Most Recent Messages in General Posting

His bundle pacing?

The EP wants to try his bundle pacing one me.  Anyone with HFrEF make the switch?  If so did you get any significant improvements in cardiac function? A more difficult question would be did you get a mortality benefit from it or just an improvement in symptoms, or both?

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pacemaker moving?

I've lost 70 pounds in the last 6 months and have started exercising.    I'm getting pain at the location of my pacemaker when I move my arms sometimes. .  It's not my heart, it feels like the devise itself might be moving around some.   Has anyone experienced this?  I will call my doctor in a few days if it doesn't improve.   It's fine when I sit and do nothing.

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Coffee and alcohol effect

I used to be a tea drinker and switched to coffee during the pandemic. I also drink alcohol may be couple of times a month which I have stopped totally since 2021.When I asked my EP about the arrythmias produced by these 2 beverages he said if they cause anything bad  it would be consistent each and every time.Just wondering whats the best course going forward regarding coffee. I already had my last drink.

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Do you ever forget you have a pacer?

I have been thinking about something a pacemaker nurse said when I continued to have pain at 4 months after insertion. She said many people forget they even have a pacer. I didn't believe it then, and I don't believe it now. 

I still feel the pacer every day, especially if I do something strenuous, sleep wrong, or get too cold. I see the big lump on my chest every morning, I see the visible veins across one side of my chest, and can see that my arms are different sizes and...

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picking the right cardiologist

Hello everyone ive had a pacemaker for nearly two years and ive had my struggles, anxiety, panic attaks, palpitations, ect. Ive been through at least 4 cardioliogist who really didnt make me feel better about my concerns especially concerning my heart palpitations that i was recieving from time to time. I know i have anxiety and that might be a contributing factor but i wanted to be sure and the other drs would just brush me off. I met this one EP who i was referred to and turned out to be fa...

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After surgery hint

After my PM implantation, I was told to keep my left arm down for 6 weeks, but not to not use it or it would result in a frozen shoulder.  I was concerned for when I slept as I sometimes sleep with my arm behind my head. I came up with a solution. I had a wrist band that I put on my left wrist, then took a bathrobe belt and put it through the wristband, then around my waist. I tied the belt very loose, but it kept me from being able to lift my left arm, but I could move it enou...

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where did they go

Was wondering  wether  the 2 who were struggleing with copping with getting a pacemaker/icd.  Removed themselves or were dropped  by this forum.  As i wanted to sleep on my answer before writing to them. 

New to Pace

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Seat belt or back pack strap

If you are bothered by your seat belt strap or back pack strap, I found fleece velcro seat belt covers at Walmart in the automotive section. They are for people that don't like the seat belt rubbing on their neck, but they are great to position over where the pacemaker is. I also use them on the one strap of my backpack.

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Pacemaker adjustment

I had my pacemaker put in Oct/2020. They had me at 70bpm and I kept getting more short of breath and my exercise tolerance was low. Yesterday he lowered me to 50 while I sleep, 60 during the day and 140. Since then I feel a little light headed-not bad, I can function. Energy level is wonderful! Is the lightheadedness just something that my heart is getting used to the new numbers? The adjustment took away the shortness of breath immediately!

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ICD detecting a heart attack

Will my Medtronic ICD (model DDMB1D4) detect a heart attack and will it show in the records of an interrogation?  We're refering to a heart attack caused by blockage of an artery.

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Head gets heated and I start feeling lightheaded

Dear Friends,

I have had pacemaker for more than 3 years now, but lately I have started noticing that when I get into high pitch while talking my head starts getting heated and I start feeling light headed, anyone else have ever experienced this or knows what it could be?

 

thanks 

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Hello

Hi everyone, I'm Charlie and I want to share my story with you in hope i can find some people in a similar situation..I'm 33 years old and I'm living with a heart condidtion my doctors cant seem to put a name on. It started 5 years ago, when as chance would have it I went into V-fib arrest, just as a friend of mine, who fortunetly knew cpr, had just arrived at my home. 5 years ago the doctors dismissed it as a fluke, probably brought on by a nicotine overdose..side note, my wife w...

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Pacemaker humour (Canadian spelling)

Well I found it funny!

https://www.gocomics.com/speedbump/2021/03/18

 

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Whats the physical limitations of getting a pacemaker?/I am on the fence about getting one

I am a 63 year old active male who was told recently that I need a pacemaker due to low & long pause heartbeat caused by 2 broken branch blocks. I currently lift weights and use both arms to lift things over my head repeatedly to do odd jobs around my property. My concern is that once I have the pacemaker I will no longer be able to physically do the things I enjoyed prior to the pacemaker surgery due to the chance of dislodging the leads. Talked this over with my Doc who said t...

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EP study no ablation

So Monday I went in for EP study with a plan to have an ablation for atrial tachycardia which was discovered during excercise and persistent palpitations.

My EP was unable to induce any arrythmia with isoprenaline and burst pacing. He did however discover that as my sinus rate increased the long PVARP on my pacemaker meant that I was dropping beats. 

He has now shortened the PVARP and turned on adaptive AV delay. My upper limit was increased to 165 with 1:1 conduction. I am h...

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ICD

Hi everyone

I am due to get an DD-ICD (had 3rd degree heart block in August) due to cardiac sarcoidosis and am now better on meds but docs still think I need one as a "back-up"...

I am having the appointment with the doc to discuss the device and clear any questions and was wondering if you have any suggestions or tips as to what to look out for? Any recommendations on specifically durable leads, devices in general, settings. I am female, 50 yrs old, active (love long hi...

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Happy Pi Day !

Happy Pi Day to all fellow numbers geeks !  And to anybody who finds this day a fun reason to bake or otherwise enjoy a pie and appreciate its beautiful symmetry.

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Any questions?

I haven't been on here in a while, but I have a combination pacemaker and ICD and have undergone both SVT and VT ablations if anyone has any questions about that stuff.  :D 

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Pacemakers and MRI procedures

Has anyone with a pacemaker had a MRI procedure?

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Open heart surgery in patients with pacemakers

Has anyone in this forum had an open heart surgery?

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You know you're wired when...

You get your device tuned-up for hot dates.

Member Quotes

It made a HUGE difference in my life. Once I got it, I was finally able to run, and ride my bike long distances.