Bradycardia??

Nothing to be upset about

by piglet22 - 2024-08-13 08:21:57

100% pacing is common and just says your device is supporting you all the time and not just now and again.

Pacing percentages often increase over the years and I'm paced 100% in both chambers. It doesn't feel any different to before.

I think I might be worried by very low pacing figures and begin to wonder why I had the device in the first place.

I'm sure others will reassure you that there's nothing to worry about.

Thank you

by Neatbee - 2024-08-13 08:25:52

Thank you so much, I think it's just the 'finding out'  ... no one explains anything at the hospital 

thanks again 

Hi and welcome aboard the ship of hope

by Lavender - 2024-08-13 08:31:57

I don't know why you got your pacemaker to begin with, mine was from having pauses. I wouldn't be alarmed at using your pacemaker 100% of the time, many of us do. 
 

My atrium works pretty well on its own. My AV node doesn't. The pacemaker picks up the beat and sends the signal to the ventricles. The heart conduction disease we have is progressive. The pacemaker keeps us going. Yours is doing what it should.
 

It know it's a sad realization that we need these things all the time. It would be even sadder if you didn't have your device to keep you alive. I mourned the fact that my heart wasn't working on its own. But what choice do we have? If you want to live, you must rely on your pacemaker. 
In time, your mind will accept this. Sometimes the body heals before we mentally recover. 

hugs! My people are originally from your beautiful country. A great grandfather many years back left Ireland during the potato famine for Liverpool and married an English lass. The two of them eventually moved to America and started our clan. My great grandfather's son had seventeen children-one of which was my dad. 😉

Also

by Lavender - 2024-08-13 08:38:05

I see you have had your pacemaker 18 years! That's marvelous you're doing so well so long!

😁🌸

Thanks

by Neatbee - 2024-08-13 08:38:54

Thank you for the reassurance.. 

I'm originally from Yorkshire, UK .. Irish parents 🙂

Not told

by piglet22 - 2024-08-13 08:51:27

I'm with you on that one.

I'm a UK pacemaker patient, and if it hadn't been for this forum, I would have been in the dark for many years.

They might tell you something if you ask but it's not volunteered generally.

Of course the catch 22 is you have to know what to ask in the first place.

My short list is battery life, pacing percentages and recorded events.

Galway

by Neatbee - 2024-08-13 09:04:27

I'm living in Galway, Ireland but you're right, it's knowing what to ask.  Thanks for response 🙂

🤩

by Lavender - 2024-08-13 09:50:07

My dad's people were from County Galway! I have never been to any countries except my own, Mexico and Canada. My little sister has traveled to see our roots in both Ireland and Liverpool. 

Like marriage

by IrishToast - 2024-08-13 10:12:19

I'm kind of new, too. From here I have learned that the PM is a bit life changing, a blessing, a big help, takes time to adjust to, needs to be respected and treated well, and that I will likely be more dependent on it with time as we settle in together ... like a marriage.   I will have get a new model eventually ... the PM that is.

My great grandfather came as a lad from Cork to America.  He married a lass who had come through Canada. I heard he would tell, in his thick Irish brogue, of a gold cross at the bottom of a lake and someday he would go back to retrieve it. I went to Ireland in 1997 with our daughter. We weren't able to spend time in County Cork because it was a bank holiday and there were no vacancies. Galway was one place we stayed. Westport was our favorite. Someday I will go back and find that cross ...

Cork cross!

by Neatbee - 2024-08-13 10:43:09

That's a lovely story, Westport is special some great music bars ... Matt Molloys being a famous one .. thanks for message 

That's the one

by IrishToast - 2024-08-13 11:08:42

Yep, that's the one. We learned the Irish toast that is now my prayer. "May those who love us, love us ... "  

Welcome aboard here!

Thank you

by Neatbee - 2024-08-13 11:23:03

Thanks a mill

Words matter

by Grateful Heart - 2024-08-13 21:59:56

100% reliant, 100% dependant, 100% pacing.   It does seem like they meant pacing but...you should probably clarify.

I am 100% paced in ventricles and 90-97% in atria.

Go by how you feel.  If all feels good...you are right where you need to be.

Grateful Heart

100%

by Tex61 - 2024-08-14 08:53:34

My ventricles 100% as well.  3rd degree block. 
 

my atria gets paced a small percentage of the time.  My lower limit is 60 upper is 140. 
 

rep explained to me when the atria is paced it appears to be in my sleep when the heart naturally goes below 60.   And a few times when I was at 140 exercising. (Very seldom)

when I told my kids 100% of the time, they started to call me Ironman.  
 

be like Ironman.  
 

when my wife was concerned I was overdoing it, she asked the kids to remind me a bit to slow down. 
 

my daughter texted "Alexa, how do you tell Iron Man to take it easy" 

we try to find humor in the situation.
 

  I'm so blessed we didn't   have a major wreck 5 mo ago when the AV node circuit breaker popped.  

Bradycardia pacing

by cruzegirl - 2024-08-18 19:53:30

First, I'm astonished at how many people were not given info from their surgeons! Mine has been fantastic in keeping me well informed. I started out with the standard 2 lead and it was doing nearly 100% of the pacing. Then a year later, I had developed an enlarged heart and went back in to get a bi-ventricular pacemaker. Oddly enough, my heart is doing most of the work on its own now. But then I had a bout of Bradycardia long before this time that went away on its own. I think my heart just has a mind of its own but I am grateful the PM keeps it beating like it should when it decides to get lazy.