Anyone have trouble with LV lead stimulating diaphragm?
I have gone back in 3 times in the last 5 days to have them adjust the vector in my crt d. Every time they find one that works by the end of the day it starts stimulating my diaphragm again. They say it's because I am so skinny, but I NEVER had this problem with my other devices and leads. Granted there are more leads now and in new places. They are hoping it wil "settle" into place and eventually stop moving to stimulate different areas. It's not painful but the constant hiccups and stomach spasms are driving me crazy.
In other news I get my transplant eval started next Tuesday. An all day affair full of tests and appointment with everything from "spiritual care" to nutrition. The last few weeks have been a whirlwind. I now have home inotropes, a nurse who comes by once a week, physical restrictions I'm not used too. Check ins with nurses and docs. It's very surreal. I am very overwhelmed, I can't seem to get past how "real" the fact that I am actually dying has become.
Also, the nurses told me my shivering is a side effect of milrinone but the doctors didn't seem to think that was right. I chatter my teeth so hard I bite my toungue. Anyone have this side effect with milrinone infusion?