Tetralogy of Fallots

This may be a bit of a longshot (or maybe not since we're all here for the same reason) but is there anyone else here that has Tetralogy of Fallots? I've been told all my life that my condition regarding this is good, and that I may never need to get the replacement valve.

They've also said that my needing of the pacemaker, the fainting spells I get due to my heart pausing is NOT related to my previous condition? It just does seem connected but I suppose they're the professionals. 


5 Comments

Tetralogy of Fallot

by Gemita - 2022-11-16 10:27:45

Tanno, from your comments, your prognosis sounds good and in any event you have your pacemaker now to protect you.  I think you should be reassured by the comments you have received so far from your medical team, although of course you will need someone to keep a close eye on you in the future in case your condition changes.   In the meantime, I hope you will live your life to the full but carefully watch for any changes in your symptoms and report these quickly.  

I have done a general internet search and found a member with Tetralogy of Fallot and I attach a link (from 2017) - first link.  You will see there were no comments unfortunately.  I also attach a link (second link) on Tetralogy of Fallot for any member who may wish to read about this congenital heart condition.

https://www.pacemakerclub.com/message/30858/another-newbie

https://www.mayoclinic.org/diseases-conditions/tetralogy-of-fallot/symptoms-causes/syc-20353477

Update:  Perhaps you could kindly fully complete your Bio and let us know if you have ever needed any corrective surgery?  

and another link just found

https://www.pacemakerclub.com/message/17517/congenital-heart-defect

where are you

by new to pace.... - 2022-11-16 17:02:53

Are you still in Poland visting your girl friend?  Is she happy that you are spending your time on this forum.

  Are you having any problems since your implantion a weekago?

new to pace 

@Both

by Tanno - 2022-11-17 05:18:06

Hi Geminta thank you for your update! It's been a good read and will definitely will need to read more about this.

 

Hi new to pace, no I'm not in Poland anymore, I was only there for the weekend, as my girlfriend and I fly back and forth often to see each other.

No problems really, other than what I'd assume is just healing pains, I've lifted my arm above my head accidentally out of muscle memory, which hurts initially but subsides, but still trying to take it easy.

Tetralogy of Fallot

by Tracey_E - 2022-11-17 09:13:36

Blake, the site owner, has that also. He isn't on very often. I believe he had the valve replaced at a very young age. He's doing great now. 

It's not uncommon to have an assortment of heart issues, not just one. The pauses are electrical. Tetralogy of fallot is structural. 

Heart Anatomy and electrical conduction

by Selwyn - 2022-11-17 11:44:30

Unfortunately, the electrical and structural problems go together. The large venticular septal defect associated with untreated Tetralogy of Fallot ( TETRAlogy as the heart has 4 structural defects) means that arrhythmias are associated with this condition. The electrical conduction system for the ventricles commences in the lower heart by the division of the Bundle of His into left and right bundles ( famous for bundle branch block arrhythmias). These are part of the the intraventricular septum (partially missing in Tetralogy of Fallot).

The directly transmitted  pressure from the LV to the Right Ventricle causes enlargement ( yet more arrhythmias) and increased flow to the lungs with lack of oxygenation of the blood there is blueness (cyanosis) if untreated.

The early  embroyonic development of the heart as a tube, is wonderful, with twisting and folding to. get upper and lower chambers, the Trucus Arteriosus dividing into the aorta and pulmonary artery ( hopefully !)  When this process goes wrong we get  the Tetralogy of Fallot.

1. ventricular septal defect.
2. pulmonary stenosis.
3. overriding of the aorta
4. right  ventricular hypertrophy.

The embryology explains the abnormal anatomy. 

Tanno, you are quite right to make the connection between TF and arrhythmias.

 

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