Pre-syncope with a pacemaker for Sick Sinus Syndrome
This is my first post, hoping someone can impart some knowledge! I was fitted with a dual chamber pacemaker in October 2020 for heart failure, asystole, syncope etc. due to Sick Sinus Syndrome with no other regulators in the heart backing it up.
In January 2021 I was back in hospital for checks because I was having pre-syncope episodes. After two days in the hospital, I'd only had two very minor episodes, which the ECG did not pick up, so the conclusion was that it wasn't the heart causing the problem. After that, I didn't have many reocurrences and they eventually stopped altogether, so it seemed it was just a "blip". However about a week ago, the pre-syncope episodes started again.
I have had 8 so far today, and it is horrible, worse than before. It starts with a very minor feeling in the chest, then immediately turns into a full-on weird feeling in the head and the upper body, with tingling up the leg (usually the right leg), and sometimes it's so bad that if I didn't lean on something I feel I would actually pass out. Immediately after, I break out in a hot sweat. It happens when standing, sitting, moving around doing chores, and also when I'm laid in bed. I daren't drive my car.
Has anyone else had such experiences? I plan to contact the hospital of course, but it would be nice to have some "insider information" first. I've tried researching this on the internet, but so far not found anything useful.
I do not take any medication, have no "heart disease" other than the (redundant) sick sinus. I am fairly fit, do active sports such as cross-country skiing, hill-walking and gym etc. The pacemaker has been adjusted once to accommodate for the exercise, which seems to work, for aerobic at least. The doctor seemed to recommend that I shouldn't do anaerobic, which I was disappointed with. I would be interested in any comments on that, but mostly would be grateful for any advice on the pre-syncope.
You know you're wired when...
You can feel your fingers and toes again.
I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.