Should I worry all the time about being 100 % dependent on pacemaker they the drs never explained it to me properly 


no worries

by Tracey_E - 2022-08-07 10:03:48

Many of us here pace every beat, and have for years. Pacers are much more dependable than our hearts, you can trust the pacer to take care of you. In the unlikely event something were to happen, your heart would go back to doing what it did before you were paced. 

No worries

by benedeni - 2022-08-07 11:16:07

As Tracey says, you don't need to worry.  I, like you, was told only that I needed a pacemaker for complete heart block.  I guess I was just so overwhelmed (3 years ago) that I didn't think to ask many questions.  They were the experts and they said that a pacemaker would take care of my issues.  In hindsight I should have asked a Lot of questions.  

You are in the right place.  There are unbelievable people here in this Club that will answer any questions you may have and More!  I am constantly amazed at the knowlege these people have.  Welcome to the club and rest assured all is good.

In hindsight I should have asked a Lot of questions

by Persephone - 2022-08-07 13:57:19

Very helpful messages posted here - knowledge is power. About worry, not to get all philosophical but I recently read great advice: "worrying is like praying for bad things to happen". Wishing for you that all good things come your way.

Pacemaker Dependent

by AgentX86 - 2022-08-07 13:59:41

I'm also dependent. There are many areas of the heart that can pace. The secondary sites (called "ectopic) have ever decreasing rates, the fastest being yhe sinus (SI) node. Fastest wins.  It's what we rely on for normal living and that's what your pacemaker is replacing.

If your pacemaker should completely fail (they don't) one of these ectopic sites would take over. Depending on which, you might not retain consciousness but your life wouldn't be at risk. It would be a quick trip to the ER but you'd be fine. Pacemakers don't completely fail so this isn't going to happen. It's just the worst case scenario.

Hi there

by toniorr11 - 2022-08-07 16:30:14

I'm totally dependent now since 19th July and I know what you mean about not knowing much at the beginning. It's worrying me at the moment but that's because I don't quite trust it yet! I think the trust will build over time though. Worry comes from your mind. About something that might or might not happen and knowledge can help alleviate that. Some people like to know a lot and some a little. You just need to know enough to settle your mind I think. That's where I am just now. Not sure if this helps! The other posts might be better lol but I can empathise.

might or might not happen

by AgentX86 - 2022-08-07 16:43:29

Instead of  worrying about the one-in-ten-million chance that your pacemaker is going to completely fail, consider what your life would be without it at all. It's all about playing the hand we're dealt.

What me worry??

by Lavender - 2022-08-07 21:22:56

The bible says this about worry:

Luke 12:25-26 Who of you by worrying can add a single hour to your life? 26 Since you cannot do this very little thing, why do you worry about the rest?

Matthew 6:27 Can any one of you by worrying add a single hour to your life?

Matthew 6:34 “So do not worry about tomorrow; for tomorrow will care for itself. Each day has enough trouble of its own.

 I'm 100% dependent and without the pacemaker, I would be 100% deceased, so the pacemaker is my hero, not something to worry about!💓



by toniorr11 - 2022-08-08 04:37:59

Perspective and mindset is everything. I'm truly starting to feel like I've been gifted my Pacemaker instead of worrying about tomorrow. And I have to thank this forum for that. 

Agent X: really interesting info re ectopics. I didn't know all that. So useful. 

Lavender: Worrying is an enemy for sure. Hard to control though but if people recognised it 2000+ years ago then you must listen lol. 

Outofthetrap: I hope you are feeling better today 🙂


by Prof P - 2022-08-10 17:48:32

As you see, lots of us are totally paced.  Neither of my cardiologists seemed to be surprised.  They had just said "you're totally paced."  The cardiologist/installer simply said "see you in about nine years" when the battery runs down.  

"Totally paced"

by AgentX86 - 2022-08-10 19:07:10

A pacing percentage of 100% and being pacemaker dependent aren't the same thing. Take anyone and turn the minimum rate on their pacemaker high enough and they'll be paced 100% of the time.  Unplug the pacemaker and the rate will return to its normal rate. 

A more real life examle: If one has SSS, with Bradycardia  and a rate of, say 40bpm (enough to need a pacemaker), he will be paced 100% of the time if the pacemaker is set to 60bpm.  Remove the pacemaker and his rate drops back to 40bpm.  This isn't "pacemaker dependency". The heart continues "normally", just at a low rate.

OTOH, if someone with a complete heart block is paced 100% (if it's really complete, it will be) and remove the pacemaker, the rate will fall to the ventricular escape rate, which may be 15bpm (or 0bpm).  The heart can no longer maintain enough circulation to sustain consciousness or even life. This is pacemaker dependency.

You know you're wired when...

Your device makes you win at the slot machines.

Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.