Looking for advice on settings
I'm now a little over a month post-implant (dual lead Boston Scientific L331) and have to say it's not going very well. My EP has been great, very responsive, etc., but to this point he's basically programmed 4 different modes with whatever their default settings are "guided by how I feel". And I'm a cyclist so I'll include that in how I feel below.
The modes thus far (for those who are familiar with BS PM's) and the results have been:
DDD(R), rhythmIQ on - felt "OK" but not "good". Periodic episodes of lightheadedness but when I do have these episodes it's pretty pronounced (feel like I might fall), BP elevated. Felt pretty good riding. This mode paces in both the atria and ventricle and I was paced at 68/52.
AAI(R), rhythmIQ on - felt marginally better than above, no major episodes of lightheadedness but rather a consistent feeling of disorientation. Felt pretty good riding. This mode paces only in the atria. BP 104/70.
At this point, I did a session on a treadmill and it revealed I was missing v-beats until my HR got to about 118 then I was perfect 1:1 with no missed beats all the way to 147.
DDI(R), rhythmIQ on - felt REALLY bad, had to go back the same day. Nearly fell several times. In theory this mode should have been the best as it paces in the atria but only paces in the ventricle when I'm not active.
DDD(R), rhythmIQ off - consistent lightheadedness though not severe. Feel terrible riding, really a struggle. When I go to sleep I feel like my heart is pounding and I woke up twice last night feeling nauseous. BP 130/80.
So the "guided by how I feel" thing with modes/presets isn't working.
Now my questions: how did you and your EP go about determining your settings? How long did it take before you found the right ones (if ever)?
Very frustrated to this point.
I have to say I'm envious of those of you who went in, had a setting change and immediately felt great. It seems that it takes me several days to come to terms with a setting change enough to where I can say it's better or worse unless it's REALLY bad. It also seems that my EP is basically going through different modes with whatever default settings those have.
TBH, I wish there were a more analytical approach than "how do you feel". The treadmill test was revealing but the programming based on the results were so far off that I don't know how to proceed.
You know you're wired when...
You have the perfect reason to show off your chest.
I'm still running and feeling great.