Most Recent Messages in General Posting

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Curious about young PM recipients.

I'm 35 and on week 6 of having a pacemaker and I'm just curious about how many other younger folks have a pacemaker or older folks that got theirs when they were my age. I'm also curious why you needed one so early in life, my circumstances are out of the norm since my heart is healthy but my nervous system is out of wack. I just ponder if my situation is as uncommon as I am led to believe. My doctor said besides a few babies who needed a pacemaker at infancy I'm his youngest...

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Leadless Pacemaker Opinions

Hey everyone,

If we haven't met I'm Abi and I am hoping to get some opinions about leadless pacemakers as I am likely going to be getting on on the 19th.

I need to get a new pacemaker and my cardiologist is suggesting I get a leadless one (the most recent medtronic). I was hoping to get some opinions from anyone who has one on how they like them. My cardiologist walked me through all the benefits and risks so I am really just looking for patient experience I have...

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Lump in the throat?

I'm on week 7 of having my pacemaker and recovery is going alright for the most part. The past 2 days though, my chest has been tight and I have a sensation I can only describe as a lump in my throat. It's right under my Adams Apple on the same horizontal as my collar bone. I felt fine for the past 3 weeks and this is new. I figure it might be normal so I thought asking around here would be a good idea before freaking out.

I have never had an ablation, I have no signs of any inf...

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New to me brands pacemakers CRT, but which one.?

My hospital cancel contract Biotronik pacemakers, I had two of these, all good.

My pacemaker technician say next one is choice of Boston Scientific, Abbott or Medtronik. I have now CRT pacemaker Eluna Biotronik since 2014.

Any idea which one to choose for my 3rd pacemaker replacement?

 

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Covid19

Has anyone with a pacemaker experienced palpatations after having Covid19

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iPhone 14 and magnet ? Old Phone not transmitting arrhythmias. Why?

I'm looking for a new cell phone. I have an older iPhone but it has never sent a transmission when I've had a bounding arrhythmia.I was looking at the IPhone 14s but it seems like they have a strong magnet on the back and we are asked to keep magnets away from the pacemaker. Do any of you pacemaker people have an iPhone 14 or 15 and does it interfer with your pacemaker ?

Has anyone else had problems with their phone not transmitting arrhythmias ? I'm wondering if the pr...

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Should I get a pacemaker? What is your experience with them

So I wore a heart monitor for two weeks and during that time had two heart pauses that lasted about 6 seconds each. I was slightly dizzy on one of those incedents but it passed quickly. The cardiologist claims I have sick sinus syndrom and wants to implant a pacemaker. I am not really sure if this is necessary and unsure whether to go forward with it. If I knew this was a persistant problem I would do it but I am not convinced, thinking that it may not happen again. It scares me that he said...

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Soon to have ICD

Hello everyone,

I am a career- paid firefighter. I have a genetic gene (long story) but did a blood test and confirms I have a gene that causes hypertrophic cardiomyopathy of the left ventrical. I am 39 and will be getting an ICD placed asap due to 20-25% scarring in my left ventricle. 
 

I am worried that my administration and city admin will not let me return to work. On that note, I cannot find any law that says I have to tell them and or them not allowing me bac...

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Medtronic home monitor

Looks as though another problem has developed with Medtronic MyCareLink home monitor.

This is type with hand held chest reader.

Display lit up, been on for too long now.

All three LEDs on the reader flashing. No idea what's wrong.

This is the second unit gone on the blink.

If it doesn't stop flashing, I'll pull the plug on it to see if it fixes it.

That's two problems in the space of three years. Not impressed.

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Advice for upcoming surgery

My daughter is 15 and will be having surgery in a couple days to implant a pace maker.  This is all very sudden for all of us and Im trying to learn as much as possible in a short time. 

She was diagnosed with third degree heart block last year after having Covid.  She has always had a normal heart rate in the past and now has complete heart block and her resting heart rate stays in the low 60’s.   At that time she was not experiencing any heart related sy...

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Not good, but not bad echo results

Hey ladies and gents... for anyone that was curious about my echo results from yesterday; it turns out that I'm still a 16. Not surprising considering my hurdles over the last 5 months. I thought I'd be really upset about it, but actually was grateful that it didn't go down. I'm sustaining...holding my own. That is good. 

The next step will be to up my Carvedilol to 12.5mg twice daily, as I'm on a pretty low dose right now. I'm not willing to experiment with...

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Medtronics

Just wondering if my Medtronics monitor needs to have anything done like being reset after it was done unplugged by accident?

Their website has very little information and they take weeks to respond to text messages...

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Organization for women with heart issues

Hi All, 

Want to share this organization for those ladies with heart issues and men who want to learn more about it for the women in their lifes.

 

https://www.womenheart.org/

 

 

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GENERAL CHECK UP

Hi all, hope everyone had a nice holiday. I recently saw my EP for a general check up and he changed the settings on my pacemaker from 55 to 60 which he then told me was normal. My last EP who since retired had my pacemaker set on 55 to save life on the battery. I dont know if its me or the higher setting but I feel im not sleeping the whole night and feel my heart more so since he raised the BPM. I was wondering if I should say anything or give it some time> my check up was 2 weeks ago.

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notifications

Today i recieved an email saying someone had posted a comment to my query of "vaccine".  Knew that was an old one looked it was from Oct.  Did PM that person  and suggested  that they post in the forum their question.  So that aothers would see and give answers.  As we do not generally look at ours or other old posts.  Nor at this point our  we notified about someone posting to an old query except the poster.

new to pace

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Stupid Magnets

Hello! I'm new. I tried Joining 526236 times before and it never let me verify. But then I was like "what if my long name is the problem!?" And I was right!

So to celebrate I just wanted to say hi and introduce myself. I am a 35 yo dude who has a problem with passing out due to Vasovagal Syncope which is caused by a cocktail of conditions under the Disautonomia Family. I got my pacemaker installed the day before Thanksgiving, and I can almost sleep ony left side again. I a...

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General Anesthetic

Hi I'm new to the site 

I had a pacemaker and ablation surgery 18 month ago and now I have got to have surgery on my shoulder.  I'm worried about having it done the first private hospital said it could not do it but I have found one that says it can. Can any one tell me if they have had surgery after having pacemaker and ablation surgery and what the risks are.

 

 

 

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An Exciting New Chapter for the Pacemaker Club!

Today, we are reaching out with an announcement that marks the beginning of an exciting new chapter for the Pacemaker Club. First and foremost, we want to express our gratitude for your continued engagement, contributions, and support for this forum that has helped so many. The Pacemaker Club has been a vital community for individuals with pacemakers for over two decades, and we are honored to be entrusted with its future.

Since the announcement last week that ForHearts Worldwide has ac...

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Daughter needs a pacemaker

Hello, my name is Lucas. My wife and I recently welcomed our daughter who was born prematurely at 35 weeks. She was diagnosed with complete heart block at 21 weeks in utero, and since her birth, her heart rate has not increased as we had hoped. She was given a temporary pacemaker and is currently supported by high flow nasal oxygen for breathing, having progressed from an initial breathing tube and CPAP.

Our medical team is planning for her to receive a permanent pacemaker. They have su...

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Battery Life

I live in a third world country by choice. I am from South Florida. In 2017 I had my St.Jude pacemaker/defibrillator implanted and 90 days later I moved to Philippines.I found a Cardiologist at Makati Medial Ctr,Manilla who read  & printed out my reports every 6 months for 6 years now.  (cost @ $36.00)  My Rythem specialist in Florida told me to track the battery life and when it got to 6 Mo. remaining to plan on returning for a battery devise upgrade. About 2 years&nb...

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.