Survey Link - Post procedure pain following Pacemaker/ICD implant
As many of you will be aware from messages here, “post procedure pain” following Pacemaker/ICD implant is unfortunately all too common. There appears however to be little in the way of studies done relating to this, other than individual case reports, whereas “complication rates” following pacemaker/ICD implant has been more widely reported and studied.
Over recent months, several members of the Pacemaker Club have expressed a wish to see a survey carried out on how many of us experience pain after pacemaker/ICD implant, the nature and extent of that pain and how it affects different age groups and gender.
A survey has now been set up with the kind help of Club members and you may wish to have a glance at the questions by going to the SurveyPlanet link below. Your participation in this survey is entirely voluntary and should you decide to participate, I would like to reassure you that the survey is confidential and will not be used for marketing purposes. The survey will be used solely to help with our understanding of the extent and frequency of post procedure pain and to help improve patient outcomes following implant. The data will be collected safely and confidentially by a trusted member of the Pacemaker Club who has experience in this area. The survey results will be analysed carefully and reported as soon as possible.
To achieve an unbiased survey result, we would encourage all members interested in participating, to complete the survey irrespective of whether or not they experienced post procedure implant pain. Clearly some members will not have experienced significant pain, or developed troublesome symptoms following pacemaker/ICD implant and this needs to be reflected in the survey too.
If we can get sufficient numbers to participate in the survey to make it a worthwhile study (say around 300 members), it is our aim to try to get the results published in a well respected cardiology journal, so that these results are available to the medical profession. Any paper accepted would have an acknowledgement to the Pacemaker Club. Results of our survey should help us to understand the complex range of symptoms many of us may experience post implant and how we might best manage these, since most of us will expect to go through several battery/lead changes in our lifetime.
I realise we have a current Poll still running on “post procedure pain” and thank you all for your contributions. I have been advised polls on the Pacemaker Club only allow for a single question and prearranged answers. Our new survey will give us additional valuable information and if you wish to participate and can spare about 5 mins of your time, that would be greatly appreciated.
I will continue to “re-post” this message from time to time so that members who visit the Club infrequently will not miss this message. I apologise in advance for my persistent, unwelcome intrusion on your message board and I thank you for all your patience and help with this.
The survey link is:-