Activity ability becoming less as heart EF improves from 20% to 55%
During 2018 and 2019 three attempts were made to fit a CRT-P,the 3rd lead being transeptal (which was causing the surgeons problems,eventually solved using lasso method)so 3rd lead is on my left atrium,guarded by Apixiban.
First op 31st Oct 2018,2nd op New years Eve 2018,final and successful op 23rd Jan 2019.
My problem severe left venticle block was only discovered by chance Dec 2017 (even though I had reported the symptoms!-"another story")
Prior to the surgery,and even during the periods of surgery and recovery,I was quite able to walk normally,and continue to restore a 19yr old car,plus walk my Husky dog,which at 80yrs of age I thought was quite a feat???At no time was I phased by the surgery or of any risks.
At the time of discovery of my condition of heart failure,after all the necessary tests my Ejection fraction (EF) was only 20%.yes I used to tire easily and had limited energy,But from 2014 until 2020 I was more than able to get about,and managed my life quite easily.It was though a close call!
Now Im experiencing complications,in that Im woken by aching calf muscles,on standing I sway all over the place, as if my legs cannot support my weight,walking is almost impossible due to the discomfory in thigh and calf muscles.Only by walking up and down my hall for 10 minutes or so can I get any control over my legs.Over the period of the day I do improve slightly,but nowhere near my post surgery state,or immediatly after?
My EF is now an unbeliveable 50-55% virtually normal.and this appears to be my main complication,because as the volume of blood passing through my heart improves, my walking and activity events are decreasing alarmingly mainly due to the discomfit and fatigue suffered by my legs!
My cardiology team has changed,my new team appear to be unobtainable (due to Covid) so eventually I managed to get a referral to AAU (Acute Accessment Unit) who diagnosed "possible" claudication of the legs ?They in turn have arranged a referral to a Cardiovascullar surgeon on the 11th Nov 2021.
What can I expext,and should I phrase my questions in any particular way or say it as it is? Take care one and all Caskin