Getting on the list..
Good morning y'all,
I have good news to share, but first I have to tell you the funny part. I went to bed pretty late last night and was sound asleep about 20 min ago when the hospital called. I answered the phone and it was my cardiologist, I was still half asleep. His connection was bad so I could only make out half of what he was saying. I was able to make out that they are listing me for a heart sometime in the next 24-48 hours, I was so sleepy and mildly confused trying to make out what he was saying that I had no emotional response and probably sounded like a weirdo. My husband said I sounded like Inwas receiving an appointment reminder not the call that said I was getting on the transplant list. Honestly I am still not awake and I don't think it has sunk in. But if u can imagine someone reacting like a robot that is what I sounded like because I was in such a sleep stupor! My doctors probably think I am a total weirdo now lmao.
So I guess the news revealed itself in the story. I am getting listed for a heart transplant! I will get a call again when I go "live" on the list. I imagine once I have woken up I will be extremely happy about this, but those sleep chemicals are still messing with my head!
I apologize for not giving an update for so long, as I know some of you have been waiting to hear news from me. We had some delays, A couple of appointments/consults that I needed to go through before they could make a decision. Now the real wait begins!
Thank you to everyone here who has been a support to me through this journey so far, know that many days and nights y'all were some of the only comfort I had and you have literally been a part of my strength!
I was asked again when he called if I was interested in a hep C heart (this is a newer thing for this hospital). I of course said yes. I had hep C years ago and was treated and "cured", so for me that was an easy decision I know I just have to do the twelve weeks of pills again post transplant. They did have a liver specialist check and make sure I was safe to get a hep C heart should I want one and I was cleared for it. I guess there is an extra step in the listing process to list me as open for hep c heart offers, I don't have the details on that yet but I imagine there is some paperwork I need to sign.
I will keep y'all updated of any more news!