Life after pacemaker

Hey everyone I hope everyone is doing well. Thank you for always being so supportive.

I just wanted to ask has there been any restrictions or has pacemaker slowed your life down in any way. Are you able to travel or live a normal life?

Thank you


18 Comments

full life

by new to pace.... - 2022-12-17 10:47:10

Are you asking for yourself?

new to pace

Restrictions

by doublehorn48 - 2022-12-17 12:04:37

I received my first pm in 1987. Back then I was told to not get close to car batteries when the car is running. I've gotten too close a few times with n ill effects. There are other things to avoid but common sense will usually keep you safe. Of course there are things you can't do anymore. After my first pm was implanted my cardiologist came into my room and said that I  could do 90% of what I could do before the pm. And he was right.

For my mother

by Shagunsharma - 2022-12-17 12:17:58

No , new to pace

I am asking for my mother. She is 54 and got her pacemaker due to bradycardia, conducting system issues 17 days ago.

No Restrictions

by Julros - 2022-12-17 12:21:46

I have no restrictions and am actually more active since I recieved my device. Airport screening has evolved so that I don't need anything special for that. 

life

by new to pace.... - 2022-12-17 14:09:22

If your mother was able to use the computer she can ask the questions. If not you can show her how it is not hard.

 So do you not have to relay the answers to her.

new to pace

She is 54

by Persephone - 2022-12-17 15:43:13

Hi Shagunsharma - I hope your mother is feeling well. I would say to not focus on the age part of the situation and more on how she feels with the PM - she's still in the early days and it is expected that it would take some time to learn how to adjust to what sounds like a rather sudden health change. Support her in staying in contact with her medical team, especially if she has questions or needs help.

To answer your question, I was around the same age when getting a surprise PM and while I made some minor accomodations, I haven't experienced limiting factors of any great extent.

 

Life is good

by Lavender - 2022-12-17 15:59:28

First-it's perfectly fine to ask questions on your mom's behalf. No problem at all. There can be language barriers (mom might have a different native tongue) and some folks just aren't tech savvy. I would gladly post questions for my own mom if she had a pacemaker. Mom would need me to do so and certainly was never computer oriented. Please ask anytime. It doesn't matter who needs the information!

Second-to answer your question-there's nothing restricting me from living a normal life. Read some other posts here of the adventures folks take on, the weightlifting, the athletes!

Has your mom's fever gone away?

Life After Pacemaker

by Marybird - 2022-12-17 16:27:39

For me, life is better after the pacemaker. I can do anything I want. I feel better, have more energy. I'm not a spring chicken either, I'm 75, and have had the pacemaker for 3.5 yrs. No restrictions that I can see.

Life after Pacemaker

by Rch - 2022-12-17 18:10:08

It's perfectly fine to ask questions on behalf of your mother!!!!

From the Bio, it's not clear to me what brand of PM your mom has, like MRI conditional etc. She was probably implanted the PM for symptomatic bradycardia or chronotropic incompetence. What symptoms did she have that prompted her to visit the doctor? Are her symptoms now improved after the PM? You have to allow at least 2 months for the leads to embed. Also she has to minimize excessive stretching of the arm on the side of the pm for about 6-8 weeks. If she experiences any palpitations or heart racing, she would need to consult her Cardiologist for possible reprogramming or addition of some medications to her drug regimen. Other than that, she would only benefit from the pacer!!

 

 

Life after

by Tracey_E - 2022-12-18 10:44:40

I'm 56 so same age as your mom, got my first one at 27 and am on my 5th pacer. I've traveled around the world, raised my kids (born after the pacer), own a business, ran 2 half marathons last year, work out daily, hike or ski every vacation. No one looks at me and sees a heart patient. 

If I may be blunt, you are worrying too much. Having a pacer is very minor procedure and once we heal most of us forget it's there and get back to doing what we did before. Is there a reason your mom doesn't post for herself? Is the worry coming from her or from you? 

