Repositioning of Device experience?
As many of you may remember, I had my ICD replaced last January due to battery life and upgraded to a 3rd lead. Shortly after it was replaced, it dropped down into my breast and turns 90 degrees when I lie on my right side. I've had to wear a bra 24/7 to keep it from turning. It has continued to be very painful and when it flips back it feels like it gets caught. After months I was hoping it had scarred down, but it has not. My 'new' EP said he doesn't do repositioning and gave me a name of a thoracic surgeon that specializes in lead removal and repositioning. I no longer see the EP that replaced the ICD. I had Barostim surgery about a month ago and the vascular surgeon recommended I see a surgeon (same name as the EP recommended) for repositioning. I saw the surgeon (different hospital) last week and I was totally shocked at his reaction, as I thought I may be wasting his time. He said he knows it's extremely painful, as it is far down in my breast and he's concerned about the damage that could occur to my leads. He doesn't know why it had dropped so low.....and I told him I was wondering if it was placed in a pocket.... He told me that since I'm 100% dependent with all 3 leads that I cannot risk damage to the leads. He said it will be very complicated with several days in the hospital. I am to call tomorrow with a surgery date, and will plan on possibly early December. I am still numb with this news. I know I can't endure the pain for 4 more years. Even with limited physical activity with the barostim recovery, it continues to be painful and a constant ache.
He is also interested in my biopsies I have yet to get results from my former EP, and he made a phone call while in the exam room, I believe calling a company that some of my biopsies were sent. He definitely jumped onto my case and was knowledgeable regarding my heart history. I am looking at it as another set of eyes.
I know repositioning is done for many different situations. He would not offer any strategies until he does testing including a CT.
You know you're wired when...
Friends call you the bionic woman.
A lot of people are and live normal lives with no problems whatsoever.