Post Pacemaker Feelings

I had my pacemaker fitted on the 27th July after being admitted into hospital as an emergency with a heart rate of 27. I was very ill indeed. After surgery I felt wonderful practically immediately afterwards. However, now on the 23rd August I really am getting quite tired. I walked just over 3000 steps today just trying to get fit, but my pulse was 120 plus and my chest hurt a bit so I was worried. I really expected that by this time I would be feeling so much stronger than I am.

I have to go to the Heart Clinic on the 1st September for the first time post op when I understand my PM will be re calibrated to suit my lifestyle. I just wonder if I am expecting too much or maybe doing too much. I don't want to be a wimp, but am getting a bit depressed with it all.


8 Comments

Hang in there

by Lavender - 2022-08-23 14:42:01

How you feel is just for now-not forever!

You haven't had your pacemaker interrogation and adjustment yet. I felt so much better after they tweaked my settings. 
 

Your initial setting is a start. Now that you're healing they can see what your needs are. Bring along your written questions so you don't forget anything you want to know. I usually get fifteen minutes with the pacemaker tech then fifteen minutes to discuss with the cardiologist about any changes made. 
 

Don't gauge how you feel based on this early experience. You will improve. 

DITTO

by Good Dog - 2022-08-23 16:20:02

Ditto what Lavender said!

It will get better. Just make sure you tell the doc what you have been feeling!

Sincerely,

Dave

Calibration (settings optimization)

by AgentX86 - 2022-08-23 23:05:12

You don't tell us why you have a pacemaker.  Some conditions really don't need much tuning of the pacemaker.  Other reasons one would need a pacemaker may require months of tweaking to get everything just right for your lifestyle.  It would be good if you added some more history to your profile.

Post Pacemaker Feelings

by Flamingo - 2022-08-24 06:20:03

Thank you everyone for your kind comments. Regarding my history, I have had discomfort in my chest for quite a while, visited A&E a couple or three times. My pulse rate according to my health band was going down to 45 on a regular basis, but I don't think the hospital caught it. Finally, I was so ill I couldn't even get down the stairs without stopping to catch my breath. Doctors appointment confirmed, after ECG, that one side of my heart was not working because it was not receiving electrical signals. Two probes were fitted and the pacemaker wired up. Sorry not to be more technical. I play golf on a regular basis but had to cut down to 9 holes not 18 some time back. My golf partner said I was getting very slow. So that's about it. 

Fine tune settings

by Gotrhythm - 2022-08-24 12:59:01

Your story sounds very much like mine. I could tell the pacemaker was making me feel better as soon as the anesthetic wore off, but then it was like all further progress stalled.

The key for me was optimising the pacemaker settings. Pacemakers are marvels of enginerring, but when alls said and done, they are a computer and can only do what they are programmed to do. To get the best results, you need the best programming.

This is just my opinion, but I have observed that the better your overall health and level of fitness, the more you need skillful fine tuning of your pacemaker settings if you are to return to your previous level of physical ability. And enjoy your personl best quality of life.

Unfortunately, it takes time. There is no simple cookbood of recipes. Getting the right settings will be a matter a tweaking a little, seeing what happens, tweaking a litle me.

Edutcate yourself. Advocate for yourself. Be patient but proactive.

A good quality of life is possible. Good luck.

[please excuse typos.]

 

Post Pacemaker Feelings

by Flamingo - 2022-08-25 07:28:34

Thank you so much Gotrhythm. Hopefully the tweaking will be successful and I can get back to some semblence of normality. Golf seems a long way off at the moment. Unfortunately I developed a clot in my armpit and have had to have treatment for that. Apparently it's quite unusual, but I got it!! (some people will do anything for attention!) On blood thinners now. But I shall presevere, be as patient as I can be and hope for the best. Thanks again. 

I try to forget its there.

by KF - 2022-08-30 00:11:48

After 2 years and 4 months with the Medtronic (two wires, RA & RV) for heart block, I often wonder what happens it it , the PM decides to "crap out"!. I look in the mirrior and see it bulging in my chest and I'm sometimes spend to much time dwelling on it. I'm soon to be 72, just had a nuclear stress in June. The cardiologist said I passed with flying colors. But I take comfort and so can you that PMs are so advanced now that we should be able to carry on at some point. It took me three months to get back to my reckless self. It takes courage and determination to keep going, Your no wimp!

Post Pacemaker Feelings

by Flamingo - 2022-09-05 15:20:21

KF thank you for your reply. I visited the Heart Clinic last week to see the technicial and she said my Pacemaker was 'perfect' and now I could do all the things I was told not to do during the last 6 weeks. So good news. However am taking Xarelto Rivaroxaban for the blood clot, just reduced after 3 weeks from 30 mg per day to 15 mg per day for another couple of months. So a light at the end of the tunnel. I look forward to having a whale of a Christmas!!

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It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.