strange new situation...
I am posting on here today as I always get and see lovely messages on here and everyone likes to help everyone, so i thought this is the perfect place to ask.
Over the past 4 months i have been in and out of hospital for investigations and check ups for a run of non sustained VT seen on an exercise test back in november.
For this i was given an Upgrade to a Dual chamber pacemaker, i previously only had single chamber pacemakers since the age of 4 weeks old, i am now 17. my condition is Complete Congenital Autoimmune Heart Block (my mum has lupus which gave me antibodies that induced 3rd degree heart block in utero).
Yesterday I had my 5 week pacemaker assessment where i also had an exercise test. on the test i had 2 ectopics in a row, but i was told this is normal, i had no VT. Basically the big discussion between my team at oxford, london and myself is what has caused this VT. There are two option, 1) is that the old single chamber pacemaker couldn't keep up with what my heart wanted to do, causing desynchrony and the non sustained VT occurred, during high exercise. Or option 2) My heart block is progressing and causing scar tissue to form in my heart, causing ventricular arrhythmia.
I have never heard of the second option before and in the 17 years of my life have never been told this is a possible issue. If the first option is the cause for the NSVT, then that is not an issue as i have the new dual chamber pacemaker now. If the second option is the cause, then i will need an ICD and close follow up as the heart block would be causing scar tissue to form over my heart.
At the moment i am just being closely monitored, and will be having pacemaker checks in 3 weeks and a exercise and pacemaker check 2 months after that.
I was wondering if anyone else has seen or experienced anything quite like this, it is a lot to take in and It would be nice to hear some opinions, thank you to anyone that read this,