 12 secs while sleeping).   Just received cardiac MRI results, no scar found so that is not the cause.

I'm curious, maybe I've had these all my life (or part of my adult life) & thought I was just dizzy or hypoglycemic at the time.  

My EP just started getting regular transmissions from my Medtronic Carelink app.  Will meet in June to discuss options.   Lucki...

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I watch 7 pacemaker

Does anyone know if the Iwatch 7  EKG app will work if you have a pacemaker? I know my Kardia  does not work with the pacemaker I'm wondering if the IWatch is the same.

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ar_vin

May I respectfully remind you that this is supposed to be a support group.  Any openly hostile, ridiculing remarks made by you towards other members in the future will no longer be tolerated and will always be removed.  How another member’s “genuine” distress can cause you such “hilarity” beggars belief.

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Pacemaker now set at 70

I am a 68-year-old male with a fib but also had a three lead pacemaker inserted about six months ago. I got Covid,eventhough I was vaccinated, and some doctors think that it blew out my electrical system.  I have Complete heart block I am I am 100% dependent on the pacemaker.

My pacemaker was orginally set at a low end of 80. And my heart stayed  that way pretty much all the time unless I try to exercise it'll go to 115 120 which the a fib makes difficu...

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5 years after implant:

In 5 years I have had two incidents causing my defribrillator to fire and re set my pace. The first time, I was driving, I had little response time as I cried out to my wife: I am passing out........................ I woke up to the car careening to a stop with mahem all around. I passed out at the wheel and  was struck by a motorbike speeding down the wrong side of the road. I easily could have avoided the idiot, but whammo. The car was totalled, but I was alive. The 2nd time was 1...

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Diagnoses

A little frustrated here.  My mother is 85 and has an enlarged heart.  She has a left bundle block and some leaky valves. She had shortness of breathe last year so her internist did an echo and ekg.  They saw abnormalities and started her on meds and said maybe crt.  What is normal procedure to diagnose this.   She saw a cardiologist who said he wants to figure out what caused this, probably ischemia.  Another Dr. said leaky valves....

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Had my CRT-P fitted 9th May 22

I have paroxysmal AF which has become resistant to drug therapy and I am at the beginning my Pacemaker journey and wanted to send my thanks to all on this forum. The practical information is really useful as I was starting to think I was being a total hypochondriac regarding my pain levels. I do not have mild discomfort. I feel like I've been stabbed, which of course I have. It's sore. My heart feels like I've been kicked by a horse and It's definitely more than discomfort! Ap...

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Crt

My mother is 85 with stage 3 heart failure. HFrEF She also has a left bundle branch block with some leaky heart valves.  I was looking into crt for her.  She has shortness of breath mainly and is starting to get more tired when she walks.  I was wondering if any one has a similiar condition and had CRT.  I was trying to see how successful the procedure is in improving symptoms, and how difficult going through the procedure is, and if there are complicat...

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Tired

My pacemaker was installed in 2018. So I have had it awhile.  I am on a monitor checked every 3 months, in which I am charged $$ to have the monitor say its doing its job.  I don't think it monitors me. 
I am totally dependent on my pacemaker.  Recently I get warn out, where I just feel exhusted and would want to sleep.  Is this something I should concern my doctor office of? 

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trying to join this club

I will be needing a pacemaker soon and am trying to become more educated about how it will change my life going forward.

I never received a confirmation email so have not been able to complete the joining process.

Can anyone help?  jimc1849@gmail.com

Thanks

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You know you're wired when...

You trust technology more than your heart.

Member Quotes

In life we have to consider what is more important, the loss of the vanity or the gain of the life.