Language barrier

by Shagunsharma - 2022-12-18 10:56:02

I am from India and my mother's tongue is completely different and that's why I have to ask the questions on her behalf. Things are fine somedays and other days it gets a bit complicated.  The site is healing quite well, it has almost healed but my mother is rather a very active person. She doesn't lift her hand over her shoulder and is very careful about that but when she walks fast or climb up the stairs she observe some palpitations, as soon as she relaxes things get better and even the monitor shows absolutely fine values. This does not happen when she is laying down but when she walks fast or does some excessive movements that's when it happens. It has been 18 days since the implant. 

movement and a higher rate

by Tracey_E - 2022-12-19 09:02:14

The pacer has a function called rate response. It senses when we are moving, assumes we are being active, and raises our rate for us. This is likely what she is feeling when she is walking fast. It can be adjusted if it is raising her rate too easily. Or it may just be she will get used to the feeling. 

Palpitations

by Shagunsharma - 2022-12-19 09:12:14

Thank you so much for your response Tracey.

I really appreciate it as well as everyone else who are trying their best to bring a sense of comfort. Today we went to the ER as she was experiencing palpitations, no shortness of breath just palpitations which last for a few seconds. A really weird sensation, it happened few days back but then everything was okay, now since yesterday it happened again. The doc took some x rays and the EP tested the pacemaker and said everything was fine. We really don't know what that is. 

newness

by new to pace.... - 2022-12-19 10:18:50

You have to remember your mother just got the pacemaker.  Her heart is adjusting to the pacemaker and her body is also adjusting.  By the way why did she get the pacemaker and is she on any medications?  that could be some of the problems.

new to pace

No other problems

by Shagunsharma - 2022-12-19 11:30:46

The diagonses was pretty shocking for us all because all the reports were pretty normal. The EF of heart was 63%, no blood pressure, no diabetes, just the electrical conducting issues , sinus node issues. The ventricle is pacing at 90 and atrial at 4% , dual pacer, st jude's 

Palpitations for a few seconds

by Rch - 2022-12-19 19:45:05

Keep track of the timings when the  palpitations happen. If they happen once everyday and have a pattern, they could just be the daiky automatic ventricular capture tests and are perfectly normal. Some Cardiologists or even the EPs neglect to warn patients on that. 

If the dual chamber pm was implanted for symptomatic bradycardia, most likely the atria is paced 90% and ventricles 4 %. 

im alive

by dwelch - 2022-12-29 14:09:29

the pacer made the difference between life and death. Unfortunately media and other uneducated sources think pacers cripple you and or you are so crippled that you have to be treated special.  Granted, yes, depending on the condition, the CONDITION may result in a restricted life.  But the pacer has very few restrictions, do not hug high powere transformers, large motors.  Welding has limits.  If you work as a lineperson on power lines or sub stations.  If you do not fall into those categories, then you are fine, the pacer wont make things worse and its purpose is to make things better if not completely normal.  I have complete heart block and the pacer makes me completely normal, no restrictions (other than  those above).

Anxiety will be normal, fear of things that have pacer warnings will be normal.  Ink is cheap and lawyers are lawyers so there will be warnings on the dumbest of things, but you dont need to worry about those that is as much about ignorance on their part as it is on legal protection or scaring off potential lawsuits.  

the recovery takes months, in stages from pain to gaining back movement in the arm, to can I sleep at night (give that a few weeks), wash my hair with both hands, etc.  but eventually it is like a belly button or middle toe, you know you have it but you dont think about it until you bang it on something.

 

Life Changes

by Stache - 2023-01-22 20:37:50

I have had my dual chamber pacer for two years now pacing 100%.  Life has changed for me as I cannot do the heavy exercise or hard work I used to.  Physically I get tired and mentally still sharp.  We do travel by air often and just returned from Yellowknife, Canada from California.  Temperature doesn't affect my pacer just the opposite.  I have had to give up my scuba diving and windsurfing.  I still ride my bicycle long distance and it has gotten better as I don't get tired or winded anymore.  At 69 being active is a way of life for me, I just do it.

 

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You make store alarms beep.

Member Quotes

Your anxiety is normal. It takes some of us a little time to adjust to the new friend. As much as they love you, family and friends without a device just cannot understand the adjustment we go through. That is why this site is so valuable.