Post surgery

Hi, 

4 weeks on from my ablations and pacemaker implant and still feel as though I've been kicked up and down the street, no energy, struggle to even get up the stairs, tired all the time, aches and get out of breath especially when I bend over to the point of feeling dizzy and lightheaded.

Just wondered if anyone else had felt the same post surgery and how long it took until things got better?

Thanks


6 Comments

Hi again Simon

by Lavender - 2022-08-02 18:36:06

Sorry to hear things are continuing to be a problem. You should be having your one month pacemaker adjustment if you haven't already. Perhaps some adjustments are in order. If you have already expressed these issues to your medical team, I am wondering what advice they gave you? 
 

At this stage in my recovery, I was still dragging my butt and taking afternoon naps. I think it was partly depression on my part and partly physically regaining strength. I did not have breathless feelings ever. Bending over did cause neck pressure for me but it resolved in time. My left arm still gets muscle knots. Go get a licensed therapist massage-it comforts me. 
 

Some folks like a pedicure-yes even men! I don't do that, but you sound like you could use some comfort!
 

Buy a new herbal tea-get a variety pack so you can see what you like. I enjoy the lemon ginger tea or the chamomile, sleepy time ones. Can't say it enough-drink water!  Coffee is not a good hydrater! 
 

One day around seven months post implant, I realized that nothing hurt and the pacemaker wasn't in the front of my thoughts any more. I know others who had no trouble adapting -but we are so individual.  Your healing path is personal. Never feel bad about saying things don't seem right. Just do each day a bit at a time. Be good to yourself. 
 

Things that helped me: not allowing others to stress me, listening to music I loved, listening to meditation tapes, making my mind think differently. 
 

Being outside every day is important. When it's hot, go sit outside early or very late and watch the colors in the sky as the sun sets. Today I just caught sight of a beautiful big butterfly clinging to my single bloom on my very feeble butterfly bush. There's beauty out there. Wash your mind with peaceful images. You may be still sad about what you've gone through. 
 

It will get better. It will. I know that folks say they weren't bothered at all having their pacemaker and good for them! But, not everyone has it that easy and you deserve to be heard and helped!

2 surgeries

by Old male - 2022-08-02 19:40:37

I am surprised they would do both Ablation and Pacemaker Implant at the same time.  I have to ask members, Is this common?

Ablation and Pacemaker

by AgentX86 - 2022-08-02 20:07:14

IIRC, SIME had an ablation go wrong and they took out the AV node so a pacemaker was needed immediately.

I had the same thing done, except that the AV node thing was intentional. 🙂

I felt better immediately because the AV ablation stopped the flutter symptoms.  Since yours wasn't planned there may be some serious settings that have to be changed.  Rate response is a biggie.

Time to Heal and Settings Review

by SeenBetterDays - 2022-08-03 06:52:10

Hi Sime

I am three weeks in following a CRT-P procedure and am extremely fatigued so I don't think your situation is too unusual.  We are all individuals, as Lavender said,  so will take different amounts of time to heal and recover from procedures.  I know it's frustrating and worrying but give your body rest and TLC and hopefully you will see gradual improvements.  The settings at the start are rarely what we need going forward so I would keep a record of all your symptoms and discuss them at your next pacemaker check up.  It may well be that tweaks to your settings could have a significant impact on how you feel.  Unfortunately, it can take time, patience and a bit of research to get where you need to be.  It's still early days and there will be lots that can be tried to make you feel better. Let us know how things go.  

 

Comments

by Sime - 2022-08-03 11:44:15

Thanks for all your kind words and advice.

I have 2 weeks until I go to pace clinic, hopefully I can get some reassurance that the symptoms I have can be expected in some patients.

I think I was a bit naive going into the procedure, having a pre assessment before the surgery with my consultant and having only read snippets on the internet from reputable sites which explained the ablation and pacemaker insertion procedure and which stated that the recovery from these procedures was minimal and most people can resume normal activities within two weeks.

Post procedure and I'm realising that there is so much more that I probably need to understand. I went into surgery knowing that the ablations carried a high risk of AV node damage which would result in a pacemaker insertion, this was a risk I was happy to take to resolve my long episodes of tachycardia due to having Wolff Parkinson white syndrome all my life which was putting me in danger of possible other future health problems (blood clots and stroke) so to me it was a risk worth taking.

4 weeks on and I still experience heart flutters and a racing beating heartbeat in addition to my other post surgery symptoms. 

I'm don't know if things will calm down and maybe it's early days and things may get better after I go to the pacing clinic but and I'm sure that the health professionals wouldn't have put me through the surgery without there being a justified benefit.

Thank you for your replies it's much appreciated.

Racing 💓

by Lavender - 2022-08-03 16:30:38

When the pacemaker is implanted they turn up the beats per minute at first until your leads can settle in more. I was used to a slow heartbeat. I think they initially set me at 70bpm. I felt like my heart was in there on a trampoline. It was making me feel anxious. I felt every beat. Many of us get hypersensitivity when our pacemaker is in at first. My brain was on fight or flight mode with all the new activity. I don't drink caffeine anymore, but it reminded me of when I used to coffee-up. 
 

At my first pacemaker check, they turned it down to 60bpm so the heart pounding calmed down. I'm still aware of my heartbeat but it's not like that high energy beat now. Thankfully. 
 

let us know in two weeks how your pacemaker check goes. Keep a note listing any questions so you can ask not only the cardiologist or EP, but also the pacemaker tech. 
 

My friend had WPW when she was younger and fainted a lot. They did a procedure on her back then and she's fine ever since. 
 

Hey, maybe "most people " go back to normal activities in two weeks, but that's not ALL people. 
Don't blame yourself for still having issues.  Our pacemaker club recent survey on post implant issues proves that many folks are surprised with lingering pain or problems. Copy, paste, and take a look:

https://www.pacemakerclub.com/message/41793/just-a-reminder-that-our-survey-results-can-now-be-viewed

 

 

 

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Life does not stop with a pacemaker, even though it caught me off guard.