Most Recent Messages in General Posting

Do they remove it

Hello everyone I'm new to having a pacemaker. I have a Biotronik that was put in in May of this year after major open heart surgery. My current physician said that my heart could repair itself as time goes by. The pacemaker is on just the lower part of my heart. If it does that do they remove the pacemaker when the battery starts running down or do they just replace it and leave it in just in case it goes back to not functioning correctly? Also the place that runs it through it's test...

Read More...

AV ablation

Can someone please explain what happens when my pacemaker battery needs changing after an AV node ablation procedure. How do they keep my heart going?

di

Read More...

Heart rate monitor with large digits continuously displayed?

Hi,

I'm looking for a heart rate monitor, worn on the wrist, that would continuously display heart rate in a large, easy-to-read font. One that, once you get it into the right mode, you can just glance at your wrist to easily see your current heart rate, without any further tapping or pressing. It's fine if it needs a chest strap to go with it.

The Polar FT1 is an example of the kind of thing I'm looking for, but they don't make them anymore.

Unfortunately, t...

Read More...

sick sinus syndrome

i had my pm on tuesday. it is paced at 60. i have noticed  over the past 2 days that i have the same feeling of palpitations when just walking as i did before the pm.

i am going for a long walk to day and ill see what happens but how long should it take for the pm to kick in and the heart to adjust to something as simple as walking up stairs.

my heart rate could just go up to 70 and i feel the palpitations just the same as before implant. shoud it be a few seconds to adjust a...

Read More...

Fevers

Has anyone every noticed that when they get fevers, their hands and feet get extremely cold.  I'm been under the weather with a nasty virus and it so strange, but as I get a fever I notice that I lose my circulation to my hands and feet and they get freezing cold and numb.  I'm assuming all the blood is probably going to the core of my body.  This happened a couple years ago to me when I had strep throat.  I would literally begin to get numb hands as my fever climb...

Read More...

CRT-D causing SOB

It's been amost a year since my device was placed. I've been experiencing problems off and on since then. Including, abdominal  muscle twitching and spasms with weakness in my left arm and SOB. Strangely, it goes away for a month or two then it returns. Has anyone had similar problems. It's very positional. If I bend over or in a crouched position, if I twist my body I feel weakness and can barely breath. My doctor has blown me off for a year. Has anyone else e...

Read More...

Pacemaker ticking

Hi, had my pacemaker now for 4 weeks I'm struggling to sleep on my left-sided is this normal? It ticks sometimes over night how long till I get use to this? Thank you in advance. Had it fitted in an emergency wasn't mentally  prepared for it if I'm honest. 

Read More...

Removal of pacemaker for end of life decisions

I am likely to be recommended for a pacemaker within a month or so.  My question, which I couldn't find discussion of here but redirect me if it is,  ...  is that a time may come in my life when I will choose end-of-life over poor quality-of-life.  If necessary, I'll try to use the Swiss services.  However, right now my quality of life is good, and I expect it to continue for some years.  If/when I reach a time when quality is not sufficient, and I wish t...

Read More...

CPAP Mask Strap magnets...

Has anyone heard about this and better yet has anyone discussed this with their cardiologist?        

The straps on CPAP face mask have magnets as connectors.  So far what I have read is that as long as the magnet stays at least two inches away from you pacemaker you are good.  I am not sure I can guarrantee it always stays that far away while sleeping.  I hope so.  I mean if I bend my neck to the left it may get close.

Read More...

What is reasonable to worry about for infection?

I recently have been freaked out by a post I saw on social media where someone got bitten by their dog and developed an infection that went to their pacemaker and now they have to have device and leads removed. It wasn't this that freaked me out, but rather the woman who this happened to said that her doctor told her she should report in for any kind of bite or scratch! 

I sew for a hobby and I have a cat. I am clumsy and always cut myself chopping vegetables or graze myse...

Read More...

