Just found out today
Hi- My name is Candi and I am 31 years old. I was diagnosed with Left Ventricular Non Compaction in March. We just found out today the people with LVNC have a higher rate of cardiac arrest so I guess I'm getting a defib on June 2nd. I put off the implant until school was out because of not being able to drive after the implant. I am very worried about recovery time. We have 5 horses, 2 young children and I work with children so you can see we are very active. It was horrible after having the cath and not being able to lift for 1 wk so I don't know what I am going to do if I can't lift for 4 wks. Any words of advice would be greatly appreciated. I am pretty down today after seeing the defib Dr (who is one of the best I'm told) and being told that they just don't know how to treat my condition since it is so rare. I would love to hear if anyone on the site also has this condition and if they have an implant.
Thanks in advance!