when I was saying turned off I meant  not pacing.

the technician actually turned it off or so she said for a week and a half and the tremors or vibrations continued. The Doctor said my vibration was not connected to the pm because it continued while it was off. 
I don't believe it. I'm  sitting here right now watching tv and vibrating.

I am getting to the end of this, and told the nurse today it has to be stopped. She said she didn't think it was the pm but I never had this before I had the pm put in.

I stopped Flecainide a few weeks ago and I seemed better for a little while but it has all now come back.

They want to talk about a plan next week   I've never had an X-ray that I know of by the way.

I told them I wanted a new pm put in and the leads checked  I'm not sure they will agree  





by AgentX86 - 2022-06-17 23:53:51

Since they've turned pacing off and it's still happening,means that it isn't the pacemaker at all. One thing you can try is recording the vibrations on a cell phone.  You *might* hear something that you can use as evidence but it's likely not real.  It could be nerve acting up, which is common after any surgery.  This would be unique but anything is possible.

In any case, the chances of getting a new pacemaker are as close to zero as you can get.  It's going to take a lot of evidence to come to that conclusion now. Even if your EP was willing to do it, your insurance company certainly won't.

Sorry, but you have a lot more work to do to find the cause.

Sensations of vibration following pacemaker implant

by Gemita - 2022-06-18 05:52:41

Spud, I am assuming you have had your pacemaker settings checked since initially they leave our lead settings set slightly higher than normal while we are healing.  Presumably these settings were adjusted ‘downwards’, so as not to cause any extra vibratory sensations, although I see you are still getting symptoms even with the pacemaker turned off.

You could ask about the possibility of having incurred a nerve injury or irritation during implant?  This is a risk and could present with intermittent irritative symptoms such as those you describe + spasms/hiccups, or in more serious cases, damage to say the phrenic nerve could affect breathing and cause shortness of breath which might take a long time to resolve.  Like AgentX86, I believe this vibration could well be nerve related due to implant trauma and I don’t see how removing your pacemaker system would improve your discomfort, since this might risk causing further trauma and damage.  Only time and patience in my opinion will help.  The way forward?

Yes I would ask for a chest X-ray to check the position of your leads as crustyg mentioned in your first post.  I would also ask if the vibration could  still be caused by (1) higher than normal lead settings or (2) damage to a nerve and if so, what can be done to relieve your symptoms?  I would also agree with another member (Marybird) who mentioned the possibility in your first post, of tremors and likening these to heart rhythm disturbances as a cause for this vibration type sensation.  I can often feel strong vibrations in the diaphragm/epigastric area during any arrhythmia and this can be worse or more pronounced when lying down when my heart and lungs have to work harder.  I see you were on Flecainide, so you have a history of arrhythmias.

If all else fails, look up diaphragmatic flutter, a rare condition, but an interesting one.  I attach a link.  We are such complex creatures and will all react differently to the trauma of an implant.  Personally I believe it will get better since time is a great healer, but you do need some help and answers now from your team.  I wish you well Spud.


by new to pace.... - 2022-06-20 09:15:02

do you also have heartburn the same time.  If so you might try a gas pill.  I use Beano before i eat anything and that seems to work for me.

new to pace

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