Having problems with pacemaker

Hello all I am new here, I had a duel chamber pacemaker placed on nov 3rd 2021 started a few days later with twitching in my right side and diaphram found out the lead came out of place, so on november 16th 2021 they went back in and my pacemaker had fell down in pocket so he sowed it down to chest muscle and sowed the leads down and left more slack, well yesterday day after that surgery my lead has moved again, he said my heart just won't take the screws to keep it still so I am waiting now for 3rd surgery to be schelduled in 2 weeks time and this is taking a toll on me physically and emotionally. he is going in this time and taking it out completely and going through my leg with a wireless pacemaker and I am just wondering if anyone else had this much trouble with theirs and if the wireless helped you after all that trouble thank you all 


5 Comments

3 tries

by Tracey_E - 2021-11-17 09:26:40

I'm sorry you've had such a struggle! That's very unusual but not unheard of, sometimes the heart muscle is cranky like that. I don't have personal experience with that but from what I've heard they usually try a different type of lead that attaches differently, or sometimes have better luck using a different surgeon. I've never heard of switching to leadless. I would ask questions about the suitability of wireless, if it was the best choice for you it seems they would have started with it. It can be great, but it's new and doesn't work the same as two leads. I would want a second opinion, to confirm that there isn't a way to make the leads stick, and that leadless will do what you need it to do 

3 tries

by sweetnsassy - 2021-11-17 10:35:08

Thanks for replying Tracey I have what is called sick sinus syndrome where my heart would stop for about 8 seconds and I was passing out, that is why he did the duel chamber to start with, but he said he had another patient and she was just like me wouldn't stay in so he put the leadless pacemaker in and she had done great for 3 years the only downside is it will only pace one chamber not two . he is the chief of cardiology at the hospital where I am going and does the pacemakers and such. I am concerned but he feels bad to keep putting me through this since this pacemaker isn't staying so he felt it was the best option, I might consider a second opinion, but this has to come out since it isn't working properly and its giving me palpatations that are making me feel unwell

Run don't walk to a different EP

by ar_vin - 2021-11-17 12:25:30

If I were you I'd seek out a competent electrophysiologist in another practice that does many PM implants and lead extractions (in case your current leads need extraction). If this means travel to a larger medical center it would be well worth it.

Don't waste any further time with this "cardiologist".

Please let us know how it goes.

 

Lead extraction

by AgentX86 - 2021-11-18 20:41:55

After only a month, a lead extraction shouldn't be much of a problem.

A screw or heart muscle failure isn't all that uncommon. I am surprised that it's taking them another two weeks to get you back in.

Dual Chamber Implant

by Stache - 2021-11-18 22:41:25

I have a dual-chamber pacer and wires (2) implanted  One month later I had a severe infection in my pocket and the pacer was removed cleaned and the pocket cleaned cutting out some tissue.  My pacer was reinstalled.  I felt every shock from my 100% pacer for the first two months.  My wires never came loose but I felt the shocks.  Just relaxing I can feel the shocks still, doc says it happens not to worry.  My doc took X-rays before and after and gave me copies so I would know the wires were screwed in and not loose.  I have had one MRI a few months after surgery and it shows my wires are still tightly screwed in.  As we heal the wires are held tight by the scar tissue.  Wire leads should not be coming out that would really concern me as it does you.  Not sure what to tell you but ask a lot of questions from the medical team.

You know you're wired when...

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Life does not stop with a pacemaker, even though it caught me off guard.