20 month old paced at 70bpm

My sons last appointment showed that there is probably scaring on his leed. Which is draining the battery fast. BUT, his rate had been set to 90 and the EP changed it to 70. She did this because she thinks that he was only being paced while he is sleeping. And everyones heart rate lowers when you are at rest. She mentioned that maybe he doesn't need the pacemaker at all. !!!!! OR, they will need to replace that leed wich isn't a diserable option. We will go back to the ep in late July to check the pacers status. If all is well she is going to lower it to 60 and send us home with a monitor to be used while he is sleeping.

Does anyone know of a child that has gotten their pacemaker out?

I have always felt that this would be a possiblity for him. He had a VERY sick heart for a long time after his open heart surgery to repair the defects that he had. So bad so that they were saying he may need a new one down the line. His heart has almost completely recovered. It is in the low end of normal function wise. So, maybe his rythm has returned. Or one that his body can function on.

Any thoughts?


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I'm 43 and have had my pacemaker four weeks today. I'm looking forward to living another 50 years and this marvelous device inside me will help me do that.