Complete heart block - questions to ask
I am extremely grateful to have found the club in the midst of what seems like the darkest time of my life (I'm not an official member... yet). I'm a young, healthy (?) 33 yo, with two young kids, just diagnosed with an incidental finding of a complete heart block that looks to be congenital. Have had a low resting heart rate (mid to high 40s, dropping to 37 at sleep) for the last 10 years (Apple Watch tells me it goes up to 160+ with exercise), some fatigue (effectively treated with iron supplements) and 3 syncopes I can recall, years ago (one with exertion, two when at rest and unwell). Mentally struggling to come to terms with this diagnosis, cannot go half a day without crying and worrying about not being there for my kids.
I was discharged from the hospital after a clear echo and 5 days of monitoring with the message that pacing decision is not one they will make lightly given my age and the risks/benefits of pacemakers and status quo, and have an EP/cardiologist consult coming up where I expect further tests.
I've read a lot of studies through the sleepless nights of CHB risks such as sudden cardiac death, significantly increased risks of pacemaker complications associated with implants in younger population, but also some (rare) stories of asymptomatic patients well into their 50s..
Long story short (sorry!) I wanted to prepare for the consult with questions to better understand my particular situation and options as a novice - I figure those with lived experience could help - thank you very much for the input.
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