Have received Barostim device

I had Barostim device implantation last week.  It was more painful than I had thought it would be (I'm on my 3rd device--PM, 2 ICDs). The generator was placed on the opposite side of my ICD under the pectoral muscle.  I also have an approx 2" incision on my neck where the lead from the generator was sutured to the carotid artery at the Barostim nerve.  The lead was tunnelled from the generator to the carotid artery....did not involve implantation into a vesse...

Read More...

Hi

*waves*. New to the club.  Had my pacemaker put in a week ago.  It was a bit of a whirlwind.  I had a syncope episode at work one day and after much testing and monitoring I was diagnosed with an irregular/abnormal heartbeat.  And so here I am :)  I am still learning and adjusting.  

I found this site while googling around with one of my many questions.   
 

ETA : to expand on things I did wear a Zio Monitor for 14 d...

Read More...

Congenital heart diease

Hi is there any 1 on here tht has got congenital heart diease with a pacemacker and living a normal life. Thanks 

Read More...

Capture Threshold

Had my pacemaker interrogation this week. Every time they do the RV threshold test, I feel like passing out, dread and panic. It's super brief. They know I have no escape rhythm. They took it to 30 bpm to check. They do this every interrogation. The tech did make a note that I am sensitive to this test. The tech and cardiologist said they have to do it. They both said this is how I would feel without the pacemaker. 
 

My sinus node works but is completely disconn...

Read More...

Replacement single lead after 8 yesrs

Hi, due a new device but would like a leadless micra as I suffered a severe shoulder condition after my first one was put in. Does have experience of this,thanks, Davide 

Read More...

my final update to Ian

At 3:30pm ESt today finally internet and Tv restored.  Has been out since Tuesday about the same time.  My home did not suffer .  Only one front downspout and the garage light tilled.  Did have electric, land phone and of course cell. 

I am quite weary from both not sleeping well and have to rake up the fallen leaves and some short branches from the neighbors trees.

Not sure what the pacemaker thought since was defintely more excercise.  Then it...

Read More...

Pacemaker-Mediated Tachycardia

Seems like I am coming for advice and help more and more.  I just don't know what's wrong this time.  My last post I explained how exhausted I became doing the simplest of chores, i.e. putting on a bed sheet!  My heart rate would go up into the 130's and I felt completely drained.  I saw my Cardiologist and the St. Jude rep came in and it was determined that I was experiencing PMT's.  Instead of turning my Rate Response down, they did programming...

Read More...

update to hurricane Ian

So far as you can tell electic still on now 6amEST, Wed Sept 28,2022.  Slept with the window blinds closed. Flashlight near by. Slept at least 3 hours at a time.  Knew the wheat would help and plan to eat Rye bread(wheat)and drinking 16oz of water each time.  Some times with other foods and mostly plain. Rye bread has less salt per slice than pizza. Again to sleep off and on as it makes the waiting go faster.

Now Ian is someplace nearly 170miles south of me to m...

Read More...

Abdominal Aortic Aneurism/Dilation

CHB since Feb 2020. Medtronic His pacing. Age 33 and no smoking history. Blood pressure is okay; been in range of 118-130. Been feeling really good and been very active.

I decided I'd try to get my pilots medical back so I had my Dr ordered the required tests, one of which was echocardiogram. During that test, apparently they saw that my proximal abdominal aorta was dilated to 4cm (normal is maybe 2cm?). So they have put in a request with Vascular group to do imaging...

Read More...

PaceMaker

Hello everyone.
I am new here. Sorry for my english.  Not good. I am 30 years old a man. My wife gave me a smart watch for gift. Because I am dieting and exercising, I lost 18 kg. When I measured with the watch, my heart rate was between 45-53 while I was at rest.That's why I decided to go to a doctor. I was given an effort test and a 24-hour holter test. In the effort test, my heart rate went up to 140. But there were 3-5 second pauses in the holter and the docto...

Read More...

You know you're wired when...

Your favorite poem is “Ode to a Cardiac Node”.

Member Quotes

The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.