Most Recent Messages in General Posting

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Vaccine

Hello,

 

Happy Holidays!

Wondering if anyone has spoken to their cardiologist yet about the vaccine.  I realize everyone's case is different, but wondering if there is a general consensus.

Kristin

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I got a new toy

Hello everyone,

You may have read my recent post in which I said that the Energizer Bunny had died. On December 21, after 10 years, I got a new pacemaker. Two days later, I received a box from Medtronic. It contained one of those SmartLink remote monitoring devices. I had a few things on my mind, and I just put it under the Christmas tree.

Naturally, I opened the box on the 25th and set the whole thing up.

I AM IMPRESSED. Things have certainly evolved...

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Irritating leads

Hello I have a question 

I feel that my leads are irritating my chest bones the lowest bone part at the heart area when I sleep on my side sometimes I feel like the leads are moving on that bone and it feels like cracking a finger is that normal?

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Pacemaker Listed as Bluetooth Device on Computer, Phone,,Car

My daughter had her pacemaker generator replaced this past summer, and now has a Medtronic Azure HR. She has it paired up via bluetooth with a wireless Medtronic monitor that lives on her nightstand.

She mentioned that recently she began seeing her pacemaker listed with other "available" bluetooth devices on her laptop computer, her phone, and it even shows up on the radio screen in the car ( with the phones listed as available). She says this happens intermittently, sometimes...

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Flecainide

Has anyone else had flecainide cause tremors? I have developed tremors over the past two years and I looked up flecainide and it appears to me that one of the side effects is tremors but my doctor disagrees. So I was just wondering...

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Crt

73 years old with a dual chamber st Jude pace maker, installed almost 5 years ago. Pacing continued to increase to reach 100% on the ventricles. Have now been pacing at 100% for 2 years. An echocardiogram shows decreasing EF, less then 50%  some shortness of breath but still can do everything. Cardiologist suggest CRT , biventricular pace maker upgrade. Has anyone had this done? Cardiologist said only issue may be having enough room in the vein to add another wire due to scar tissue...

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Scar

Someone tell me when I can begin using scar patches to minimize the scar. I'm out about 3 weeks and the wound has healed but it is ugly. I am tiny and would love to make this look a little better. The food news is so far it's working. 

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Subwoofers

Hi there, 

I just bought a new sound system for my house and I noticed that if the subwoofer is on it feels like my pacemaker is oversensing. As soon as I shut it off I level back out but it's a very uncomfortable feeling and so I am wondering if this is a normal thing or if I should avoid it? It also happens in my car with songs that have a lot of bass- even with the volume lower. 
Not sure if it matters, but I've got the Micra AV implanted so there are no leads....

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Spider Veins Over Scar and Leads Moving

I had a CRT-D implanted mid November. In the last few weeks I noticed spider veins appearing over my scar.  Is this normal? Is there anything I can do to get rid of them? They're very unattractive and I typically wear tank tops during the summer months.

The last couple days I've been having aching pains on the left side of my chest as well as some tenderness. This morning I felt the bottom edge of my implant and it feels different like one of the leads has moved and is now...

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Sharp pains in heart months after placement

Anyone get sharp pains in heart almost daily months after getting your pm? Should I be worried? It isn't angina. Its sharp and  right inside the left nipple.

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hair transplant

Hi, i was just wondering if it would be safe for me to get a hair transplant. I have  been on elliqus for my pacemaker along with flaccinide.  Has anyone had a transplant with a pacemaker. 

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BP and HR monitors

So I'm trying to get off of BP meds and monitor my HR. Problem is that I can't find anything that will accurately check my HR because it either detects paced beats or doesn't detect paced beats. I cannot manually feel my pulse. No one in my house can. Even with a stehtascope. My BP monitors don't always detect beats so they error out saying low HR. I'm in an endless loop on both. I really don't want to start taking medicine if my HR isn't as high as I thi...

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Tattoos

Hi, I'm 38 and I've had my pacemaker for a year and a half. I was wondering if I was able to get a tattoo? I have a BioTronik two lead device. If that makes any bit of difference. 

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What would you do? dating and heart devices

Hi, 

I hope everyone is doing well. Backstory: I am dating a person, that I am slowly starting to really like, he's spontaneous, fun and shares my love of bike riding - also, he works in medicine. As we get to know each other, intimacy seems like the right next step. Question: should I tell him about my device/heart condition? or let him ask about it - as he will see my scars. I am not embarrassed about my scars, I don't see them as a big deal, but I don...

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basic question about rate-response pacing

I have AV heart block and I'm getting an ICD Tuesday (ICD because of likely sarcoidosis diagnosis).

I'm confused about when the rate-response features of a pacemaker come into play. My understanding from my EP is that I have normal sinus node function, meaning that the pacemaker function of my ICD will just be following along with the rate set by my sinus node, which will vary according to exertion level, emotion, etc., as usual.

I understand if you have a sinus...

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Echocardiogram

My cardiologist has ordered a echocardiogram for me this Tuesday morning I'm a little nervous as to what he will find but I think it could be chf and I  don't know how they would treat that ? A bit worried here.

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Snow shoveling

I had my 2 leed Metronic Pacemaker installed in July. We are currently in the midst of a snow storm. I'm 63 in good shape. Will shoveling be ok to do?

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Violent heart throbs when crouching down

Hi All, I had a dual chamber PM inserted two months ago after being diagnosed with vasovagal syncope due to sick sinus syndrome.  All is going well, apart from the following:  Whenever I crouch down or bend over my heart feels like it wants to explode.  It feels like my heart is throbbing way too hard, and I have to quickly go upright again.  To avoid this sensation I have to go down real slowly when I need to crouch down (e.g. when tying shoe laces or picking something up...

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First follow up appointment following implant

I have managed to get a date for my first follow appointment and it's Monday. They said it is with the technicians?

Thanks to the people in this club I have been able to put together a list of questions

Do you think these are reasonable questions or do you think I am being a bit overbearing?

What sort of blocks did have during my time in hospital?
Did I have mobitz 2 or mobitz 1 as thought mobitz 2 was not associated with a lengthening PR interval? and I had a lengt...

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2nd opinion and disappointed

Hi all, 

Went to a 2nd EP for another opinion.  The answer I got was "settings are right out of the box, in the middle. I don't want to change anything.  Your heart needs to get used to pacing."  By the way, what is meant by that?  You're heart needs to get used to pacing??

I asked if he could put me on a treadmill to see what I'm feeling...he said your cardio may be able to do that?  I am SOB doing basic things like walking or g...

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You know you're wired when...

You know the difference between hardware and software.

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I am no expert, but I believe that without the defibrillator that I have, I would be dead.