Really anxious and stressed

Hello

I am honestly very stressed about this change it will bring on my family. My mother means a lot to me, more than I can define and her health has always been very important for me. I have high functioning anxiety and it adds on it. 

Today I found out that my mother has ASVP of 98% and aerial pacing of about 4% and it just terrifies me that I won't be able to spend as much time with her as I had hoped. Is the percentage too much ? It's better I hear it?


5 Comments

Stay calm and all will be well

by Gemita - 2022-12-20 08:28:39

No, the percentage is not too much.  

We always say here that it is more important to focus on “how we feel” not on those pacing percentage numbers that we may be given by our doctors.  Numbers on their own without symptoms may not mean very much.  It is how we feel that matters.  If we feel well, then those pacing numbers will be just right for us.  If your mother doesn’t feel quite right just yet, it will probably be normal too until her heart settles down and gets used to pacing and she and her heart (and family by the sounds of it) recovers.

I am paced 100% in my right atrium and about 4% in my right ventricle.  Many here in this Club are paced 100% in their right ventricle, depending on their heart condition and the pacing system they have implanted.  Some have been paced 100% in their right atrium or right ventricle for years and have not suffered any ill effects. 

It sounds to me as though you need to stay positive to keep your Mum’s spirits up and to help her to believe that she will remain well and be around you and the family for a long time to come.  Although I understand your concerns, a pacemaker does not mean that your mother’s life is coming to an end.  Quite the opposite, it will help her to live a better quality of life and to remain with you for a long time to come.  But it can take time for everything to settle.

Be happy, be positive, be confident and work with your doctors until your Mum feels more comfortable is the best advice I can give for a successful outcome.  It took me several months to settle from my implant.  Now my pacemaker is my friend and my heart rhythm disturbances are well under control.  I couldn’t be without my pacemaker now.  My quality of life has improved immensely and it will be the same for your Mum too.

ASVP = Atrial Sensed, Ventricle Paced

numbers

by Tracey_E - 2022-12-20 08:38:50

If she has av block, 100% ventricular pacing is perfectly normal. There is no number considered good or bad, the pacer is there to work as much we need it. 

Anxiety

by Lavender - 2022-12-20 08:44:15

I'm thinking you are more anxious than your mom at this point. You're both still adjusting to the idea of her mortality having been threatened by her unexpected heart issues. 

The reality is that her pacemaker has extended her life beyond what she would have lived. It's her saving device. That sneaky problem she had has been discovered and so now can be dealt with and she has new hope. 

It is very early on in her healing. This is not how it will be in time. She and you will start to trust her device. You will let your guard down. You will stop being in hyper vigilance mode. Give it time. You have post traumatic stress disorder from this surprise event. 
 

If you're not already on meds for anxiety to carry you through, seek help before you get your own illness from being so stressed. You can also seek natural relaxation from meditation, yoga, deep breathing exercises. A psychologist turned me into listening to Michael Sealey with headphones. You can find his relaxation self meditation on YouTube. Free. 
 

If you want to continue to be supportive for your mom, you need to put on your own oxygen mask first. Your mom was recently checked out and all is well.  Her life isn't over. Her hope lies in the fact that she's been treated. Many people live long long lives with her condition.  
 

I have 100% block. My AV node is done. I am totally dependent on my device. I'm fine. I'm older than your mom. 
 

 

So much gratitude

by Shagunsharma - 2022-12-20 09:42:37

Honestly I have so much gratitude for the support you all have offered me.

At this point even I am tired of myself because I am in this vicious cycle of Google and i try to find all the negatives and worry about every single thing. I can't stress upon the fact that I wake up researching and sleep on it as well finding every single thing that can go wrong.

As soon as I read about VP I became beyond terrified. 

Gemita _ Thank you so much for always commenting on the thread and offering your advice

Tracey_ Really appreciate your help in easing my anxiety a bit 

Lavender _ You have been extreamely supportive with such a warm heart even when I keep asking questions on repeat. I am beyond grateful honestly.

30 years is all I need with her, atleast 30.

 

Googling for trouble

by Lavender - 2022-12-20 10:02:24

Google-bad

Doctor's advice on her condition-good

Hey! There's a lot to worry about like all the other diseases out there? How about mom getting hit by a car? Would you make her stay inside from fear of that? Oh then she stays inside and now you must research and see all the home calamities that can happen! She could trip over a rug and die. She could slip in the shower. Ok so then -no rugs or showers because of the danger. Mom could die from any number of unforeseen unpreventable causes. Most likely she won't die from heart disease because she's got a medical team monitoring her and a device to make her heart beat.  Mom is already past her natural expiration date because there's been intervention to help. 
 

Whew what a relief that mom's heart problem was discovered!  Yay she got help and is healing! Yay the docs tested and all is fine!

yay! Professionals....who know a ton more than you can ever google...are not worried about mom. 
 

Breathe. Calm. Stop googling!!! 😵‍💫

How do know all this?  Because I used to be you. 🤣

I am ahead of you on this path through the wilderness. Here take my hand. Trust. I already went through that scary part. You can get to the other side. You're not alone. 
 

You only want thirty years from your mom? Hah!! Why limit it to that? Let's just do today. Leave the rest. We only have now. The past is gone. Today is the gift they call the Present. enjoy. 

You know you're wired when...

Your license plate reads “Pacer4Life”.

Member Quotes

My muscles are very sore but each day it gets better and my range of movement is improving.