Unexpected side effect of weight loss -- just venting
So, I saw the Heart Transplant team last September and they said I pass all their tests for progressing to the next stage of assessment except for my BMI (and eliminating amyloidosis as a cause of the problem). I needed to lose 6kg (13lb) and be signed off by the National Amyloidosis Centre [NAC] before they would move me on.
Not a given I'll decide to go for it -- major surgery, and I'm not sure I've got the support they want -- I live alone for example 75 miles from the hospital, which will make follow up difficult. Always, it's worth assessing whether all the hassle etc. involved is worth the possible life extension -- I'm not sure. And I'm close to their normal age limit -- only 2-3 years away. But I want to know whether I'm at least eligible before I make the decision-- and it will be worth knowing the results of the tests they do (when they can do it -- appointment next week just cancelled for obvious reasons).
(As an aside, they mentioned that I have restrictive cardiomyopathy that has been developing for over 10 years -- and which was not spotted by any of the consultants I saw for AF between 2004 and 2018... Heigh ho; life happens. Not going to dwell on missed opportunities.)
So, the NAC have signed me off, and I've lost the required weight. Two times (lost it, had a fluid blow up, extra diuretics, AKI which landed me in hospital for 4 nights not long before Xmas, assigned to a cardiac failure nurse who knows more about diuretics than any of the doctors I've previously dealt with, lost the required weight again plus 50% more. (If I keep going, I'll soon be overweight rather than obese).
Plus points: I can tolerate more excercise, and generally feel much brighter (less fluid == less breathlessness).
Minus points: There's no padding over my pacemaker any more. It's currently sitting just beneath my collar bone, and if I want to, I can feel the terminals and the lead. It's slightly tender at present, but nothing I'm going to worry about unless it gets worse. To be honest, the lack of padding in other areas is more of an issue (who knew there were bones in my thigh? and that sitting on a hard surface without the padding in my backside would be uncomfortable! :) )
I'll get used to it, but it's an example of how body changes can affect our relationship with our pacemaker...