Most Recent Messages in General Posting

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Steady heartbeat?

My recently (Feb 5th, 2020) implanted St.Jude Assurity MRI, PM isn't keeping my heart beating at a steady rate, which had been my expectation.

Instead, I see a variation between 50BPM - 100+BPM.

This occurs even when I am, or have been, resting. Sometimes it happens when I am walking around the house but not really being active in the sense of exercise. I am certainly not exerting myself.

Is this normal and to be expected or should I be concerned?

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Pacemaker Placement?

Hello,

I am 31 years old female with a complete av heart block. Next month, I will be getting a pacemaker with two lead wires implemented, but I'm having trouble with deciding on where I want the pacemaker. I honestly don't want it under the skin above the pectoral muscle. My doctor suggests to place it under the pectoral muscle. I'm worried it's going to bother me when I carry bag packs, or doing upper body workouts. The doctor also doesn't think that having a...

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Introduction

I just received my first Zio xt patch today. I'm 17 years old and I am tachycardic. Is there anything extra I need to know about my patch? Or any advice?

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Shortness of Breath

Ok so i have had my PM for 1 year now and about few weeks ago have been experiencing SOB when walking short distances, doing daily chores and going up a flight of stairs. Has anyone experienced this? If so what would you recommend? I see my cardiologist in 3 weeks.

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Strange pain

Good morning, 

I am hoping someone has experienced something similar so to explain what is occurring, as my doctors are at a loss. I had my pm surgery on Sept 12, 2019. I’m 62 yr old female, with Brady-tachy. PM is set to 60 with rate response, I’m on no heart medications. About 2 monthe ago, I was at my low impact Zumba class when I experienced a tremendous, excruciating pain on the left side of my chest. Pain was so strong, that it took my breathe away. After a few mi...

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How do the doctors decide your pacemaker setting?

Just wondering how the doctors decide what your lower and higher heartbeats should be set at.  The doctor that put my pacemaker in only saw me during my hospital stay, as I was on vacation when I had to have my pacemaker implanted.  The electrophysiologist that I saw before going on vacation did not think my symptoms were heart related, he was pretty sure it was due to vasovagal syncope. I had only seen him this one time. The cardiologist I was referred to has not changed my se...

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Daughter having pacemaker and just found out she pregnant

At the weekend I found out I was going to be a nan for the 5 & 6 times my son he's having his 2nd baby but when I found out my youngest daughter who 21 is also pregnant I just got up and walked out to the shops I know I was wrong but my daughter has a pacemaker since she was 2 as she has congenital heart block and need it to stay alive and in 2018 she had open heart surgery I'm so scared about her as I don't want a grandchild without my daughter please someone help as I should...

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Lightheadedness

10 weeks post implantation. All good until today    Got up this morning. Think a bit quick. Went a bit lightheaded. ? Thought is this anything to do with pm.  Or just literally getting up too quickly. Not on meds now.  Think still getting used to it. 
 

thank you for your support since joined  very helpful  

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Operating a Chain Saw with a ICD device

Has anyone had difficulty using a chain saw with their ICD device? Its been a while since I have been on here. I have an BV ICD that serves both as a dual chamber pacemaker and difibrilator. I have heard the concerns from doctors and others, but I may need to operate a chain saw again due to us being around a lot trees here at home, and at our summer home up north. Got a tree down in the yard already. Do they make gloves specifically for this situation? Is there a particular chain saw th...

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Bjj

Anyone here grapple/bjj and or sparring with chest protector?

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Drugs

It it safe to ride an exercise bike 7 days after a re-implant? The doc doesn't want me doing anything for 4 to 6 weeks. They had to put a lead back in place. I believe it was there fault when they did a tug test.

 

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Results are In

  Good morning! To the persons who read my long posts, I received the results of both my Nuclear Stress test and my PET scan for Cardiac Sarcoidosis yesterday evening. Both were negative. No sign of any blockage, normal pumping ability and no Sarcoidosis. We are now going to monitor my Pacemaker's function and its impact on my heart every 3 months going forward. 

  My cardiologist is attributing my 3rd degree heart block to aging and when...

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New Charge

Hi. I have had a Medtronic pacemaker since Dec 2015. I go to my Cardiologist every six months for a checkup. I see my cardiologist and another Dr takes readout from my Pacemaker. I have Medicare there is a $40 co pay to see the cardiologist no charge for taking the readout form the pacemaker. In between my visits every 90 days I make a transmission with a Medtronic MyCareLink I keep on my bedside table. My last transmit ion was on 14 Nov 2019. In December I got a bill from the cardiologi...

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Thorax impedance

does anyone know what thorax impedance means? ☺️

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Aching PM in the winter months

I am coming up on 2 years since my implant and I live in Canada. I’m just wondering if anyone’s PM aches with the cold. I have been putting a hot water bottle on it in the evening and the ache goes away. At work I wrap a scarf around my neck to keep it warm. Just wondering if this happens to anyone else?  And if they have found any solutions.   I’m perfectly fine in the warmer months but this is second year it’s happened in the cold. 

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pacemaker 2 lead ( Equality Act 2010) uk, case history required

Hi

Does anyone in the UK have experience with regards the criteria in respect to the UK Equality Act 2010 ( relating to the disability act)

In brief.. Employer sacked me after determining without risk assesment that my pacemaker was incompatable with my work)

I have started the business of suing them, but they will fight the case unless I can prove that the pacemaker is covered by the Act.

( I am not refering to the matter of benefits)

I am aware of the need to p...

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Pretty sure this is normal, but..

Does anyone notice weakness in the arm on the side where your PM is? Sometimes is just sore out of no where to move my arm/under my armpit/shoulder/and implant site - as if I've slept on my arm wrong or lifted heavy weights when I didn't do either one. Even when I exercise my upper body, I'm not usually sore like this. March 2020 will make 2 years for me since implantation and this happens on and off sometime. Not sure if I should be concerned if it's the leads or ju...

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Spa / Hot Tub Use

I have severe scoliosis so my spa / hot tub is truly therapeutic. My pacemaker was implanted on Dec. 17, 2019. How soon has anyone used their spa / hot tub, for how long at one time and at what temperature. My main concern is regarding the electric pump I sit directly above. Thanks Much for any and all help. Blessings to you.  Cissy

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icd

The icd was implanted in 2019,nov. Vstat. It has not fired at all since implant. My question is, has anyone had it fire when there was nothing happening. Like a defective firing. Could it be possible that if my heart rate stays normal it may never fire?

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A Question for the Ladies – Breast MRI with CRT-D?

I got a CRT-D installed in April 2019 for cardiomyopathy, and both the leads and device are MRI-compatible.  I am also high risk for breast cancer so have been getting alternating breast MRIs and mammograms every 6 months for the last 10 years or so.

I am due for my annual breast MRI in March but I’m not sure if I should try to do it or not.  I’m a little nervous about the whole thing, with having to get a device tech to put the CRT-D in and out of safe mode f...

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You know you're wired when...

You participate in the Pacer Olympics.

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