lumpybumpy lead

Hello everyone
I had a Medtronic Duel Chamber pacmaker fitted in the UK in May this year for Neurocardiogenic Syncope. It was all a shock as until I had a Tilt Table Test I just thought the annual symptoms or less were a stomach bug.
The operation itself was horrible---painful in theatre and I felt ill afterwards--the following afternoon staff decided I wasn't recovering as expected and they realised my left lung had been punctured.
I now have a lump just below the scar where the lead/s are pushing up just under the skin. My Cardiologist says I need the leads reimplanting at some stage before they break through the skin and the actual leads will need replacing. Is this a normalexperience?
Has anyone else had this problem? How long did you wait before going back into theatre? I have been basically told its in my hands. The Cardiologist has discharged me so I only have annual pacemaker clinic checks book but can call the cardiologist when I 'think' t leads need to be reinplanted.
I look forward to hearing anyones experience.
Thanks from Carole xx
ps I had a pacemaker check and my pacer is only being used 0.01% of the time--again do most peoples pacemakers work more/??? I am still half convinced that I didn't need it


Hello -

by SusanBrookhouse - 2007-11-20 01:11:09

I had my original pm implanted in 1987 and then my second one in 2005, yes 2005. Batteries were excellent. Unfortunately, after my second one, the leads from my old pm were sutured down but started to come to the surface and almost as if trying to puncture the skin. The cardiologist had me straight back into theatre after confirmation of the problem and I opened up again and the leads again sutured down.
This time I have had no problems at all.
Hope everything goes well for you

Welcome to Pm Club!

by CathrynB - 2007-11-20 01:11:55

Hi essential peace,
Welcome to Pacemaker Club! I'm sorry to hear you had such a rough time with the initial implant and continue to have other problems. The problem you're having now is NOT a normal experience, but it's not unheard of. I've had the same problem and I know of several others from this site who have too. I had my original implant in January 2007 and had surgery in July to implant both the pacemaker and the leads deeper. Some people have it put under the muscle when they do the second surgery, others stay under the skin but go deeper. Your doctor is the best person to advise you. The reason it's important to do this before the skin erodes is the risk of infection -- if you get an infection the entire PM system often has to be replaced. If they move the electrical leads now, it likely won't involve moving anything in your heart, just the leads below the skin. Best wishes and keep us posted on what you decided to do and how it goes!
Take care, Cathryn
p.s. I'm paced at 2% -- everyone varies, and it's mostly irrelevant. You need whatever you need.

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