Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of whether or not they experienced post op pain, are welcome to participate, since this will help to provide a balanced, unbiased survey result.  The survey should take no more than 5 minutes to complete.  The survey data will be collected by a trusted member of the Pacemaker Club who has experience in this area and the results will be analysed carefully and reported as soon as possible.

What is the purpose of the survey and what are we going to do with the results? 

If we can get sufficient numbers to participate in the survey to make it a worthwhile study, say around 300 members, it is our aim to try to get the results published in a well respected cardiology journal, so that these results are available to the medical profession.  Any paper accepted would have an acknowledgement to the Pacemaker Club.  Results of our survey will help us to better understand and acknowledge the complex range of pain and other symptoms many of us may experience post implant and how we might best manage these.  This will help to improve patient outcomes now and in the future, particularly since most of us will expect to go through several battery/lead changes in our lifetime. 

I will continue to “re-post” this message from time to time to try to reach as many members as possible.  I apologise in advance for my persistent, unwelcome intrusion on your “Most Recent Messages page” and I thank you for all your patience and help with this.

The survey link is:-

https://s.surveyplanet.com/bS5tNLhNq

Gemita

1 Comments

Update

by Gemita - 2021-11-30 03:21:55

At the last count, we had received 139 responses to our Survey.  I will update this as soon as I receive the latest figures.  The Survey will run until the end of December 2021.

Some members have kindly told me that they could not remember their pain symptoms, duration of their pain or the type of pain they experienced and so felt they had nothing to contribute to the Survey.  I would like to confirm that the Survey is for all members irrespective of whether or not they experienced, or remember experiencing any troublesome pain after implant.  The Survey aims to report on the frequency of post op pain.  To try to get a balanced Survey result, we would therefore also like to hear from members who did not experience significant pain, or who cannot remember their pain which might suggest little or no unusual, lasting pain.  Thank you all for your help  

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Yesterday was my first day mountain biking after my implant. I wiped out several times and everything is fine. There are sports after pacemakers!