Most Recent Messages in General Posting

100& dependent on device that has had numerous issues but would this be wise or be helpful

This may be an odd question,  I have my divice placed in 2014 by a doctor who should not have been doing it to put it nicely, so the first few years were misrable with a new doctor trying to correct everything that he did including removing it and replacing it because he placed in a super bad spot. Now present day we are finding out that the previous doc may have nicked the top lead because it is failing and they are having to up the voltage to it on a regular basis.  I will be due...

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Dizziness

I first suffered a heart attack about 2 years ago... About 8 months ago I passed out... I ultimately was diagnosed with a complete heart block... My heart beat was as low as 30 and my blood pressure was very low... I was brought to the hospital and placed in ICU and they readied me for a pacemaker, within a couple of hours I was in the ER getting a pace maker... It's been several months now, but I still get light headed, the dizziness. It is not as bad and I don't feel like I will pas...

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Does having a pacemaker reduce/stop dizziness and breathlessness

Hi, I was hoping to get feedback from anyone who has persistent Afid and has had a CRT pacemaker. Currently I do not have a pacemaker but my Afid is getting worse. It has caused my EF to go down to 34% last year. Since then my new meds have managed to get my EF up to 38%. The down side is that the new meds are making me more dizzy (ie getting up too fast or bending down) and more breathless when I go on my daily walk (I suspect the low blood pressure due to the meds is responsible). My q...

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trolls

Since tomorrow is April 1st, fools day, hope the trolls and the spammers take the day off.  No need to have those who know how to help others understand about Pacemakers and ICD, waste their time by stressing out how to help those who are only fooling us.

new to pace

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Is it muscular pain or cardiac pain?

My pacemaker was sewn into my pectoral muscle one year after original implant because it had migrated too much. Recently I have pain in the left side every time I deep breathe but it doesn't prevent me from a swim or a walk. My cardiologist says he will place a monitor to detect where exactly the pain is coming from. Does anyone have this experience? Thanks. 

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Lung function test

Hi all, this is my first time posting, I am on my 7th pacemaker (I am 40 years old), I recently had a health assessment, (a post turning 40 thing, nothing heart related) and I got very bad results on the lung function test. I am not particularly sporty but I am not unfit, and the doc said she thought that maybe all the surgeries I had previously may have affected my lung function, has anyone else heard this? 

I originally had a pacemaker fitted because I had a whole in my hear...

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Just thinking

When I had my cardiac arrest 3 years ago, somehow my tongue got cut pretty bad during the whole carcuffle. I thought it would fully recover but often, I really notice a weird sensation/numbness along the scar. I can particularly feel it today...maybe it was something I ate...I don't know. I've basically come to terms with everything that has happened/is happening/could happen, but this sensation in my tongue right now has me feeling angry - angry that I have a heart condition, angry t...

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fatigue after 11 years, 2nd pacer.

I keep reading about all the activity y'all are doing, hiking, walking, sports etc. After 11 years of pacing at 100% ( A year after my 2nd one) I am so tired I can't get out of bed. What is going on? 

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pacemaker

its been a while since last wrote but having this website is like my security blanket always know who and where to ask if ever in need of info updates help or whatever!!!! well just had yesterday my yealy check up with my heart specialist report all seems fine my last battery replacement was in March 2018 Boston Scientific L331/339220 is what printed on my card, my understanding was it`s suppose to last between 10 to 14 years but was told it`s only has 4and half year left! when i askesd why?...

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New to this forum

Hi I am new to this forum. 49 years old and my Zio holter showed advanced grade second degree block with a few pauses (3-5 secs). I am completely asymptomatic, they picked this up incidentally because duting covid of 2020, I got anxious at night and reported palpitations. The EP test revealed no conduction disorder in fall of 2020. But the zio that I wore for the last 2 weeks picked up intermittent blocks, mostly at night but a few during the day. I have my consultation with my EP on Thursday...

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pacemaker and echo stress test

Hi everyone. I wonder if there's any problem taking echo-stress test with pacemaker. Last time I had echo stress test, before pacemaker, they pushed the paddles very strong against the heart. 

I wonder if this can harm pacemaker, or leads,

Thanks Bayla

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More than one communication device?

I have a Boston Scientific pacemaker, implanted in 2021.  I travel frequently to a vacation home in another country and, while the base communication device works fine in either place, it would be easier to have two separate ones and not have to carry the one back and forth each time.    

Has anyone done this before?     I thought I'd check here before contacting the manufacturer.  

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Yellow Pimple

I have a very normal looking small yellow headed pimple on my chest about half an inch below my incision, where the pacemaker is underneath.

It doesn’t look at all like an abscess, just a normal spot. I get these elsewhere on my chest and stomach too sometimes, but not usually so close to the pacemaker. I am wondering if I need to do anything or just treat it like a spot anywhere else. Does anyone else ever get spots on this area and are you advised to do anything? 

<...

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Day/night mode when the clocks change - daylight savings time?

Hi, I have a new biotronik pacemaker and live in the UK. I have a day and night mode (because I asked for it, I have the impression most patients at my clinic are not offered this) with my floor HR set to 50 at night. 

I am paced much of the time both day and night, and whilst 50 is OK for lying in bed, it is not adequate for me to get up and function. CLS is not yet activated, this will be done at my next check. 

Can anyone tell me what will happen when the clocks chang...

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Pacemaker

Hi All

First time posting on here, I had a pacemaker fitted about 14 months ago due to complete heart block and I still on occassions find myself having a very brief episode where you feel you may pass out this also hits me with anxiety afterwards do others find this normal.

PWR

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Atrial High Rate Episodes

My pacemaker is showing numerous AT/AF episodes with heart rates to 640.  The NP says that is not possible.  Any answers?

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shingles vaccine

Hi everyone, just wondering if anyone recieved the shingles vaccine lately and how they felt afterwards. my gp wants me to have one, little nervous. thanks. hope everyone is well.

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Boston Scientific Latitude device interrogation

I had my CRT-P device implanted 3 years ago and was sent home with a Latitude Home Monitor. The Latitude is downloaded and the data reviewed by my care team every 6 months. Does anyone know how detailed their report is?  Is it a full detailed log recording every heartbeat or is it a pre-compiled analysis/report of some sort?

I have been instructed to manually initiate a device interrogation if I experience any unusual syptoms.  I assume that this data more detailed t...

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Topical pain med.

I have been prescribed Diclofenac 10% ( strong Voltarin) for sprained ankle/arthritis. 
I'm just wondering if it is wise to use it as it is an Nsaid. I have a bixvent pacemaker for Afib and heart failure. I take ramipril, carvelidol, spironolactone, furosemide and xarelto. Also synthroid due to thyroidectomy from Graves' disease.

I usually use Tylenol for general pain.

I'm interested in other peoples experience or comments.

Thanks

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Annoyed / Frustrated

Hi all , hope everyone is well 

I have tried to contact Boston Scientific 3 times - in the last week , with no response !

I've emailed their head office in the USA and the UK head quarters - not even to receive an acknowledgement of receipt 

To say I'm disappointed is an understatement. Has anyone else had this problem 

regsrds Mark 

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You know you're wired when...

You need to be re-booted each morning.

Member Quotes

I, too, am feeling tons better since my implant.