pacemaker/defibrillator lead/coil questions
Hello everyone. My name is Cory and I just found and joined this group yesterday. I really don't voice much in the way of my health, outside of my sweetheart wife; but, I am taking a shot now feeling like there might be someone out there who can give me some perspective, information and maybe even prepare me.
I can handle most anything if I know what I'm dealing with.
So, my pacemaker/defibrillator was placed in 2013. I just turned 48. I am due for a battery/device change within the next year or two. I have also had a Coarctation of my descending Aorta repaired on February 2019 . . . I don't usually get to uptight about anything heart related after having my Coarctation found and fixed so late in life. They found it, told us and schedulled that complicated surgery quick. This issue, not so much.
This last December I had a high urgency alarm go off; the French Ambulance tone. Between my Electrophysiologist and Medtroics they got it shut off and said it was nothing to worry about. They said it was a lead impedance issue . . . Which we had zero idea about and just went on about our merry way.
Two days ago, the same alarm went off again. I went home, did the download and called the doctor. They called me back within an hour, or so, and schedulled an appointment for the next morning at 9:30. I went in, a lady I had never seen before came in and did my interrogation. It took quite a bit longer than it usually did and she was all business . . . and, wrote a ton of things on a form: which, I has never been done during a device visit. I'm not even sure she raised or lowered my heart rate as is usually done. She told me she turned off the alarm and a coil. It was the first time I had heard the coil term in over seven years of having the device. She took me to my Electrophysiologist's desk assistant. Nothing else was explained. The assistant said she was moving my June appointment to March 18 (two weeks from yesterday). She said my doctor will explain whatever options, what we need to do, or not do . . . if he thinks anything needs to be done . . .
The whole appointment was so weird, short and it seemed as if they were just allowed to give me the minimum information. It is just not anything I have come to be used to from them.
So, my question after all of this is, if they shut down the coil, (that I was told I don't really need anyway) does this alarm that has now gone off twice in just over two months, mean that one lead is bad? I feel like if everything was ok; and, all we needed to do was turn the HIGH URGENCY LEAD IMPEDANCE ALARM off, I wouldn't need to come back, three months early, just to hear it from my Electrophysiologist that everything is fine. Seems to me his someone from his staff calls to tell me he said everything is fine and nothing to worry about.
Am I making sense? I feel like just digitally threw up on everyone reading this. I'm not an alarmist. I just have the feeling there is more too this than they are leading on and researching everything, like folks like us do, I feel like I'm playing dodgeball with myself and can't decide who's winning . . .
Any input and/or direction is appreciated. I just want some honest feedback.