I just want to reach out and thank everyone again for the support and help that I have recieved. The people of this community are so intelligent and caring and have made this whole journey that much easier to manage.
Sadly, I am not feeling any better. My vision/motion issues seem to come and go at random (morning, afternoon, evening, sitting, standing, driving, etc). Sometimes they last for a few seconds/minutes, and sometimes they hang around for 3-5 hours.
I've been able to work from home and avoid driving myself, but I am pretty limited on doing much of anything as going to the store or to a restaurant can either be a normal experience or a constant feeling of needing to sit down or I may possibly puke.
I saw my primary yesterday morning and the first order of business was to "test" for vertigo (some movements and monitoring of the eyes) and everything seemed fine. She put in for another referral to neurology (I've already had a brain CT and MRI, but she says there are other things they can study/look at).
We also upped my dosage of my amlodipine from 2.5mg a day to 5mg. She stated that my blood pressure is a little higher than normal and never consistently in that 120/80 range, so it could be the potential fix, but she didn't seem too confident. I am supposed to reach out after a few days to a week to see if the increased dosage made things better/worse/the same.
Trying to remain positive and focus on things that I can control. Going to adjust my workouts to at-home exercises and maybe shorter/closer walks with multiple laps -- I miss going to the gym so much, but just don't feel comfortable or confident yet.
I also have a sleep study scheduled for 2 weeks as the at-home sleep study revealed that I have moderate-to-severe sleep apnea. This might not be effecting my vision, but obviously sleep apnea is bad on the heart and blood pressure, so i'm sure in time, it will help to get it under control. I assume I will get my device/machine after this second study to determine what sizes/types I need.
Otherwise, I am going to keep "pushing" myself a little bit more each day to see if I can find any sort of patterns or triggers. It bothers me not having answers, but it is comforting knowing that we are still trying things. I don't think neurology will find anything, but I could be wrong.
I do have an appt on Dec 16th for a pacemaker check and then to see my main cardiologist, so I hope to have updated news to report back on or at least another set of eyes to look at the problems that I am experiencing (that were never present before the PM install in Sept). I'm not saying any or all of this is related, but it could possibly be linked together at some point.
We shall see.
Take care everyone