Most Recent Messages in General Posting

New Pace Maker

Hi...I will be getting a new dual chamber pace maker Wednesday.  What changes should I expect immediately ?  Hopefully more energy, less shortness of breath??   My current heart rate  is 48 to 51 average... Holter showed range of 39 to 100..Am I expecting too much??

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squishy lump

I recieved a new pacemaker last week because my previous one (of 10 yrs.) was just too irritating. I'm thin and the connectors ends would feel like they were poking through my skin. It was implanted slightly higher than normal. My new Dr. agreed to replant a new one, slightly smaller than the current one and put it a bit further down and also suggested using a pouch to pad it since I am thin. OK, its only been 11 days but this thing is so bulky. I think he implanted on...

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Carotid Sinus Hypersensitivity

Just got my 1st PM (a Medtronic Azure XT DR MRI SureScan to prevent sudden cardiac arrest from Carotid Sinus Hypersensitivity.

This is a relatively rare condition most affecting aging males that is beginning to get more attention as the Boomers age. But there are lots of unanswered questions. 

Anyone out there with the condition and experience who would like to chat? I have some info and some questions.  Using the search tool for the subject, I found only two souls...

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Ejection fraction

Since I had my pacemaker implant and av node ablation earlier this year, my ejection fraction has dropped from 51% to 41%.  Has anyone else had this happen?

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Sharp, Fast Pain

Today is 1 week post crt-d implant. Healing has been steady and on track. 

Today I had a really fast sharp pain that felt like it originated in the center of my chest and shot across my right upper chest and then it was gone. It lasted all of 1-2 seconds. No other symptoms noted.

I'm thinking maybe it was a muscle spasm or part of the healing process. But my mind goes into overdrive and I start to panic and think the worst...Does this sound like anything serious???

...

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Daily sensations from my Pacemaker

At the age of 69, I had a Biotronik dual chamber Pacemaker implanted about 10 months ago. Every night at around 11.00pm, I feel a sensation in the region of my Pacemaker which lasts for about 5 seconds. The Pacing technician at my hospital advised that this is most likely to be the pre-programmed impedence testing by the Pacemaker. He said not all Pacemaker receipients feel the daily test. 

Has anyone else experieced this sensation and if so can they share their understan...

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A BIT TMI

So had my pacemaker put in 2019 of end of March had to go back and change setting a few times even did tredmail test wich was the last time it chcanged ok so long story short when I have sex or self pleasure my hart rate switches to really fast like 106 when I was like at 70/80 if I keep going I feel strange and as it starts racing it has skips but still racing fast  it’s not only sex but working out this can happen to idk if this is rate response that needs to still be adjusted or...

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is it fair?

I love my Cardiology team. Actually interviewed them for the position 12.5 years ago and been with them ever since. Their philosophy and approach matched my goals, ie quality over quantity. Never regretted the decision but recently I've begin to wonder if my best interests are still number one.

During a recent visit, I discovered the office had a pool going on when I would finally give up. Here's the kicker that really concerns me...they won't let me get into the pool. They...

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Need reassurance

Hi, I am 42 F and am due to have a pacemaker fitted in 3 weeks. I’ve always had a low HR, currently resting rate is 42-44 with dips to 35. Top end Hr can go above 200 when exercising. When it drops below 40 I sometimes feel dizzy, not always. I’ve fainted maybe 4 times in my life, usually when I am ill.

My Cardiologist thinks I need a pacemaker, but is a little concerned about my age. I am not convinced. I’ve never known any different so I can only see t...

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Single Chamber Pacing

A friend has a single lead PM. Wondering with single lead Atrial pacing, Could dr see on PM transmission if bottom of heart AV node etc is working as it should 🤔.

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Pre-Op anxiety and what to expect after ?

Hi Guys, 

I'm 27 years old and am due to have an ICD fitted in 48 hours. My anxiety levels are through the roof and made worse by the fact my farther passed away from the same condition at a young age. 

Does anyone have any advice for how to deal with this anxiety, perhaps subject focused books, videos etc ? 

Additional does anyone have any recommendations for the recovery period. I'm very active and would like to be out walking and perhaps on an exerc...

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Low heart rate

Posting much information to explain condition. Enter hospital three months ago. Low heart rate (30’s) 3.6sec.pause with pvc’s bradycardia.

I had surgery( electrophysioligist)does an ablation(pvc’s) and pacemaker same day. Pacemaker set for 80bpm . After three weeks, pulse reads 80 each early morn. And dropsto 50’s and stays there rest of day even when doing yard work. Why doesn’t pacemakerraise pulse to my working heart rate? Do you feel that pacemaker...

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Medic alert advice

I'm intending to get a medic alert 'thingie' -- I reckon the combination of 100% PM dependent + anaphylaxis of unknown origin with Epipen + rivaroxaban + Advance Decision makes it sensible. (Might also add in some stuff about MRI with the PM if I can ever get a straight answer about it... Yes/No/Maybe doesn't really cut it but I'll ask a separate question about that.)

My dilemma: I've been told that wearing the alert on the wrist is the best option and to be fran...

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death

I'm sure some others here have contemplated their eventual demise so maybe this will benefit others.

Since I have no prior experience with dying personally, a lot of questions about the forthcoming adventure are arising. Anybody have answers?

- how long do I have to live with dying

- will my Merlin monitor work from where I'm headed

- is this a one way ticket

- can I get an upgrade to first class

- is there a charge for being overweight

- what...

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Water softners

Ok have a question on water softeners. We need to get one due to hard water I hear these ore no good for someone watching their sodium intake. Does anyone have on to share their experiences with it ? Thanks

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Diuretics

As time winds down questions about death are popping into my head. Here's an important one

Does anybody know if there are rest stops on the way to the hereafter or should I forgo my diuretics (pee pills) on that fateful day?

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Toothbrush scare!

I have just bought a Philips Sonicare toothbrush. On reading the instructions I was startled discover that  I should cntact my 'physician' or the manufacturer before use.

This is because it has an elctromagnetic field. 

I am a bit annoyed that this was not mentioned on the website from which I bought it (Amazon) . 

Has anyone else got one of these items and  what  did your physician or manufacturer  say  if you contacted them?&...

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new pacemaker

hi, I have just had a pacemaker fitted on Tuesday and sent home yesterday.  It all happened very quickly as I was diagnosed with heart block and admitted urgently for this as I had 2 blackouts, dizzy every day and breathless.  I didn't know anything about pacemakers before and so don't know what is 'normal' after surgery, or something I need to call the doctor about.

In the past I suffered slightly from sleep apnea [not diagnosed but my husband noted the s...

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Pain in Pacemaker Area

Hi there, I got a pacemaker implanted when I was 18 due to complete heart block. I'm now 21 and after getting a few changes to the settings of the pacemaker, I've noticed I have a lot of pain around the pacemaker site, it feels like muscle pain but I'm not sure, why would this happen? 

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21 year old non-congenital heart block

Hello,

I am a new member and wanted to share my story for anyone who might relate or benefit from it. Last December of 2018, I was diagnosed with non-congenital complete heart block at the age of 20 with the only symptoms of extremely low heart rate and constant fatigue. By February of 2019 I underwent pacemaker implant surgery as symptoms were beginning become more severe. The cause of the heart block was never found byt since my surgery, I have felt 100% better with more energy and a...

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Member Quotes

So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.